How Many Are We?

2011 Stage 1 ILC

2014 Stage iv ILC (Mets to liver etc.)

So far I see 183 results here, but subtracting the 15 that are comments, Q&A, and deletes, that gives us 168 people with stage iv who have posted here so far. I count 22 who mention ILC either in their post or in their stats, which is 13%. I did this calculation because it seemed like we had a lot of ILC stage iv here, but 13% coincides with the information from the NCI SEER that says ILC makes up 10-15% of invasive breast cancer cases (all stages). SEER counts stage iv de novo cases (6-10% of cases), but does not keep track of early stage to metastatic cases. Many people here did not give subtype, so I assumed those are IDC.

Dx 6/2014 tnbc, brca1+ Stage1

Dx 4/2016 solitary met to brain

Hi , took me almost 2 years to join a support group .

My name is May -- Stage IV mets to liver and bones . 201

Stage IV Invasive Ductal Cancer w/mets to spine and pelvic organs April 2016.

Hi !!! 2016

Hello! Original BC stage IIb 2011, stage IV (bone mets) diagnosed July 2016.

De novo September 2014, right breast, several lymph nodes, sternum and lung.

Progression July 2016 - original tumor grown into chest wall, and discovery of a 2nd adjacent tumor.

Hi Z - originally stage 2 IDC in August, 2012; then stage 4 in December, 2015 (mets to left lung and sternum).

Hi, Skeletal bonemets from the start. EndApril 2016

Hi, mets to bone ("innumerable skeletal lesions") and ovaries as of May 2016. Originally Stage 1 IDC + DCIS in 2009, recurrent DCIS in same breast 2011.

Hello from downunder. DX Mets to bones,lymph nodes, adrenal gland and now liver 😠

Welcome Donna and all the newbies!

Big hugs!

--The Mods

Hello. Diagnosed May 2016 - stage 4 from the start. Mets to bones

Hi! Stage 2 2011, bone mets 2016

Hi - DCIS - 2006, Stage IV Spine, Liver 2015.