Newly diagnosed.. sorry if all this has been covered

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Luna52
Luna52 Member Posts: 147

I have gone from a routine mammogram finding of very tiny tumor (< 1 centimeter) to needing a mastectomy in 6 weeks! Unable to get clean margins.. I am opting for a bi-lateral mastectomy.

Even after lots of online research, I ama bitshocked... but totally convinced that I don't want reconstruction.

I do have an appointment with a reconstructive surgeon.. at my BC surgeon's urging...

I am asking.. is there a way to get a better/flatter result in the original surgery? did any of you engage a plastic surgeon not for reconstruction but to get the best "flat" result?

I am now a 36 C.. looking forward to a flat chest.. but also I am overweight and expect to look like a bit like a Buddha after the surgery








Comments

  • NineTwelve
    NineTwelve Member Posts: 569
    edited August 2016

    Hi Luna - It depends a bit on your unique variables, but more and more women are refusing reconstruction surgeries. I discussed it with my surgeon when I was first diagnosed. When I said, I want to be "flat as a ten year old boy" he said, "Shouldn't be a problem."

    Then they found metastases and my surgery was scrapped. I live with my original tumor, and sometimes I think wistfully of being completely free of breasts. I think I would find it freeing, but you never know unless you have been there.

    Can't answer your question about techniques to ensure the smoothest, flattest look, but I'm sure there will be others chiming in. Anyway, sorry you have to be here, asking these questions, but if you have to be here, here is a good place to be. Lots of caring and very smart people on this board!

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    Thank you.. and i wish you the best..OMG nothing predictable about breast cancer

    to quote the Grateful Dead.. What a long, strange trip it's been

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited August 2016

    I originally thought I wanted to go flat, but my BS insisted that I see a PS to discuss it. In the end, we decided on a one-step sort-of-reconstruction.  It turned out horribly and I am very disfigured and lumpy.  I am also overweight and the Buddha look is bothering me much more than I thought it would.   I recently started augmenting my bra and I'm stunned at how much more confidence I have when I have my booblets on.I had no idea that I was so vain. At this point, I am strongly considering reconstruction.

    I'm not tell you this to dissuade you from going flat. I'm just saying, be prepared to have a lot of emotions about this.  It's not a simple decision and I think consulting with a PS before surgery is still a good idea.

  • dragonsnake
    dragonsnake Member Posts: 159
    edited August 2016

    Luna, please read my signature that describes my diagnosis. I asked my surgeon to make me flat, but sometimes it's just not possible. Your  breasts have a certain shape; breast tissues do not fill all the breast, there is a lot of fat that shapes them. The  surgeon's task is to remove the breast tissues, so some fat will be left, not to mention some breast tissue that is impossible to completely remove. To make you flat, the remaining skin  should be stretched very tightly.  This will restrict the movement of your arms, so  a good surgeon will leave some extra skin under arms and in the back to ensure a good range of motion. What also matters is where is your tumor, and how close it is to the skin, because a good surgeon should remove skin around the tumor, and also remove the skin around your biopsy site.

    Imagine that you have a hollow spherically shaped surface  made of some material with limited stretch. Then you cut out a big section of it, and try stretching the remaining material to   cover the hole. This is what happens during the mastectomy. I guess to achieve a complete flatness without affecting motion one has to have a plastic surgery after the initial incision has reasonably healed.  

    After taking all of the above in consideration, I still opted  for no reconstruction.

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    Thank You so much

    know for sure.. LOTS of emotions

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    thank you so much .. all of the info/honesty helps so much.. you are a wonderful person!

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited August 2016

    Luna,

    UMX about 4.5 years ago.  Very happy with my decisison, tho living as a uniboober can present complications during the summer here in New England.  Very seldom do I wear a bra.  Reconstruction - I had inflammatory breast cancer and they actively discourage immeadiate reconstruction.  Surgery down the road -NO NO NO   my body has been through enough.  I have a regular Buddha belly, some day I care and most days I do not.  If you are on facebook - check out the Flat and Fabulous page - much support and many others living without reconstruction and with a Buddha belly

    Best

    Nel

  • GeorgiaRai
    GeorgiaRai Member Posts: 175
    edited August 2016

    My BS assumed I'd want recon & set up a PS consultation before I left my first appointment. I went, but knew almost immediately that I didn't want reconstruction. When the time came for my BMX (months later, after neo-adjuvant chemo), I called the PS and asked him to assist in my surgery but only to give me the best non-recon result possible. I literally had to explain it to him numerous times - this was a first for him! I remember wondering if I was crazy for not wanting recon, and finding this forum was a huge comfort to me. It didn't help me make up my mind, it just helped me realize that my decision was ok

    I never cared about being teenage-boy flat, I just didn't want gnarled or twisted scars. So, 4 years later, I'm not flat flat - there is actually some tissue that looks almost cleavage-like in V-necks - but I'm very happy that I didn't have reconstruction or save extra skin "for future use".

    I was back to work (wearing a bra and poofies) within 3 weeks, and got fitted for silicone forms after radiation. I'm lucky in that I have no pain or sensitivity near my scars, so wearing bras and fairly-heavy forms is comfortable and feels natural to me.

    Sorry you're faced with these crappy choices, Luna, but best of luck to you on your journey.

  • ravzari
    ravzari Member Posts: 277
    edited August 2016

    I did have a plastic surgeon work with me so she could move fatty non-breast tissue around to give me a flat appearance without the possibility of my chest being concave; however, my bmx was preventative and I didn't already have cancer (which is why I had them removed, to prevent that from being a high possibility!) so they may have been able to do a little more with the existing fat in my chest area than they might be able to do with someone who has had an actual diagnosis. I also got to keep my nipples; they were put back on as free grafts.

    About 9 weeks out, without a shirt on, I look like I have what I describe as 'tiny pecs', and I look flat under a shirt. The 'tiny pecs' are just residual swelling, which I was told could last 6-8 months total.


    My main concern was not being concave if at all possible, and my general surgeon told me up front that he didn't feel he had the skills necessary to guarantee that outcome as, general surgery aside, his main practice for the past 7 years has been bariatric & gallbladder surgery and not breast reconstruction; he was more than confident in doing the mastectomy itself but not at all confident that he could do an aesthetic 'clean up' very well (and I'm grateful he was honest and up front with me about that!), so he suggested we loop in a plastic surgeon so I could make sure I got an aesthetic outcome I'd be happy with.


    I do have a couple of public pics at 8 1/2 weeks post op of my chest posted with a review of the plastic surgeon I used here if you want to take a look: https://www.realself.com/review/eau-claire-wi-brea...

    I tend to scar pretty well, so even without scar treatments, I'm anticipating they'll fade to white within about 12-14 months as my other surgical scars have done the same.


    Edit to add: I also plan on posting updated pics to that review as the healing process continues.

    Also worth adding, prior to my bmx, I was a 34DD.

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    amw - thanks for the detailed post and your pictures. You have a great result. It's been helpful to hear from others who included a plastic surgeon for non-reconstruction. I meet with the plastic surgeon on Monday and feel a lot more confident about the discussion

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    GeorgiaRai - Thanks for sharing your experience with your plastic surgeon. And good to know I am not crazy... yet!

  • ravzari
    ravzari Member Posts: 277
    edited August 2016

    Luna52,

    Even though my experience was good and my PS didn't pressure me to reconstruct or have implants put in (we talked about it and discussed the various options just so I had the info--I even got to go into her room that's just a table full of about 50 different sizes, types, and shapes of breast implants to 'browse' which was strangely fun, but I was already set on wanting to be flat.), I have seen a lot of posts from women who had their PS do that and just give a lot of resistance to being flat, even to the point that the surgeon just decided, during the surgery, to leave extra tissue 'just in case' the patient changes her mind.

    If you get that vibe from the PS you meet with and they don't seem to be taking what you want (flat, no extra skin left) seriously, I'd highly encourage you to see if there's another in network PS you can meet with that might be more willing to work with you to get you the result you want vs. the result the PS thinks you'll want.

  • Wicked
    Wicked Member Posts: 141
    edited August 2016

    Luna, make sure your surgeon understands (if this is the case) that you don't want recon, now or ever. I've made it very clear with my BS that I want to be flat and my plan is to hopefully get a chest tattoo. She supports this and is not pushing me to get recon. At our last appt, when we were talking about the BMX, she said, "You promised me a tattoo!" She told me she has other patients who have no recon and tattoos, and is not pushing me to see a PS.

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    Wicked and AMW..

    Thanks for the advice regarding my BS and PS...

    I did feel a bit of pressure from my BC,. first about removing the non-diagnosed breast and later about doing to consult with PC.

    I do need to be very clear in my Monday appointment with the PC and with my follow up with my BC on Thursday




  • rianne2580
    rianne2580 Member Posts: 191
    edited August 2016

    Hi Luna52,

    There are options that do not include surgery, stretching skin, an alien object under your chest muscle, lots of pain and the chance the insert could burst. Knitted Knockers helped me as I had the R breast removed. I look natural in tops, dresses, workout clothes etc. and don't have to deal with the extra surgeries and issues that come up with reconstruction.

    My PS told me at the consultation there is minimal pain, then showed me a video of the procedure. I was horrified and politely left the office never to return. I've heard and witnessed some pretty bad situations with recon but it is a personal decision. My husband was happy I did not have it.

  • Luna52
    Luna52 Member Posts: 147
    edited August 2016

    thanks to everyone for your responses.

    I had my appointment Monday with the plastic surgeon my breast surgeon recommended. One of the first things she told me was "you want to be committed going into reconstruction because it is not a quick process". We had a good conversation and she was very clear with me about what I might expect from immediate implants at the time of my bi-lateral mastectomy. What she told me confirmed all the great information I have gotten on this site.

    Overall, she was positive and easy to talk with, but not pushing me in any direction. It was a short appointment because I went into it thinking I wanted no reconstruction and nothing she described changed my mind. I asked about the possibility of looping her into the surgery to get the smoothest closure but she has worked with my surgeon a lot and was confident my BS could give me the same result.

    This site and community is an amazing resource. It has given me the chance to do my own research and think about it over time, not just deal with information overload in a half hour appointment. I definitely went into this appointment knowing what questions I needed answered.

    Next step is an appointment with my BS on Thursday to finalize the surgical plan and hopefully get the darn thing scheduled!

    Luna52


  • Bearhitch
    Bearhitch Member Posts: 40
    edited September 2016

    I had a lot of pressure from my surgeon about having reconstruction. "I've never had anyone your age not want reconstruction." Well - I blazed a trail and I was glad. My mom had reconstruction and issue after issue - still to this day 10 years later. I did not want that at all.

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