I wonder if this could be lymphedema?

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Seraphima
Seraphima Member Posts: 97
edited August 2016 in Lymphedema

Hello all,

Thanks in advance for any replies. I know there is TONS of info out there, but I'm not finding the relevant stuff.


I had surgery almost 2 weeks ago (lumpectomy when they found a 4 cm. tumor and SNB - thankfully negative). Lumpectomy healed well, but biopsy incision (top of breast kind of under arm) seemed to be more painful.


In the meantime, pain has gotten worse. Kind of nerve-shocks through the area when I walk, soreness when I move my arm, and a feeling like something is there, pressing. It does sometimes go out to other areas (cording?) but especially around my back.


Anyway, today in bed I got my arm over my head and felt a lump or swelling below the incision. It's soft, and maybe about 4" wide, and sits below the incision (toward the ground) from an upright position. The area is sore to the touch. I don't want to put my arm against my side because it feels like I'm pressing in on something.


I have a re-excision on Tuesday. (The margins were not clear.)


So ... I'm wondering if this can be lymphedema. And more importantly is there anything I should do or not do in that case. I'll put in a call to the surgeon's office too, but in don't want to get my surgery cancelled unless it's absolutely necessary. I want to get all this over with so I can get back to work ASAP, if possible. But I don't want to make it worse out of ignorance, and if there's anything that would help, I'd like to try that too.


Thanks!



Comments

  • SusanRachel
    SusanRachel Member Posts: 68
    edited August 2016

    You need to call your surgeon or whoever is covering for him (do not wait for Monday). There are several serious surgical complications that you could have based on your description. Lymphedema is less likely to show up this quickly than other complications of surgery.

  • Momine
    Momine Member Posts: 7,859
    edited August 2016

    I agree about checking with doc sooner rather than later. That said, a fair amount of swelling can happen with surgery. I had BMX, and on one side I had a lot of fluid. It resolved on its own, but it took several weeks.

    As for lymphedema, you are at low risk, but I would still urge you to ask for a consult with PT. In my experience, being pro-active can work wonders and the lymph-draining massage and stretches the PT does can improve recovery.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2016

    It’s much likelier what you’re experiencing is a seroma in your SNB site. Many if not most of us get them. Nature abhors a vacuum--and when tissue is removed, your body naturally wants to fill the cavity with fluid to protect it as it heals. Almost all of us who’ve had SNBs found those incisions & seromas more sore and annoying than our lumpectomy incisions and any mammary seromas. Try to avoid wearing anything that might irritate it (seams, scratchy lace on bras or nightgowns, etc.). A pillow beneath your arm can help too (our cancer center gives them out--with a velcro shoulder strap attached--to all lumpectomy patients). You can take a throw pillow and sew a strap so you can hang it from your shoulder. By all means see your surgeon, to rule out a hematoma or infection. (And if you have a large breast in danger of pulling the SNB incision open--as mine did, causing the seroma to leak spectacularly, ask if you should have the incision reinforced with sutures, not just steri-strips. Suturing my incision was a dramatic step in helping it heal till the seroma eventually disappeared).

    But it’s almost certainly not lymphedema (take it from someone who has LE). The nerve-shock pains are probably from nerves irritated by the shifting of the fluid in the seroma and the impact of each stem transferred upward. And at 2 weeks post-op, it’s not too soon to have pangs and zapping pains from nerves beginning to reconnect.

  • Seraphima
    Seraphima Member Posts: 97
    edited August 2016

    Thanks, everyone. I did not see the updates for this post until just now.


    I did call the surgery, and they were supposed to have the on-call surgeon call me back. He never did. :P And in reading around, I think most likely it IS a seroma or something like that. It's actually slightly less painful now, but still a large bump there under my skin - bigger now I think. I think the bra style I've been wearing for the past two days has held it firmly and so it hurts less. At any rate, I should be in surgery in a few hours, and I will ask when I go in.

    Thanks again, very much. I'm going to go ahead and ask him about lymphedema and what I can do about it if it happens, see if he wants to give me a heads-up about someone to help. I have a hard time finding someone who will take the payment system I'm under, so I might as well try to line someone up just in case.


    Thanks everyone.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited August 2016

    Sending good thoughts for your surgery, seraphima, let us know how it went, when you get a chance.



  • SusanRachel
    SusanRachel Member Posts: 68
    edited August 2016

    Hope the surgery went well. Please keep us updated on what they found.

  • Seraphima
    Seraphima Member Posts: 97
    edited August 2016

    Thanks

    I am home firm surgery. The surgeon didn't examine lump when I met with him before but when I woke up I was sore but less full-feelng. I couldn't get my hand on it to check for several hours. I know I felt a much smaller lump, higher up, at one point but right now it seems to be gone and I can out my arm down.


    That pain is much better.


    Pain from the lumpectomy is worse this time. I thnk he had to talk extra skin from what he said before. I did not get any report ... My husband took me but he decided to hang out in the car and didn't come back in soon enough when they paged him so I have no report from doctor. I se him n 10 days. I have spot with oncologist in 6 so I should get pathology then. Oncologist is better about answering questions.


    Thanks everyone.

  • Seraphima
    Seraphima Member Posts: 97
    edited August 2016

    and I didn't get a chance to ask about lymphedema referral. I guess f I'm up to it I can call around and try to find someone who will take my payment and has a spot.


    I need more urgently to find a primary. I've been turned down by several so far and I have less than a month of my thyroid pills now and need labs on those cuz they doubled the dose two months ago jus before my diagnosis.

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