Just Diagnosed with A Couple of Bone Mets

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Proparent
Proparent Member Posts: 19
edited October 2016 in Just Diagnosed With a Recurrence or Metastasis

Hello all. I found this forum and just joined. I was diagnosed with a couple of bone mets in the 6th right rib, L2 vertebrae and a tiny one on the scapula a few weeks ago after 5 years from the original BC diagnosis. Reading through all these posts have given me hope. Thankyou so much for all the support you give to us!

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  • newfmama
    newfmama Member Posts: 107
    edited August 2016

    I am so sorry to hear you have mets, I'm sure you are scared & emotional. This forum should help you get support & answers. Today is my 5-yr cananniversary. I'm concerned about mets as I've heard chances increase at 5-years. 😒

    Hugs to you

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  • KBeee
    KBeee Member Posts: 5,109
    edited August 2016

    I am sorry to hear this. In the stage IV forum, I think there is a thread specifically addressing bone mets. Hoping the meds keep the mets controlled for many years

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  • pajim
    pajim Member Posts: 2,785
    edited August 2016

    Welcome Proparent! So sorry to meet you. Once you have your feet under you (and that may take some weeks and months), come on over to the Stage IV forum. There's a thread for every treatment, and as KBeee says, one for bone metsters.

    I was on my first treatment for bone mets for three years. I'm now on treatment 1b and expect to be around here for many years to come. That's you too!

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  • Proparent
    Proparent Member Posts: 19
    edited September 2016

    Thanks for the welcome and encouragement. I'm dealing with ups and downs, the latest being taken off Ibrance 125mg due to very low counts and getting very sick and dehydrated from it all. Once I get stabilized and feeling better they'll switch me to the next lower dose and see if I do better on that. I've been over to the Ibrance, Faslodex, and bone met threads and have very much enjoyed reading all those posts. Thankyou again for all your encouragement!

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  • kokocat
    kokocat Member Posts: 14
    edited October 2016

    Dear Proparent and everyone,

    I have also just been diagnosed with two bone mets. This is 8 years after my first cancer which I thought they'd caught early enough to knock it out for good. Guess not

    I'm still feeling very raw but I see the warm and knowledgeable group here and I will know doubt be 'seeing' you a bit on these boards.


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  • KBeee
    KBeee Member Posts: 5,109
    edited October 2016

    kokocat, I am so sorry to hear that. I hope you have a treatment plan in place very soon. Were you having symptoms?

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  • kokocat
    kokocat Member Posts: 14
    edited October 2016

    thanks Kbeee,


    I had no obvious symptoms, though looking back I can now see a couple of signs but were mild so I ignored them. My TMs were up at my annual check up in April and then again a month later in May so I had a bunch of scans and finally a diagnosis at the beginning of Sept. By which time I was having some pain particularly in the joints although I was convinced it was arthritis. As you can imagine it made for a stressful summer!

    I now have some back pain that feels slightly nerve related but I have been put on Arimidex and Xgeva and am reading about xgeva causing back pain, so have no idea whether it is due to the disease or the treatment.

    It's all a bit overwhelmingly at the moment. It's good to connect.
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