Five years ago today...told I had cancer ILC

newfmama
newfmama Member Posts: 107
edited August 2016 in ILC (Invasive Lobular Carcinoma)

it's been a long five years & I don't really feel like celebrating. In fact, I'm afraid what might happen going forward. The statistics I've read about ILC indicate there's a higher probability it can recur after 5 years. My Onc wants me to continue AI for another five years, arrgghh. Not sure I can bear the side effects another 5 years. I'm only 59 but feel 80 most mornings. Don't get me wrong, I'm happy I lived through the last five years & have been able to enjoy my grandchildren who were born, but I just a bit tired & afraid. Anyone else have these feelings after 5 years.

Hugs to all of you going through this.


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  • wallycat
    wallycat Member Posts: 3,227
    edited August 2016

    Congrats on the 5 years! I will be 10 years in April and I too have the same concerns...further out may equal more risk of recurrence, but there is no alternative! I'm hopeful new info in science will help us and that has been my guiding light.


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  • Meow13
    Meow13 Member Posts: 4,859
    edited August 2016

    Me too, 5 years in October for me one ilc and one idc tumor. I stopped AIs and feel much better at 58 i want to enjoy feeling good for a few years.

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  • rvgirl2016
    rvgirl2016 Member Posts: 67
    edited August 2016

    Congrats on the 5 years NED!  All my treatments are very recent, but throughout the process I just try to tell myself that worrying about "what ifs" doesn't change the reality whatsoever.  What will come, will come, and we will deal with it when and if we have too!  Sorry to hear about your SE's with the meds though Scared.  I've only been taking Evista for a couple of months, so don't know what, or if I'll have problems, but again, I'm not borrowing trouble worrying about it right now Happy  Good Luck in the years ahead!


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