Excessive drainage 3 weeks post
I am 3 weeks post op having TEs exchanged. This is my 3rd time with drains and I have not experienced this type of output before. My left is still consistently at 80 ml and my right is at 60ml in any given 24 hour period. There are no signs of infection. Fluid is light yellow with the occasional clotting. Everything seems normal except output. It doesn't seem to matter how active or sedentary I am. I work in a preschool/daycare and have been advised not to return until drains come out due to the kids & germs factor. I'm still on antibiotics which are tearing up my stomach despite my probiotic efforts anyone experienced a similar situation
Comments
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I have decided to name my remaining JP drain. It has decided to stay. Output is increasing, not decreasing. It is almost 3 weeks post-surgery and output is over 100 ml per day. I have tried rest, did not help. I have tried extra compression, did not help. I have tried positive thoughts, did not help. I am right there with you.
What do you think about "Drainy-McDrainface"?
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I had my drains in for 3 weeks and 5 days (was still producing 50 ml) and took antibiotics for 4 weeks. The PS remove the drains (his limit is 30 days) and I had to back about a week later to get 90 ml drained from my non cancerous side (and 25 ml from my cancerous side). Its been almost 2 months (BMX was 06-24) and I no longer have that iron band feeling from the TE. I have been seeing a oncology physical therapist for 6 weeks. She massages the tissue and I wear tight sports bras and compression camisoles 24/7. I hope you can get those stinkin drains out soon. Once they were out, I felt so much better! Good luck!
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Haha - Driany-McDrainface! I love it! I have named mine Lucy and Rachel! Not even sure why! I'm trying to stay optimistic but this just sucks! Literally and physically! I miss my kids at school and even though I'm still working from home - it's not the same. I feel like I actually work more! I'm feeling tired all the time and I'm thinking its because I'm sitting around on my butt doing nothing most of the time. I wish there was more contact with my surgeon. I actually haven't heard or seen him since 5 days post op. I've talked to others at the clinic about a week ago but I would love some regular reassurance I guess. Sometimes I wonder if anyone would call or follow up if I didn't. Like 2 months from now would anyone ever say "Hey - did she ever get her drains out?" I am trying to set up a 2nd opinion on this whole thing just for peace of mind.
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Hang in there. I know it feels like forever but I've been reassured that everyone eventually gets the drains removed. My surgery was different from yours and I wasn't sent home on antibiotics so I'm sure that is an extra challenge you are dealing with. I'm returning to work on Monday, trailing my drain behind me. I just don't feel like I can sit around at home any longer. I work primarily alone in an office though, so I think it is doable.
I'm more concerned that a delay in removing the drain will delay my chemo start date. I have a tentative date set to start but that was based on the expectation that Drainy-McDrainface would be removed yesterday. I called in to the surgeon's office yesterday morning to report the amount of drainage I still had and they quickly rescheduled me for Monday. Fingers and toes crossed that I'm able to keep that one.
I understand about wanting more communication from the surgeon's office. They've only ever called me if I've called first. It really is up to you to be proactive if you need anything.
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I had my surgery on July 18, 2016. Non cancer side drain out in two weeks. Cancer side drain still in and we are approaching 5 weeks. My right side has been at 45cc - 60cc for the last three weeks. Being very stubborn as no matter what I do it does not want to slow down. I am very frustrated as well. I feel like I have grown another appendage. It is hard to sleep and when I do fall to sleep I don't stay asleep. My doctor plans to pull it on Monday regardless of output because he does not want to risk infection, even though I have been on antibiotics the whole time. As much as I would like the drain out, I am concerned with filling with fluid and the doc having to aspirate me.
I was wondering if anyone who has had a mastectomy and gone through chemo has not had to do radiation?
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I called the clinic yesterday just to check in for my own peace of mind. They said they will most likely fill me on Monday at my appointment They have explained it to me that they hope the fill will close the open space and slow down the draining. They did not however commit to pulling the drains. I'm thinking that answers going to be no unless something really changes with my output between now and Monday. I'm not holding my breath.
I only had the mastectomy. No radiation or chemo.
Here's a funny thought for today: You know you've had drains too long when you start lining your bra band with overnight maxi pads to try to stay comfortable.
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I was still draining 80 ml from both sides this morning but PS decided to pull the drains and fill me with 120 cc. Says that they've had good results with that lately! I guess we shall see! I'm feeling hopefull! I'm FREE!
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How are you doing, Ringelle?!? I need to know.
I had to say goodbye to Drainey-McDrainface today. Doc was willing to let it go as late as Monday but when he realized that would postpone chemo, out it came. He's expecting me to need to come in for regular aspirations (fun fun!) but says that it is possible that my body will do better at absorbing the fluid without the drain in place. I'm not doing reconstruction so there is nothing to fill to take up space. I really hope that works for you.
Oh, and I'm not sure how I feel about a surgeon with a sense of humor. I was worried about the drain hurting upon removal since it had been in so long. He said it wouldn't and then, when the nurse yanked it out (*ouchy*!), he remarked that he didn't remember leaving so much drainline in me. Sheesh!
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Catgirl - was your drain yanked on Monday? Please report how you are doing. If I start filling up with fluid, I would at least like to know that you and Ringelle are doing great. Someone certainly should be to balance things out.
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Leydi - I'm doing okay. Since Monday my drain sites leaked a lot Monday night. By the morning it was down to a trickle. Now it's just spots. I feel like I "may" have some accumulation but it doesn't seem bad. I was filled 120 cc on Monday too. I haven't felt too tight or sore but tonight I'm feeling tighter than I was. I'm not too worried.
After my BMX my drains were pulled early at say 5 due to a malfunction. I did develop a series on both sides. It wasn't horrible - just a bit uncomfortable. I did delayed reconstruction so I had nothing to fill at that time. At first BS used compression in the form of a really tight ace bandage. After 3 weeks it got uncomfortable and he aspirated 100 cc from one side. The other resolved. It didn't hurt to aspirate. Just weird. He aspirated one more time a couple weeks later and then it was done. I hope you have better or similar results. Just keep in touch with your surgeon.
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Good to hear from you, Ringelle. Glad that the fluid accumulation is reasonable so far. I'm still not sure on my end. I keep thinking that I'm feeling "fuller" under and behind the arm but not seeing any obscene distortion. Fingers crossed.
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It's been 11 days since my last drain was removed. I've been aspirated twice by my BS and will need to go in again early next week. I'd aim for Monday except that it is a holiday. He's removing significant amounts so I can only hope that it starts reducing. I can definitely feel swelling/fullness but it isn't actually painful. The aspiration is pretty much painless since I am so numb there anyway.
Started chemo on time on Weds. Feeling off but not terrible.
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I can relate. I had drains for 8 weeks then had to have fluid removed via needle one week after.
I hope yours are finally out. I have my exchange in October and I'm more worried about drains again than the surgery.
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