Local recurrence

Hi velo,

We're so sorry to have you back here, dealing with this all over again. Please know we're all here for you, and you're sure to receive some really supportive feedback and advice soon. You're not alone!

Thanks for posting. Please continue to let us know how you're doing.

Big Hugs,

--The Mods

I was first diagnosed at 38 with Dcis and micro invasive idc. Had lumpectomy and rads and tamoxifen. Then almost 10 years exactly, diagnosed again-same area. .7cm. Idc and Dcis. Ended up choosing bilateral mastectomy in December 2015. Finishing up reconstruction now. I was fortunate in that my nodes mapped and they were able to take 2 nodes, but I gave permission to do a total dissection if it didn't map. I needed to know, although I knew this didn't necessarily give me any guarantees.

My oncotype test was intermediate and I chose to have oopherectomy and an AI. I had genetic testing in 2005 for brca which was negative. This time we did more and I found out I am chek2. Made me glad I chose mastectomy...wish I had known the first time. Definitely get testing, I had no family history although my mom is adopted-so it could have come from that side.

You're among friends who understand. I don't know what I would have done without the Warriors/sisters on this site. Hugs

Velo, I am also a local recurrence. I totally understand your fear. I read the same bad stats you saw. I'm three years out now from my recurrence. I choose to believe I will beat it. In addition to doing the treatment that was suggested, I have altered my diet a lot, I exercise way more, make sure I get my sleep, and try to reduce stress. I recently had a scare, which was negative by the way, and I found some healing meditations on you tube that really helped with the anxiety. I did them two or three times a day if I needed to!

My treatment: I had already had a mastectomy, so they did a wide local excision to take out the lump. I did have a node removed and it was negative. I also lit up all over for the SNB mapping. I had marks all over my chest, but somehow the BS determined to remove one node under the collarbone??? I did have chemo. This was based on a study that was new at that time that showed better survival doing chemo after recurrence. However, the study was not so clear for the ER+ patients. It was very clear for triple negative. I don't know if there may be more data from that study now, three years later. I also had radiation. Then I was put on ovarian suppression, which is a once a month shot, and anastrazole. This is because I was premenopausal but the tamoxifen had failed for me. For you, they might just put you back on tamoxifen since you had discontinued it, but they very well may suggest ovarian suppression as well as tamoxifen or an AI due to another study that showed its superior (SOFT study?)

I'm glad you are getting the oncotype. I think this will help clarify the need for chemo. I think the reason your MO is saying he is treating this like a first cancer is because you had stopped the tamoxifen. Be hopeful because you didn't recur ON treatment like I did. Even my MO said he thought I had a "good prognosis" because of the ER+ . I was too scared to ask for percentages!

was the oncodx score of 40 for DCIS or idc?

So sorry you're going through this again. Do ask about BRCA testing. Someone told me you qualify in BC if you've had two diagnoses before age 50, regardless of family history. Not sure if this is true, but may be worth checking?