Male with Breast Cancer

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Yes, its not what I want to hear for many reasons, but the long term issues are the deciding factors.  My main concern about chemo is the possibility of longer term toxicity, such as neuropathy or damage to vital organs.  If I need to I will do it.  I'm getting input from all my sources, and then will have to make a decision soon.

    Also, I had my surgical drain removed this evening, and 30 minutes later I delivered a baby girl....7 lb 15 oz.  

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2012

    Lol, that's lovely!  Out with the old and in with the new.....how precious!    She sounds a good strong  healthy baby with her life ahead......here's hoping they have found a better treatment if not a cure for this disease so she does not have to worry..............and anythng is possible.

    I know chemo does damage but some are worse than others in the amount of damage they do and that includes the neuropathy.  Not everyone has those SE's that have become permanent and you could be one of the luckier ones.....well, here's hoping if that is your decision.  I'm so pleased that you have a lot of good reliable sources to give you all the guidance you want and need when it comes to making such important decisions.  At least once it's made, you can feel the utmost confidence in it being the right thing for you. Good luck with your research and decision making process.

    Love n hugs.  Chrissy

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    Adrian,  You are so right to consider the "collateral damage" of chemo.  From reading many accounts on these threads, it seems like everyone knows of the hair loss and nausea, but do not find out about the permanent neuropathy or damage to heart muscle until after the fact.  I think the more severe effects get downplayed because it is an overload of info. to the average patient, it is only a minority who get them, and it is scary too.  I'm not advising against chemo.  Just saying you, like everyone else here, has to weigh out the proposed treatment plan and go with what makes sense or feels most comfortable.  Are they suggesting "chemo lite" for you?  Is it TC x 4?  That seems to be the lowest regimen given. 

    I agree with Chrissyb, bummer if you have to miss the marathon, but there will be other marathons in the future.  Even Lance Armstrong had to be sidelined for a while.  Just think of the hoopla for your "comeback" event!

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  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    There are many of us here that have found ways to minimize neuropathy and other side effects:  accupuncture, L0glutamine, acetyl l cartnatine, b vitamins, ect.  They have definately been shown to help.  Not the only long term side effects, but for those of us who don't have a choice.... there are options to help.  Good luck on your journey its great that you have access to the best minds at mayo!

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    Adrian,

    Your oncotypedx is 5%. That is really low. Doesn't that mean that the chemo won't be advised??????????

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  • icey
    icey Member Posts: 141
    edited February 2012

    Dear Firstcall, Just wondering what was the size of your tumor? I skipped chemo simply because  I was more concerned about organ damage then the posisibilty of mets. Two years late all is still good. But my medical oncoligist suggested it only because it was 2 cm. Do you think most oncologist try to over treat? I think so. Well good luck with your treatment.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2012

    Adrian, as all others have said we wre here------none want to be here, but we are, just as you are.  I hope you will wander through our threads and find a home. A home here is where you feel most comfortable. It depends allot on what your needs are----- There is a mens thread, there are religious threads. there are learning threads, then venting , Also, those that gladden the heart anf those that remember the hearts that have passed. Seek out ERIC V ---nice guy. I invite you to the Catholic thread,  We have Frank from north Ireland,,,,,,, may your journey be without trouble and end with joy sheila

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2016

    EricV remembering you, remembering your fight to get a diagnosis. Always pissed off that you got bad care. Just wanting to say you are remembered.

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