A TN Warning!! Take your TN seriously

Donnadd,

Thank you for sharing. I'm a triple negative girl, going through chemo right now, the double mastectomy in November. I have a TNB friend who had one breast removed, went through chemo, then had a reoccurrence. Chemo round two for her was AC plus T. She didn't get the "red devil" the first time, and she swears it was her cure. She has been cancer free nearly five years. I see you are getting AC. Hang in there. Even though you feel like crap and pee pink, it's worth it. Prayers for you!

Donna I hope you don't mind me asking but how soon after your lumpectomy did you notice there was a lump at the site of the old scar? I had a lumpectomy 2 months ago and it still feels as though there is a lump there. I was assuming that this was due to the healing process but maybe not. How long do you think I should wait to get this checked?

Thankyou for sharing I'm triple neg and a friend of mine is too she had lumpectomy few yrs ago and complains of swelling and pain at her site. Her onco said its fine I keep telling her to go to another dr. But hasn't she may be scared or denial.

Can you explain why exactly it is really serious when it recurs? Is it because we can't get the hormone treatment? Or does it spread to places that are harder to resect? Or what?

There is one good thing, like cancer has anything good, after 5 years NED the risk continues to go down every year that goes by. For hormone positive cancer it doesn't appear to go down as much it may even increase.

hi ladies....I'm in S.A. I hardly ever know of tn sufferers except for one person whom my oncologist introduced me to. I'm so glad to have found this forum. I'm going out of my mind here.in December 2015I had a mastectomy rt breast...then in jan I felt a lump and burning sensation in left breast.my oncologist made it look like I'm paranoid....anyway I didn't let it rest till he okayed a mammoth and ultrasound for the left....they found that I wasn't imagining....the point I was talking about 12 o clock,had an echo and they even happened to find an echo at 5 o clock...my Dr assured me though that it's nothing to worry about especially since I was undergoing chemo which will destroy anything. He did say it could be milk sediments that dried up. So I went with his professional opinion. He promised to review the echo a few months later......so last month 7 September an ultrasound was done as promised. The report said 12 o clock echo was gone....5 o'clock echo was significantly reduced to almost non existent....however I was still worried that the chemo reduced whatever it was and that it might grow as chemo is over. Of recent I'm having nightmarish burning sensation in that breast. My Dr thinks I'm just bee paranoid about recurrence bcos I talk about it so often. Imwhat now thinking of seeing a different oncologist for peace of mind.

Hi 56561, for sure get a second opinion!! Listen to your body. Symptoms are alarm bells going off. It took me 3 yrs to get ( like a strong intuition ) tested for the Braca 1 test since my mom has it and BC twice. By the time the dr gave me the test I had 2 IDC tumors w unseen dcis in other side. Who knows where I'd be if I hadn't push the test which prompted monitoring. We have to speak up we are not nuts or paranoid. What would they do if they were us? That's what I ask them. They are not so judgment mental. My friend has TN she had chemo to shrink her tumor but test showed it did not kill all the cells so and did more and radiation. By the way my area was itchy.