Summer Rads 2016

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  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited August 2016

    Congrats Val and Carlsoda for finishing rads!! (I'd do a cartwheel for you both but, errrr, no one wants to see that!) :-)

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    Hello All

    Last radiation is today. Whew hoo wee.. Congrats to all nearly done, and those in the beginning or middle, in your pocket.

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited August 2016

    Congratulations to Val and Carlsoda- you are done! 3 more for me. Starting to make me physically nauseous to go in there. I am curious though= my oncologist put me on tamoxifen right after the surgery and prior to radiation- so I wonder if that was a double whammy to my system. Anyone else on Hormone therapy while completing rads?


  • Cancerpickedthewrongone
    Cancerpickedthewrongone Member Posts: 33
    edited August 2016

    Congratulations Val & Carlsoda .... 🎉🎉🎉

    Can't wait till I can claim that milestone 12 more to go!!!!


  • Carlsoda
    Carlsoda Member Posts: 249
    edited August 2016

    I noticed when I switched over to boosters my energy level started coming back. Even today, 1 day post radiation I am feeling so much better. There is hope for those in the middle of it!!

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited August 2016

    Jenniferjo - I got my first Lupron shot this week, I'm halfway through rads. I'm starting to get tired, and achy. Almost like a heaviness trying to move. I don't know if it's the rads or the meds. I think it's the fatigue from radiation.


  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    Same here Carlsoda. Feeling better energy wise already. My skin is raw and peeling. But a combination of the creams is working. My Girl radiation cream, miaderm and for the worst of the raw skin silverdine cream.

  • 2016CancerDX
    2016CancerDX Member Posts: 6
    edited August 2016

    I have just finished week 4 and it was a real bear. Itching and redness and soreness - OUCH. I have one more week of full breast and then 8 boosts. Hoping and praying my skin will hold up - it is close to blistering especially on the chest area. Uncomfortable to move and sleeping is difficult. Doesn't matter that I am tired - just rolling over wakes me up. Praying these next 13 go well and I can say I am done. Praying I never have to go through this again.

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited August 2016

    Calsoda and Valstim, congrats on finishing. I used the same cream throughout other than a tiny bit of polysporin and I am almost all healed. Just some around my incision that is still red and sore but a 90% improvement over a week ago. I'm still tired but it is not unusual after chemo and rads.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited August 2016

    That's good to hear, Karen. Which cream did you use? ( too lazy to go back and find it)

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited August 2016

    So glad to hear you are so much better Karen! I was worried!

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited August 2016

    Hi everyone, today was my 15th session and as I was getting ready for bed, I noticed that my lumpectomy incision was bleeding. My skin is slightly tan, in fact it's under my arm that is a little swollen and irritated. Did anyone experience bleeding? It's not gushing or anything, but it's startling to see. I'm afraid to touch it.

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited August 2016

    Thank you LMV and Jenniferjo! We are only allowed to use what is called a Glaxol base cream here. We can use a little polysporin and then they will give a prescription if necessary. I didn't veer off what they told me and use anything else. Oh I also did the saline soaks a few days when it was really bad too.

    My incision is still what is really sore, the rest has all almost healed except some dry skin near it. Never opened at all though. Keep it clean and some polysporin on it fightergirl until you go back in for your next rad, unless it bleeds more, then I may get it looked at sooner.

  • Cooliekat
    Cooliekat Member Posts: 2
    edited August 2016

    Hi there. Started radiation treatments on July 20th. Treatment plans consists of 30 rounds in total. This is due to having 5 positive lymph nodes. Now I have to complete radiation to the whole breast, lymph node area in my arm pit, lymph nodes near collarbone and the mammory lymph nodes. Have 13 treatments completed to date. So far the side effects are not too bad. A bit of pinkness in my skin colour. The biggest complaint I have would be the soreness and stiffness in my arm and armpit area. I'm thinking this would have to do with the fact I had an axillary dissection done at the end of June so when my radiation started I had only been in my 5th week of recovery therefore my body wasstill trying to heal. One thing I am struggling with is anxiety while receiving the radiation treatment. Anyone else experiencing this and if so what are you doing to help relieve the anxiety. I have 17 more treatments to go. I thought that radiation would be a walk in the park after having my lumpectomy with sentinel node removal, 6 rounds of TAC chemo, axillary dissection. But that's not the case. 😁. Any suggestions would be most welcomed

  • Cooliekat
    Cooliekat Member Posts: 2
    edited August 2016

    Jenniferjo71. After completing my axillary surgery on June 17 my oncologist put me on Tamoxifen starting July 4 and my radiation started on July 20.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    Hello, anyone else notice soreness in knees/legs after completing rads? It's like I can't walk long without my legs being tired. It started during the later part of rads. They said it's expected, between surgery, chemo etc to have leg aches? Not pain but like a tiredness?


  • BlackRockPB
    BlackRockPB Member Posts: 8
    edited August 2016

    Valstim - I'm having problems with achy knees and thighs too. I'm two weeks pfc and am scheduled to start radiation this coming week. My tired achy legs began about a month ago so I assume it's a cumulative effect of the chemo. It hasn't gotten any better or worse. At this point I just keep taking my walks and take Tylenol sometimes at night if they ache too much to fall asleep. I'd also be interested to know if anyone else is going through this.

    I'm nervous about starting my rads; I have 6 1/2 weeks scheduled. I'm extremely grateful to you and all of the wonderful women on this site. The information you have all shared has been so helpful

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    HI BlackRockPB, yes they say it's a result of the chemo and that more walking will help. Here is hoping it gets better.


    I also found something to soothe my burning broken skin. Domeboro packets. You dilute them in warm water, soak a cotton cloth and lay it on the areas, it gets the dead skin off and helps dry it. someone may have mentioned this and i missed it. wanted to pass it on

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited August 2016

    Blackrock, I had the leg stiffness too. My last chemo,was 7/14, and it is finally going away.

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited August 2016

    ....and I am done. It was pretty underwhelming. I am so glad to be done though- I will miss my rad therapists, but not the doc so much. After I was done I had my weekly meeting with him and I made the mistake of saying," well, I guess I can call myself cancer free now." His response- "well, we won't know about that until after your mammogram in 6 months"

    I am calling myself cancer free now.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited August 2016

    Jennifer: I have the same opinion about the therapists vs the doctor. I chuckled :) and what a downer when you called yourself cancer free. I am also calling myself cancer free so there Mr. Doc

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    My RO said I have no evidence of disease. So I'll take it. Sounds like cancer free to me.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited August 2016

    I would say we are all NED! Honestly how could any microscopic cancer cell survive all that radiation! Right!!


  • ejmann44
    ejmann44 Member Posts: 89
    edited August 2016

    I was finally able to start back today. My skin is still pretty raw under my breast so we decided to do the 8 boosters now and then finish up with the remaining 4 whole breast sessions. So we did the first of the boosters today and that leaves 7 boosters and 4 whole breast.

    I am feeling a lot better. I can't wait to finish this up.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited August 2016

    Cheers to NED! Jennifer that doc seems like he needs a vacation. Like you haven't gone through enough, can't a girl get a break? Sheesh! Glad you are feeling better EJ. Today was number 17 of 28. I cross off each appointment on a calendar print out, getting closer!

  • Kechla
    Kechla Member Posts: 231
    edited August 2016

    Anyone else have swelling towards the end of treatment? I saw my RO today and she is concerned about swelling in my breast (possibly lymphadema). I'm hoping this is just minor swelling due to skin issues. I was pretty raw under my arm for almost two weeks. Also, I have an implant so not sure how that may be affecting it. Keeping fingers crossed.

    I started boosts Monday and just have 6 to go! Counting down the days!! Plus, enjoying the relief under my arm. Skin is already healing! :)

    Also, made my appt today for my first round of chemo. That will start in 2 weeks. I'm feeling a little overwhelmed by the thought of that...

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    HI Kechla

    I had swelling about half way through but it was a seroma and my BS drained it. Much better. I'm still very raw, open sores, but the pain has subsided. I'm a week from last boost

  • Kechla
    Kechla Member Posts: 231
    edited August 2016

    Thanks Valstim. Mine is more all encompassing. The whole breast looks larger. The RO did say though if it continued to swell to where the skin was tight, she would drain it. So not exactly sure how that works...

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    In addition Kechla, I have no breast, so to speak, had masectomy. hope yours works out and you don't have a delay.

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited August 2016

    Kechla, I did not have swelling so can't help you there. I was so scared of chemo just because of all the people who I saw go through it years ago. It is quite different now and I found it surprisingly doable. In fact, rads were more bothersome to me than chemo was since the side effects lasted so long and it was so sore.

    I had 3 of FEC and then had Taxotere with my Hercepton for 3. If you get the neulasta shot be sure to take clariton starting the day before for 5 days or more if needed. Neulasta gives bone pain and some find it quite hard. I followed all instructions to a t and didn't have any nausea during any of my chemo because I took pills preventativly rather than waiting to feel nauseated because it is too hard to control after the fact. I took stool softener starting the day of for a few days until I knew I was okay and immodium the next week only once as i seemed to be one then the other. I did get mouth sores that were rally in the back of my throat and made my throat feel like knives were in it. Eventually I kept the mouth rinse premixed and by me all the time to use instead of just when I went to the washroom. I actually was usually fine and waiting for my next treatments a lot sooner then I expected! They should get you to ice your hands and feet too during Taxotere .

    Good luck and any questions you can message me. Don't worry too much about the chemo. I know it is the fear of the unknown but I am hoping you do not find it too difficult!

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