If you are not Stage IV but have questions, you may post here

Astrid - I missed your post. I was responding to Mom.

If I were you I would go to an oncologist and tell them you are concerned because of the pain and you feel it is time to do a CT/Bone scan. If they agree you need it, have them order it. I suspect they will scan you given the history of cancer. But it is certainly a reasonable request. CT/Bone scans do miss very small mets, but that is not a reason not to scan.

The scanning you do for cancer is a bit different than if you are looking for things that chiropractors understand, like arthritis. Medical doctors and chiropractors make mistakes when diagnosing cancer. I was mis-diagnosed for 9 long months during which my cancer probably spread quite a bit.

My response was to Mom who I believe had a clean scan but still feels pain. You have pain, but you haven't been seen by an oncologist recently or scanned. Different situation. I would definitely see an oncologist and I won't be surprised if you and the oncologist agree that a scan is a good idea.

And do watch the stress. These periods of diagnosis and re-diagnosis are terrible.

>Z<

thanks so much zarovka.

I appreciate your reply very much.

astrid

Hi ladies, I just happened to read this thread, and although there has been a response and many of you have more experience than I do, I have a thought for Mom2fourplusmore. I found that after my BMX I had shoulder pain and determined that it was a posture thing because I was carrying myself differently. This summer I began reconstruction, and now during the TE fill process I am having neck and shoulder pain. Although it has been explained to me that as I'm stretched in front, it pulls on the back/neck muscles. (Of course, my mind did go there, and I was concerned for a while.) A chiropractor has helped me a great deal, so although a massage was mentioned and sounds fabulous, I wanted to throw the idea of a chiropractor out there too.

Wildtulip, I never thought about that. I'm doing the reconstruction and I could very well be holding myself differently. I have a lot of nerve damage and muscle spasms so I flinch from pain quite a bit. I didn't consider that it could affect my neck. A chiropractor would probably be a good idea. Thanks.

Mom, I hope you find relief from your pain! Take care. Hugs!

I got my pet results. A lymph node in my lung lit up. I didn't even know I had lymph nodes in my lung. It is off to CAT scans for me. Thank you all for your support.

Thanks Deanna. I will call them today! I was kind of on auto-pilot when I was in treatment. I need to get proactive. My Onc is good but too busy. Maybe they all are hard to reach!

Dlb, I didn't realize that tests could be different at different places. That disconcerting. I read your bio and noticed you also have IDC and ILC tumors. I was recently diagnosed with both. I sent a PM if you don't mind. I'd love to talk to someone with a similar diagnosis.

sorry to hear bout your node too fraidycat.

best of luck with ct.

astrid

So very sorry. Here's hoping for a plan that will knock the heck out of those bad guys!

Ah, thanks Wildtulip, it was Quinn my comment was for. We get radiation every day just being outside. In fact, just yesterday at the hospital I saw a chart that shows how much each radiation test equals being outside and getting radiation from the sun. A brain CT was the highest at equal to 8 months of being outside.

Dear Goonie, sucks. I had to wait to post until I was sure what I wanted to say. It sucks. You are not alone, sweetie.

I need some input. My PET/CT shows nodules in my lungs and several lymphnodes in my neck and chest. I just finished treatment so it seems this doesn't bode well for me. Has this happened to anyone, good or bad? Am I Stage31/2 now...lol! I have more tests in September. My Onc just gives me her somber face

Thanks Barb. I have a scan in September. I am hoping for infection or something else. The SUV was 4.9 or higher on the nodes. One nodule in my lung was spiculated. Disturbing but I still have hope. This all happened in one year and during treatment so I am concerned. Thank you for your help! I see you just had a recent shock! I am so sorry for your bad news! You are so gracious to come here and help us

Hi Barbe, I see we are sisters in birth year. I am November of 1958.

I am unfamiliar with papillary breast cancer, and will look it up for info.

I too am sorry you had a recurrence. Forgive me, but your info has confused me a little. Have you had a local recurrence of papillary form in the other breast?

Have you had further spread than the local recurrence? I know it says stage 4, but when you look at the notes, (I hope!!) it is a local recurrence only?

I'm posting to update a little on my rib pain saga.

I had an xray done through my chiropractor, whom I was way overdue to see. She has xrays done every few years anyway, as a check on how your spine is looking, so we got rib views looked at as well.

Today, I received the report.

No evidence of right sided rib fracture.

9 x 4mm oval shaped opacity is seen in projection of the left scapula/left third anterior rib, only visualised on the frontal view. On the right rib x-ray and lateral view this opacity is not clearly visualised within the scapula or ribs and therefore might be located within the left lung or anteroposterior chest wall.

If this lesion is new, further work up with ct chest recommended.

Well, I spent an hour looking up wording, and checking all my previous ct, xray and bone scan notes.

Nothing mentioned about a nodule in them, soooo...I will book an appt tomorrow with surgeon(overdue for checkup..)ask for ?? As rib pain is still bad, I guess ct of chest wall, and bone scan?

astrid