Working While on Chemo

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nayda985
nayda985 Member Posts: 361
edited September 2016 in Just Diagnosed
      • Hi...I was just diagnosed with Stage 3 Breast Cancer this month...I have been healthy my whole life...rarely catch a cold..wake up one day and have cancer...I have cried so much...that I feel I have no more tears left...I was told by my oncologist Friday, that he recommends I do chemo first..then surgery...but first I have to get an echo..and a  pet scan to make sure the cancer hasn't spreaded to my organs...its like not only do I have cancer in my breast but it may be all over my body..trying so hard not to stress...he said he recommends the ACT cocktail for 5 months...I currently have health insurance on myself at my job..i am a pharmacy technician in retail..so my question is will I be able to work while on chemo...I have to keep my benefits....what are yall experiences while working on chemo..if you don't mind sharing...thnx..:)
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  • muska
    muska Member Posts: 1,195
    edited August 2016

    Hi Nayda, I am sorry you had to join us here. I am the same stage as you are and based on what you described above your doc recommends the same regimen I went through. I took five weeks of short-term disability for surgery and then worked through chemo and radiation. I had AC on Thursdays, took those Thursdays off and worked from home the following Fridays. I suppose I could have done it on Fridays as well. Taxol infusions are usually easier tolerated and also take significantly less time than AC, so I suppose one could have them after work on Fridays.

    I encourage you to review your benefits carefully. If I am not mistaken there are some law provisions under Family and Medical Leave Act that allow taking intermittent leave for chemo treatments. Check the Employment, Insurance, etc. topic on this site for more information.

    Good luck and remember it is feasible!

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    Thank you for responding muska:)

    I will call my HR on Monday to get information on my benefits..thnx...I just don't want to stop working...it keeps my mind off of this and keeps me busy...

    so you had to have surgery first?

    my oncologist says my tumor is too big and I need to do chemo first to shrink the tumor so its easier for the surgeon to remove.

    I consult with my surgeon this week to see what his recommendation is.

    if you don't mind me asking what made you do surgery first and then chemo?

  • Denise-G
    Denise-G Member Posts: 1,777
    edited August 2016

    The question about whether you can work while on chemo is difficult to answer. EVeryone is so different. There is no way I would have been able to work during AC Chemo. However, my sister was able to work during AC Chemo 4 days per week.

    During Taxol, for most women, it is easier and often are able to go back to work. It just depends on the side effects and how chemo is for you.

    Make sure you find out all of your resources at work before you begin treatment so you will not have any surprises if you are not able to work.

    Sending all the best! My sister and I were both Stage 3 and both of us are doing well. It is a LONG road!



  • muska
    muska Member Posts: 1,195
    edited August 2016

    Hi Nayda, I had surgery first because my tumor was very small and there was no indication I would need anything but surgery until they found positive lymph nodes during the surgery. With larger tumors, they often recommend chemo first like your oncologist said. Talk to your surgeon about this and ask all the questions that cross your mind.

    Denise is right saying that everyone reacts to chemo differently. However, age and generally good health are usually a pretty good indicator of the likely way it will go. So keep your spirits up. Btw, working does help keeping one's mind focused on something else but cancer and this usually helps psychologically.

    Good luck!

  • xxyzed
    xxyzed Member Posts: 230
    edited August 2016

    I think whether you can work or not during treatment depends a lot on what your priorities are. You will not be able to continue to operate as you currently do, something has to give as there will be some days you will not be able to work. You will need to fit in blood tests and some or all of surgeon, oncologist, radiologist, physio, normal doctor, psychologist appointments. Most can not be arranged around normal working hours. You will also need time for the actual chemo treatments, the surgery and recovery afterwards. As described by muska you can minimise time off by scheduling chemo to co-incide with weekends falling on your off days. You would then need your blood results to come good to schedule so as not to delay treatments and have minimal side effects. All things you can not predict. I think most important is an understanding employer and sufficient staff backup being available at short notice to cover when you can't go in. You will likely be more tired during treatment so whatever you normally do outside working hours won't be done so how important to you are those things. As I am a single mother all my time outside work is spent with my kids. They are my top priority so it was a very easy decision for me to take extended leave from work as I wanted to spend what energy I had on myself and the kids not work

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited August 2016

    I also worked through chemo primarily because I needed something to keep my mind off BC, I was obsessing. I did take what they call "intermittent family leave" so that I could take time off for surgery and chemo. I did my treatments on Fridays so that I'd have the weekend to recover, but in retrospect, I wish thati had done it on Wednesdays because I actually felt pretty good for the two days following treatment and didn't begin to feel poorly until Monday. In retrospect, I wish that I had taken a few days off to recover following each treatment because I did feel very, very tired. Plus I had some digestive issues. I was able to schedule radiation to fit into my lunch hour.

  • muska
    muska Member Posts: 1,195
    edited August 2016

    With AC, day #3 is often the worst. Since I had ACs on Thursdays my worst day fell on Saturday and I had Sunday to recover. As for labs, at my hospital they do them on the morning of the infusion. I had the labs in the morning, grabbed breakfast afterwards while the labs were done and then headed for AC. I didn't have dose dense, i.e.my infusions were three weeks apart and this regimen didn't require neulasta shots in between. Altogether for AC I took 4 sick days and 4 work-from-home days. Obviously, no extended work hours and all time after work was spent on rest and taking care of myself.

    Edited for typos.

  • Opt4Life
    Opt4Life Member Posts: 191
    edited August 2016

    As everyone mentioned, to work or not to work depends on a lot of things. I telework two to three days a week so working while doing chemo really wasn't an issue. I did chemo/teleworked on Wednesdays and my tired day was Friday night into Saturday so certainly I was no party animal on the weekends. However, I was able to keep up with my children and their activities and managed to do some of my own volunteer work too.

    All in all, I felt normal and my kids didn't miss a beat. I also workedout 4 or 5 times a week which I really believe helped with the energy level. Do what's right for you and LISTEN to your body--my doctor's best advice.

  • cke14
    cke14 Member Posts: 7
    edited August 2016

    Hello,

    I started with Chemo first and my treatments were on Wed. I was able to work from home on Thurs and Friday, rest up on the weekends and then was able to work the following week up to my next treatment. Each week was a bit different and sometimes I had to shorten my days. I too needed to keep my sick time and benefits and I knew that I would need the sick time for after surgery.

    After surgery I had six weeks of radiation and had to travel an hour and a half each day to the cancer center - I ended up taking this time off as well, in total I was off completely for 12 weeks.

    When radiation treatment ended I was at home for one week while the burns healed, then back to work and a year and 5 months later not a single sick day since! (Fingers are crossed).

    Good luck, but remember that you can only do what you can and your health is now the most important.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2016

    I had ACT and day 2 was the hardest for me, so everyone is a bit different. I was able to work and keep my normal schedule all through chemo--I HAD to, to keep myself feeling normal and tell myself this was just temporary. I guess I simply refused to be sick. I am lucky in that I teach at the univ. level, so I was able to teach my full course load but work from home the majority of that time. If you have sick time or vacation time, perhaps you could arrange your chemos as others have done, and get it done on Thursdays, so you have Friday/Sat/Sun to recover. Taxol was not awful, but the entire tx did make me more fatigued at times. I just pushed through it and kept doing my walks, hikes, gym and bikram yoga exercise schedule during all of tx.

    Mild to moderate exercise actually relieves chemo side effects--look it up in research--so that may have been while I was able to keep myself going through 5 months of chemo and 6 weeks rads.

    You will figure it out and it will be okay. Hugs.

    Claire

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    thx so much for your comments.

    The week I start chemo... I am going to take that week off and see how my body reacts... Then go from there... My boss is great... He said he can change my schedule around my chemo and bad days... God is good!

  • muska
    muska Member Posts: 1,195
    edited August 2016

    Hi nayda, one thing that we probably didn't mention on this thread, is about chemo effects being cumulative. You will feel better at the beginning than by the end and your blood counts might be lower at the end, so you might be feeling worse torwards the end. I would plan any sick/vacation time with this in mind.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited August 2016

    Muska, agreed! My first of 6 chemos was pretty much a "non-event"/ The third and fifth were the "worst" and I took a day off from work each time to recover from those. I think my 6th chemo was "easy" because I was so excited to be done, really.

    Nayda, so glad that your boss is being supportive. I also had a supportive boss. You will find that to be such a blessing while you are in treatment. I was determined to work through chemo for multiple reasons.....first, it kept me busy with my mind off the cancer treatment for much of the time. I'm not sure how much TV or movies or books I could have consumed had I gone on sick leave, really! Most importantly, I was healthy and active before my diagnosis and there was no way I was going to have a temporary situation (chemo and rads) affect me long term. I wasn't ready to retire and I wasn't going to let cancer treatment force me into retirement. All that said, I never once did anything during treatment to jeopardize my health. When I needed to rest, I rested.

    Now that you have your work situation figured out, make sure that you have a significant amount of support taking care of the household duties. If you have the money, hire a housekeeping service. Push the errands, laundry, bill paying, etc. off on others in the family.

    Love and Hugs,

    MsP


  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2016

    Hi, Nayda. I was stage III too, and employed full time, and didn't want to blow all my vacation time taking months and months off. I also didn't want to stay home and do nothing but weep and worry. I sure did A LOT of both, though, and I know where you're coming from! Please believe, you WILL get through this. There will be better days ahead, when you don't play "cancer radio" in your head 24/7.

    You've probably figured out that everyone has their own, unique experience with handling chemo. I had TAC, which is rough for some people, but I kept working the whole time and felt fine. It was six total doses, three weeks apart. Each round felt about the same for me--not much difference between round 1 and round 6.

    I always had chemo on Wednesdays and took Thursday and Friday off. I really could have worked Thursdays--I felt fine--I took that day off to reward myself for being a good girl and taking my medicine. Fridays became known as "chemo Friday" because I felt like I had the flu without the fever and cough. Sort of muddle-brained, achy, no energy. The fog was lifting by Saturday, I was fine Sunday, and back to work on Monday. Here's my advice based on my own experience--

    Exercise, move, get outside, walk. Exercise helps enormously. I mountain-biked through chemo...slowly and gently, but the activity and fresh air were golden.

    Drink lots of water.

    Poop every day. No kidding. My most distressing chemo effect was constipation. (My sister had the same chemo and she had diarrhea. Go figure). Plan ahead if you're prone to constipation--Miralax, Metamucil, stool softeners, drink lots of water. (Did I say drink lots of water?)

    If your tummy is dodgy (mine wasn't) eat what sounds good, but be careful. Junk food will just make you feel worse and gain weight.

    If your doctor gives you Neulasta or Neupogen shots after each chemo session to help keep your blood counts up, take Claritin (loratadine) to prevent bone pain. It really works. It's an allergy medicine and you can buy it cheap at Costco. Start it a couple of days before chemo and keep taking it for a couple of weeks afterward.

    Anticipating being bald is worse than actually being bald. I paid $150 for a lovely wig and wore it two weeks, then decided it was hot and itchy and wore cute hats. I went commando toward the end. With enough eye makeup and some dangly earrings, the look is exotic. But again...everyone's different.

    Please, please PM me if there's anything else I can answer for you, and blessings on you as you navigate through this road.


  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited August 2016

    i worked during chemo. I had treatments on Fridays, but it would probably have been better if they had been on Thursdays because my worse days during ac were days 3 and 4.

  • msphil
    msphil Member Posts: 1,536
    edited August 2016

    hello sweetie it depends i myself couldnt work i took leave absence but still was covered by job insurance n most of us know what you feelin i too had chemo before n after mastectomy and to Inspire u im now a 22yr Survivor keep Hope think Positive 'i Will get thru this' Gid Bless us All. msphil idc stage2 Lmast chemo and rads and 5yrs on tamoxifen

  • Pessa
    Pessa Member Posts: 519
    edited August 2016

    I also worked thru chemo, AC. Infusion on Thurs afternoon. I did have to leave work early on infusion days. I had bilateral mx but 2 different surgeries. I took off 2 weeks after each surgery. Friends brought meals and did minor shopping and helped take my tweenage boys to school(single mother). Not fun but manageable

  • ClarkBlue
    ClarkBlue Member Posts: 170
    edited August 2016

    I had my last treatment 2.5 weeks ago and worked through it all. Treatments were on Thursdays and I worked remotely at the cancer center then headed back to the office in the afternoon. I worked from him Friday's. By the last treatment I had to take Monday and Tuesday's off too. Thankfully it was only every 3 weeks and I worked from home on Tuesdays. I am back full time but am very tired. It will pass soon and all will be well. It's doable. Good luck!!

    -Keel

  • knittingPT
    knittingPT Member Posts: 156
    edited August 2016

    I am a physical therapist and my job is physical in nature. I was able to work through AC. Had treatments in Thursday afternoon, was hopped up on steroids/fine to work on Fri and then rested sat, sun and felt pretty good by Monday then had week of good. During Taxol my treat day was Fri and u felt great until last two treatments when blood counts were low and treats had to be postponed 1-2 days. Then off for surgery. You will figure out quickly what works for you. Some people like the distraction of work and others prefer to focus on treatment only. I think response to treatment is so varied that you won't know until you start. You will learn to live with not knowing as it will becone "normal

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    well I will become a "port gal" this Friday..lol..dont have a start date for chemo yet. I am going to try to work while on chemo and see what happens.

    I am learning to live with the unknown...i cant control everything...like I would want.. So it is becoming normal..lol

    Learning to mute the "cancer radio"..lol

    I am laughing more than crying now... You ladies on this site have gave me so much hope and strength.💞

  • cive
    cive Member Posts: 709
    edited August 2016

    Nayda985: I worked full time during chemo, having had a lumpectomy first. I loved my job and as it turned out, a little fatigue was really the only side effect I had. At the same time I went to the gym at least 3 days a week. I would recommend you get a wig because people are sometimes uncomfortable when faced with something that also could happen to them. You will no doubt need at least a few days off after surgery, probably more like a week. I only took a weekend but I just had a lumpectomy. As you say, you may have to adjust as you go. I did have a naturopath that put me on some health supplements.

  • NancyD
    NancyD Member Posts: 3,562
    edited August 2016

    I had a very inventive disability policy that allowed for "intermittent disability" where I was able to schedule non-consecutive disability days for treatment. It was like having extra sick days. My chemo was every three weeks so I scheduled Thursdays for the chemo infusion, Fridays for my Neulasta shot, and then had the weekend for recovery. That was adequate most of the time (I did have to take a Monday at the beginning, but that was only once).

    My job was not very stressful, but I did have a long commute which was even more tiresome. Fortunately, except for three miles from the bus stop to my home, it was all public transportation and I could rest a bit. There were times at work that I would have LOVED to have been able to take a nap (I think we all have those moments, even excepting breast cancer diagnosis), but for the most part, my brain stayed pretty clear and I made no major mistakes.



  • SandraDee
    SandraDee Member Posts: 6
    edited August 2016

    I too am hoping to work while doing chemo.  As a single mom with two kids I need to work.  I started my new job as an RN so I'm worried about chemo brain affecting me Scared.  My manager has been amazing in working with me so far.  I have FMLA currently to use during my 20 weeks of chemo.  Here's to hoping I have minimum side effects! 

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    I am hoping the same thing Sandra🙏

    Thanks for reminding me with fmla..i gotta HR in the morning to inquire about all that... The financial consultant at the cancer center says I can put it in place even if I don't have to use it.

  • SGDsmama
    SGDsmama Member Posts: 14
    edited August 2016

    Nayda, thanks for sending me the link to this thread. I guess I need to sit down with my boss next week and see what he thinks. I'm salaried, and my job entails lots of follow up spanning days or weeks, and there's only a little bit of work I can do at home (I'm an Office Manager and have 7 direct reports who are - you guessed it - in the office). I'm not worried about sitting at home and moping. My son would be with me and also my husband on the 3 or 4 days per week that he is off.

    I think for me it's more about everyone knowing what to expect and preparing for that, which kind of puts me in an "all or nothing" situation.

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    NP SGDsmama....Yeah I see what you are saying being that your an office manager. That's different from me being a pharmacy technician.

    I called HR this morning...started the process for intermittent FMLA... So when I need to be off when I am feeling bad b/c of s/e... I will already have that in place.

    Everything will work out for the best. Hopefully someone with the same job as you will post their experience.💞

  • Romers143
    Romers143 Member Posts: 8
    edited August 2016

    You and I are a couple days a part treatment wise. I got my port the day before you (on the 17th). How did your port go?? I start chemo tomorrow on dose dense AC every other week then Taxol weekly. So I'm playing the "will I work or won't I" game right now too. :)

  • MARIONSGIRL
    MARIONSGIRL Member Posts: 59
    edited August 2016

    I wanted to work during chemo since I didn't have much sick leave or vacation/personal time to use. I ended up being very sick from the Neulasta shots I got after the chemo and could barely get out of bed. I was also anemic and dehydrated. I was out of work for 3 months and thanks to my co-workers who donated time for me, I continued to get paid. When I returned I was half way though 6 weeks of daily radiation and only worked half days until I completed it. It has now been a year since my diagnosis, surgery and treatment. My first mammogram is September 7th and I am anxious.

  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited August 2016

    I have a very demanding job in a high profile position so wasn't sure how I would do... But was determined to not take time off (even though my employer was supportive of my taking time if needed). I have only completed my first round, but I found it very manageable. My transfusion was on the Friday, and even while in the chair I was checking emails. By Monday morning I was near 100% with my energy level. I am relieved that I was able to manage and am optimistic that I can continue through the balance of treatments when the SE can compound.

  • nayda985
    nayda985 Member Posts: 361
    edited August 2016

    Hi Romers143.....wow we do have the same treatment plan...the day I got my port now..funny...I'm in the O.R..and the anesthesiologist said I am going to give you some extra oxygen..i was like o.k..and that's all I remember..lol...I wake up in recovery and pain in my neck and shoulder hits me hard...I was like I am in pain!..and the nurse said..can you rate your pain for me...I said I am in Pain!!..she say o.k. I am finna give you something right not...first day I was in pain...the next 4 days..it's just my body getting use to it...good luck tmrw on your chemo day...I start chemo on Friday a day after you..i am so nervous but at the same time ready...I am going to try to work also and see what happens..i put in for the intermitten fmla for when I am not up to going to work..i hope I won't have to use it you know..let me know how tmrw goes for you:)

    Hi MARIONSGIRL.....I am sorry that happened to you..i hope the neulasta shot doesn't affect me the same way...sound like you have some great co-workers:)..I hope you get great results on your mammogram next week lady.

    Hi Hopefloatsinyyc...I am glad your first treatment went well...I am going to "claim that mine goes well also".


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