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  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited August 2016

    Barbe,

    I have fatty liver too. It seems that both chemotherapy and Tamoxifen can have non-alcoholic fatty liver as a long-term side effect. I had several scares because of that, one time my alkaline phosphatase (that can show bone mets) shot up and I had an ultrasound that showed nothing more than gall bladder sludge, and it was scratched off as being from me being on a weight-loss journey, not from bone mets. But yes, that is one of the unwanted side effects from treatment. I now don't even worry about it - my liver function panel test came back normal in the last two years even with fatty liver.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited August 2016

    Thank you Quinn and kayb - got the call this morning and everything is clear, thank God. Making an appointment for a neurologist in about a month, hopefully symptoms subside and I can just not have to deal with that too. Thanks again! Phew!

  • GooniesGirl
    GooniesGirl Member Posts: 14
    edited August 2016

    Chrissy - thank you for easing my anxiety about complaining to dr about pain!!! It helps more than you will ever know hearing someone tell me that!! Barbe- the fractured rib incident was in 2013 dr never really said how I could fracture 2 ribs and not know how or when!! I assume bones are just more fragile after treatments.

    Last night the pain was at its worse! If I didn't already have appointment set up for Thursday I would have gone to er! Thankfully my husband massaged my whole right side and I was able to go back to sleep. Odd thing is that this morning I wake up expecting to be in a lot of pain after last night but it's just back to the dull ache with a twinge every now and then! I can't wait to figure out what is causing this and fix the problem

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    Thanks seachain, I don't drink so I knew it wasn't alcohol related. I guess just another one of the gifts that cancer keeps on giving...sigh.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2016

    fightergirl - I second with kayb says. Good news, albeit you still have symptoms of something.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited August 2016

    Yes indeed, the earliest appointment with a neurologist is December, but I'm on the cancellation list. Going to get a massage today. My sister thinks its anxiety manifesting itself, which could very well be.

  • melwee2000
    melwee2000 Member Posts: 2
    edited August 2016

    Good evening. I am very new here. Around March 2016 or April 2016, the doctor who read/did my mom's MRI told my family (Family in Hawaii and I'm in Colorado) that my mom (60) has 6 months to live because she has metastatic cancer. My daughters and I flew to Hawaii to see her and my family. The Doctor's prognosis was no where to be found in my mother's medical files. My question is, how do I go about asking the doctor to give us a written note regarding his prognosis-that she has 6 months to live? I have tried to call the hospital and the customer representative had him paged and give me a call but i got nothing.

  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited August 2016

    so sorry melwee for what you and your family are going through. I lost my mother this year. My thoughts are with you.

    For your question sounds like you need an advocate of some kind to help. Some of the people that maybe able to help are a social worker or a cancer navigator and if your mother has neither of those ask for a nurse.

    Good luck and peace

    Mary

  • melwee2000
    melwee2000 Member Posts: 2
    edited August 2016

    I am sorry to hear that. My mother is determined to live longer. She is on that pill-hormnes. She had 10 sessions of radiation and she refuse to do chemo. She is going organic al the way and changed her lifestyle completely. Her lumps have disappeared according to the doctor on her last appointment (july2016). Her oncologist does not say anything about her living for only 6 months. I am trying to help her with her finances from afar and I thought the prognosis would help in many ways. Thank you for your reply. I hope you are doing okay.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    melwee, no doctor can give a prognosis as no one knows if she will progress. If she is determined to live, why is she turning down chemo? Chemo has been around for many, many years and has proven results. Being on anti-hormonals is a good thing, so that should help her. Is she finished rads? That seems like a short treatment.

    Why would a prognosis help her finances? I'm not sure what you are asking here.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited August 2016

    GooniesGirl, believe it or not, you can still have gallstones. Yes, I've had them several times in the twenty-ish years since gall bladder surgery. Sometimes they have had to be removed, sometimes they passed. Once, a nasty infection was involved. Your symptoms do sound to me as though you might have passed a nasty stone, but if the pain returns before Thursday, the ER would probably give you a quicker dx.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    Brookside, I was told years ago that they have to actually "catch" the stone by ultrasound trying to pass to be able to confirm a gallstone. My ultrasound said my gallbladder was normal, but what if I'd already passed a stone? It's frustrating...but thanks for the heads-up to Goonie as her and I are kind of going through the same thing right now.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited August 2016

    My first gallstone episode after my gallbladder went bye-bye scared the stuffing out of me. I was convinced I was having a heart attack. The ER doc knew right away what it was. Apparently only 5% of us have repeat gallstones. Lucky us!

  • GooniesGirl
    GooniesGirl Member Posts: 14
    edited August 2016

    Brookside. Thank you for that info I never thought about gallstones with gallbladder gone!! I googled it and you are totally right and that makes sense with pain I'm having!! I have dr apt today so hopefully will get answers soon!!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    Looking forward to hearing back from you today, Goonie. Good luck!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2016

    if this is helpful to anyone else, had an Ultasound last night for the lump in my solar plexus region. Radiology report came back (over the phone):

    Hematoma or

    Sebaceous cyst or

    Fat necrosis

    Looks like ^^

    Two point something centimeter

    "Fluid filled" (heard these words)

    If it gets bigger, my MO might investigate further.

    Fought off (not hard) a CT Scan. She kept mentioning that and still mentions for this and my sore rib spot. Also possibly a biopsy. Im just happily in waiting mode for either of those two steps. She wants me to call back sooner than my next appt (late October) for a progress report on if lump grows or if I still have rib soreness.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    Fluid filled is what you want to hear for sure!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2016

    Like, like. Wish we had a like button. Thanks kayb and barbe!

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Good news, dear Quinn!

    Taking a deep, relaxing breath with you.

    Fluid filled somethings can be lived with.

    And do watch that walking in the heat thing. :)

    warmest healing wishes, Stephanie

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2016

    Great news Quin! You can now breathe that sigh of relief.

    Love n hugs. Chrissy

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2016

    Thanks Stephanie and Chrissy. You are kind people. I will breath, totally, when this rib soreness goes away. Then home free for awhile .

  • alexis39
    alexis39 Member Posts: 13
    edited August 2016

    Hi Barbe, just reading thru the posts here and wanted to ask you a question - did you have a ct scan that showed maybe spots on your liver that you thought maybe it was mets to the liver?

  • GooniesGirl
    GooniesGirl Member Posts: 14
    edited August 2016

    Just thought I would update for you Barbe- my oncologist retired 2 years ago so made my appointment with new family dr. He has ordered a ct scan without contrast on Monday. I'm glad he ordered test but nervous because during my time with my oncologist he always did ct scan with contrast! What is the difference?

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    alexis, I wasn't feeling good, very tired and couldn't do a full day at work. I was seeing my surgeon anyway and asked him to do a CBC as well as LFT (liver function test) as I was having pain in my upper right quadrant. The levels were high which concerned us so on to the ultrasound. I can't get an MRI because I have a pacemaker.

    Goonies, I've had a kidney issue show up only when a DOUBLE contrast CT was done so I don't know why they do it sometimes and not others!


  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2016

    Goonies, I think you should call your doc first thing Monday morning and ask him about the lack of contrast. Depending on exactly what they're looking for, contrast might not be as important. But, like you, I have always had contrast w/CTs when looking for or ruling out metastatic activity. I would definitely ask!

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited August 2016

    So by nature I am not an alarmist. I have had medical issues for years before the BC diagnosis in May. I am lucky that I have stage 1 even though I have 4 tumors and a mix of IDC and ILC. I haven't had any treatment other then a BMX at the end of June. My lymph nodes were clear. My problem is that I have bad neck pain near base of scull. They did do a bone scan and said it was clear. Should I go to see my primary Dr or just deal with the pain and call it just bum luck? Could I have Mets and they just didn't find it on the bone scan? Does that happen? Any suggestions would be helpful. Thank you.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2016

    Mom, I understand your fear, it's a fear we have all felt. A recent bone scan would have picked up something even if it wasn't cancer related. My bone scans pick up my horrid arthritis and degenerative disk disease but haven't "found" mets yet. It even shows an old injury on my right ankle!

    So, having had a recent surgery and the stress of diagnosis, I wouldn't be surprised if you were a ball of tension right now. See your doc but try for massage, heat/cold, Tylenol, etc before more scans and tests. The benchmark is a two-week window before going to your doctor, so make sure you let him know if it's been that long. Both he and you can monitor symptoms as they arise, it's a team effort, sweetie.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2016

    hey gals,

    this rib thing i have..

    It definitely starts up after ten minutes or more walking..then is like a very bad stitch. a few times i have noticed it as a dull ache. this couple with both arms playing up with aching and swelling..

    I've decided I should act on it.

    my gut tells me maybe arthritis or osteo porosis in ribs.maybe stress fracture from this..

    but you know..mr naggy head monster in my head tells me 'uh 'oh'....

    not really listening to old naggy head though. I know I need to get this looked at. I'm thinking my chiropractor might be able to get me a bone scan, so i will ask her. its less scary coming from her than surgeon or onc. (yes, I am a big fat fraidy cat!!!!)

    darn. wish it would just go away!!!

    love astrid.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2016

    Hiya Quinn,

    I too am relieved they say 'fluid filled'

    but...

    i would get the ct scan...

    when you are ready of course!

    love astrid.

  • zarovka
    zarovka Member Posts: 3,607
    edited August 2016

    You can have bone mets that do not appear in a ct/bone scan. What I don't know is whether mets that don't appear in a scan could be significant enough to cause pain. That is a question for the bone mets ladies. I have a bone met but it is small, painless and probably healed. I've chosen denial as my way to approach my bone mets situation and don't know much about bone mets.

    However, as barb said, you really have to consider stress and tension. What do you like to do to relieve stress and tension? Walk, massage, prayer, meditation? That will help no matter what is going here.

    >Z<

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