Just diagnosed with LCIS

Options
Mrs_B
Mrs_B Member Posts: 1
edited July 2016 in LCIS (Lobular Carcinoma In Situ)

Hi everyone,

I wondered if I could ask some advice really. Yesterday I was told after Mammotone results that I have LCIS - I am 39 - birthday week.my consultant was really dismissive- and couldn't get me out his office quick enough! I didn't get any time for questions. I have two children and my husband died of cancer just 18 months ago- I feel as though the consultant and I should have, at the very least, had some discussions- he didn't mention removing it by excision or anything...just said he'd book me yearly mammograms. Obviously having lost my husband to cancer- my kids need me around ... Cancer has ruined our lives once already..! And I don't feel in a position just to take risks. Please can you all tell me what kinds of conversations you had when you all found out diagnosis.. What I need to know is can I get a second opinion?


· Share on FacebookShare on Twitter

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2016

    Hi Mrs_B, sorry you're here, but wanted to say welcome to BCO! We hope you find the support and information you're looking for. Sometimes the boards are slow during the weekend, but we're sure you'll get responses from other community members soon. In the meantime, you may want to read some of the information we have in the following articles from the main site:

    Talking With Kids About Breast Cancer
    Getting a Second Opinion | Breastcancer.org

    Hope this helps!
    The Mods
    · Share on FacebookShare on Twitter
  • rosyFL
    rosyFL Member Posts: 101
    edited July 2016

    I am so sorry to hear about your husband.

    Yes, you should get a second opinion from a breast surgeon and also a second opinion on your biopsy results. You used the word consultant, who would that be? Who sent you for the biopsy?


    · Share on FacebookShare on Twitter
  • jabullo13
    jabullo13 Member Posts: 1
    edited July 2016

    I have been diagnosed with LCIS for the 3rd time, have had melanoma and have moderate family history for various cancers. I am facing a 3rd biopsy, and seriously considering prophylactic mastectomy. Anyone have any feedback on their decisions?

    · Share on FacebookShare on Twitter
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2016

    jabullo, when you have LCIS it is pretty much assumed that it is likely multifocal and also likely in both breasts, so in a sense you haven't been diagnosed again, it is just confirmed that you have LCIS which you already know. I have read that the "newer" thinking is that if nothing concerning besides "further" LCIS is found on a core biopsy and there are no additional unexplained mammogram findings that it is unnecessary to keep excising it. A second opinion and possibly genetic counseling at a major university medical center with a high risk clinic would be helpful if you are considering this. It might save you another surgical biopsy and clarify your true risk

    I have joked with the radiologist at my clinic when she was biopsying a probable complex cyst that she didn't have have "permission" to pick up any more LCIS because the odds are good that she might:)

    · Share on FacebookShare on Twitter
  • HeatherJeanne
    HeatherJeanne Member Posts: 16
    edited July 2016

    Hello!

    I am so grateful to have found this board! After a 3 month follow up US, surgeon did a core biopsy which found LCIS. I swear he purposely talked fast when he told me the 8 word diagnosis from pathology report. Surgeon said that they should rename it to neoplasm, but explained that pathologist recommended excision, so he will do what he is told. I am waiting to be scheduled for the excision. After doing some research, I have so many questions!! Reading the posts here have helped tremendously. I am only 40, so premenopausal, and have 3 kids. It is really weird going from feeling incredibly lucky to have caught this early to worrying about what the future will bring.

    Again, thank you for sharing. I do better when I have a big picture understanding. I'm feeling so much better about where I am now.

    · Share on FacebookShare on Twitter
  • Kells
    Kells Member Posts: 9
    edited July 2016

    please get another opinion. Doctors either remove the area doing a excisional biopsy or just monitor it. I had 3 opinions. I am a nurse. 2 out of the 3 suggested always have the area removed excisional biopsy to make sure no caver is hiding in the area. My dr suggested tamoxifen. I refuse. Unfortunately LCIS means multiple surgeries usually. I decided if I keep getting new areas I will have a prophylactic bilateral mastectomy. My chances of cancer are 60% now. I am 44yrs. With my family history.

    · Share on FacebookShare on Twitter
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2016

    It doesn't necessarily mean multiple surgeries. There are quite a few of us here without. Again, I have read that it is no longer necessary to keep excising it, absent other problems found.

    New women here should understand that the vast majority of women with an LCIS diagnosis do not do mastectomy and it is usually not recommended. For some reason it seems like BCO mostly draws women who have chosen to. I don't believe it is a representative sample of the population as a whole

    · Share on FacebookShare on Twitter
  • 1newhouse
    1newhouse Member Posts: 3
    edited July 2016

    In October 2013 I decided to have a bi lateral mastectomy because of my diagnosis of LCIS. I was 70 yo and didn't want to take the drugs recommended with side effects nor did I want to deal with the mammograms, ultra sounds etc required from there on. It was found because of the 1cm papilloma that was excised and biopsied. I am totally at peace with my decision and feel it was right for me.

    Good luck in your decision and that it also will bring you peace of mind.



    · Share on FacebookShare on Twitter

Categories