Anybody have been on or is currently on FEC+D chemo?

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Scarysadday
Scarysadday Member Posts: 35

I am deciding between AC + Taxol vs. FEC+D, would appreciate any advise. Thank you!

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  • RV6gal
    RV6gal Member Posts: 331
    edited July 2016

    I can't say which may be better but I did Fec-D. I found the D tough. Did only 2 of 3. Everyone is different though. What does your Mo say about each

  • Scarysadday
    Scarysadday Member Posts: 35
    edited July 2016

    MO said there are no studies to compare the two, just 2 different 'recipes', but AC +taxol is far more visits....though taxol is not as toxic as Taxotere. Did you get your hair back the way they used to and how long did it take for you to feel 'normal' /fully recover? Did u loose all your nails etc? How were the SEs?

    Thanks much. Any feedback would be appreciated. Also did u get port or PICC put in?

  • toronto-girl
    toronto-girl Member Posts: 24
    edited July 2016

    I love how they expect us to decide. ...Anyway, as far as I could tell FEC-D was more coverage than Ac+Taxol and the way I figured it was "in for a penny, in for a pound" Anyway, I did pass it by one of the nurse practioner and she said since I didn't have any "other" health concerns she thought it was a good decision.....Glad I did I



  • Scarysadday
    Scarysadday Member Posts: 35
    edited July 2016

    thanks Toronto girl. I am from Toronto too. What do u mean by more coverage? Also, did u need to have a port or PICC put in? How r the SEs? Did u get all your hair back? Loose any nails, etc. Yea I need to make a decision soon, and doing research myself to see what's best....sig

  • toronto-girl
    toronto-girl Member Posts: 24
    edited July 2016

    after 4 years, I can't really give you an answer...I just remember that was the conclusion my husband and I arrived at...rightly or wrongly--sorry. I do remember we had about 72 hours to make a the decision and I was about 3 weeks post mastectomy so....I had a picc line and it was great...No unusual side effects--but lots of reasons for chemo to go smoothly, ie not too many responsibilities....hair all back, lost a few toe nails...


  • RV6gal
    RV6gal Member Posts: 331
    edited July 2016

    I did experiences problems with the D portion. FEC was no problem at all. Most of my problems seem to be related to my feet for some reason. For example, I didn't lose any fingernails but all my toenails eventually fell off. I ended up with PPE or hand and foot syndrome of my feet only. Unfortunately, this has lead to some neuropathy as well. Still hoping things will get better on that score! My hair did come back pretty quick but not as thick as it used to be. That could also be an effect from Tamoxifen so I've heard. The thinner hair is not something others would notice anyway.

    On a more positive note, I know someone else who had the same FEC-D regimen for breast cancer (their 2nd bout with cancer as they previously dealt with colon cancer) and they had no such issues.

    Of course I wish I had not experience the PPE but I don't regret taking FEC-D at all.


  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited July 2016

    I had FEC-D and noticed that FEC was easier than the people taking the AC and the D was more difficult than Taxol but, much less time going back and forth. I didn't find chemo nearly as bad as I expected. Take all the meds they give you on time and drink lots of water. My nails are fine, they provided ice packs in Mississauga cancer centre when it came time for D, and my hair is all growing back. I had a port put in. Hated it at first, love it now since I have to also so a year of Herceptin. Seems everyone I see from Canada and the U.K. get the FEC-D. I have never noticed a Canadian say they could get AC-T. Good luck! Also look at some of the chemo threads from earlier in the year. They go by month so you can read and see how it was for different people

  • Scarysadday
    Scarysadday Member Posts: 35
    edited July 2016

    thank you everyone for sharing your experience with me. Really appreciate it. I see my MO tomorrow, got a few more questions for her and will confirm which treatment I will go for. Mo did say both work the same FEC+D vs. AC+taxol, however, she said if it was someone who is a triple negative. " she would recommend AC + t for sure, so doesn't that mean there is a differences? I will ask her tomorrow. Despite the numerous visits, I am still leaning to AC. It appears taxol is less toxic than d....perhaps due to the weekly dose? It would be a drag with all the additional visits..but hopefully the recovery time would be less. I really hope I am making the right decision.....how I hate when there are so many unknowns.....nothing is certain with this bc deal...sig.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited July 2016

    Curious, what is FEC+D ??? Something new since 2012, when I had AC+T? Btw, Taxol gave me permanent neuropathy, permanent hair loss on the top of my head (not total) and 3 days after getting it, I was in terrible pain. AC was a breeze, so we are all different. (Dose Dense for both, plus added Carboplatin (5 weeks) for brca, which was very very easy by comparison.)

  • Scarysadday
    Scarysadday Member Posts: 35
    edited July 2016

    I don't think its new. But it's more common in Canada/Europe..US primarily uses ac+t....d is Taxotere which is comparable to taxol..as they are both taxane...but most ppl tend to get killed on AC and taxol is generally a smoother ride...do u mind telling me your age? How severe is the neuropathy? Did u do weekly taxol? I saw my MO today..vbut I said I need a few more days to think about it...

  • HelenWNZ
    HelenWNZ Member Posts: 485
    edited July 2016

    Here in New Zealand I am currently on D for 3 rounds and FEC then for 3 rounds. I found my first round of D very hard and ended up in hospital for 5 nights as all my levels plummeted. Round 2 is tomorrow and the dosages have been lowered by 10% and I'm to have an injection 24 hours later so here's hoping.


  • RV6gal
    RV6gal Member Posts: 331
    edited July 2016

    Better luck with round 2 tomorrow Helen. I'm sure the reduction will make a difference.

  • Scarysadday
    Scarysadday Member Posts: 35
    edited July 2016

    good luck Helen....hope it all goes well

  • HelenWNZ
    HelenWNZ Member Posts: 485
    edited July 2016

    Thanks Ladies

    Round 2 for me today. Was very apprehensive about the whole thing didn't sleep much last night even though I took a sleeping tablet. So far all good. Last time the truck hit on about day 4 so until then life as per normal.

    Kind regards Helen

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited July 2016

    Scarrysaddy I was 58 when I got chemo. Taxol was dose dense. 4x total, every two weeks. I think the pain from taxol, in retrospect, was it killing my nerves. Not saying AC was easy, but compared to Taxol it was, but most will say Taxol is easier. In my chemo group (2012 thread), there were only 2 out of 30 or so that had my symptoms. I have permanent neuropathy in my feet. During and right after chemo I had it in my hands, my ankle (once in awhile my leg would give out) and I think in my kidneys (I kept buying beds thinking it was my bed - that went away after 6 months or so).. I know there are people with worse neuropathy, but I live in the beautiful forest and would like to go on day long hikes. No way. On soft dirt trails, I can last about an hour without noticing my feet. At 2 hours they are burning up. At 2.5 hours I would be wondering if I could make it back to my car. I did get some improvement in year 3 with Vit B spray (was taking it for other reasons). Standing on a hard surface causes burning. It's all about cumulative psi's. I read somewhere that only 4% get serious neuropathy from Taxol and they think it is a genetic predisposition. Just a theory.

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