just diagnosed and so angry
I am so angry, I feel my body has betrayed me I am 60 years old
In October 2015 I was diagnosed with throat cancer ( squamous cell carcinoma) after meeting with my oncologist and radiologist I was told a treatment plan of 3 Chemo and 35 radiation was advised, my oncologist also told me that we only had one chance to get this and he gave that chance 40% . because of the type of cancer and where it was located surgery was not an option. I started my treatments in Late November 1015. I had to be hospitalized as by treatment time I was down to 82 lbs and had to be feed through a feeding tube they inserted in my stomach. I completed my treatment at the end of January 2016. It was a long road to recovery and finally in June of this year I was starting to feel myself again and had gained some weight and was up to 104 lbs.
Petscan in June revealed the throat cancer was gone!!! but revealed a tiny speck in my left breast – physical examination by 3 doctors could not detect any lump or changes in breast tissue. A mammogram was ordered and biopsy performed , it is standard here that an appointment be made with the surgeon same day as biopsy is done and surgeon will discuss results of biopsy. My appointment was for 2 weeks later. I did worry a bit, but was reassured that it probably was a cyst or such and if it was cancer I would hear from the surgeon before my appointment. So off I went to the appointment with the surgeon 2 weeks after the biopsy 99% sure it came back clean. I was wrong
Biopsy came back positive for Invasive Ductal carcinoma 7.6 mm in size ER and PR positive HER2NEU – negative
Treatment plan is Lumpectomy, sentinel node biopsy and Radiation plus hormone therapy since it is so small a small wire has to be placed in the breast to guide the surgeon. Has anyone else had this wire placed?
My surgeon uses the TNM method for staging which is Tumor, Nodes and metastatics the tumor has been graded at stage 1 and the nodes and metastatics will be graded once the Lumpectomy is done.
I am waiting on a surgery date which will be in late August or early September. I meet with the oncologist and radiologist next Thursday.
Right now I am so angry and frustrated I was just returning to normal after the throat cancer and now this. Both cancers are unrelated.
I know I am luckier than most as it was caught so early, but I am so sick of being sick and not looking forward to another round of radiation as it made me so sick the last time.
I beat the last one which was a lot more serious and life threatening and I know I will beat this one as well.
Thank you for listening as I vent.
Comments
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I am so sorry you have to go through this stress and s**t yet again. On the positive side, your PET scan helped catch your breast cancer in early stage and this journey should be not as rough as your previous cancer treatments. I also had a wire placed just prior to entering the operating room for my lumpectomy. I was later stage than you so I had more involved treatment regimen (chemo). Do some research on this site regarding your radiation treatment protocol as there are shorter regimens available now than the traditional 6 week daily treatment. Best wishes and one day at a time.
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Dear Charlene1, Welcome to the BCO community. We are so very sorry for all that you have been through. No wonder you are angry. We are glad that you reached out to our members and believe that you will receive lots of support and information here. Keep posting, stay connected and let us know how everything goes for you. The Mods
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Charlene this is the time where all of the old sayings come into play: "God doesn't give you more than you can handle," bla bla bla. Right now you're angry and you're allowed. Here is the saying that has helped me through so many health problems (and I have had many different sudden unexpected serious medical issues other than breast cancer):
"You play the cards you're dealt."
That is not to say you shouldn't be upset or angry. I went through that too. But the above saying is what truly helped me because it allowed me to get past the anger and "why me" and all of that. Scream, yell, cry, and then play the cards you're dealt.
The wire is no big deal. It is like a mammogram where the radiologist is taking xrays to see where the spot is they want to remove, and as soon as the radiologist finds it they stick a wire into the spot so the surgeon can find the exact spot (and you don't have to go through another surgery cuz they missed it!) They give you numbing medication. It felt like getting blood drawn just a little stick. No big deal.
As far as the radiation: Just because someone in a white coat tells you to do something doesn't mean you "have to". Even doctors sometimes argue about the best treatment for cancer. The doctor is not smarter than you; he/she has just read more clinical studies and has gone to medical school. Doesn't make him/her smarter than you. So educate yourself. If after you have educated yourself you decide on radiation, then you decide how much to get and how. Sometimes just realizing that you don't "have to" do anything makes you feel more in control. By the end you may do exactly what this particular doctor is telling you to do and in exactly the same way -- but it is YOUR decision, not someone telling you that you "have to" do something.
Also, are you at an NCI designated cancer center with a breast cancer specialist? If not, I recommend highly getting a second opinion there.
Sorry life is handing you this bag of cr#@ right now.
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Yes I've had the wires, they stick the wires all the way through the breast and it comes out the other side. As you can imagine it's not the most pleasant thing that has happened to me, I would recommend asking for a numbing agent if they have it or some pain meds before they do it, I thought it hurt. I'm sorry you have to go through this
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Charlene, I was diagnosed in May and had a lumpectomy and sentinel node biopsy mid June. Prior to the lumpectomy, They took me to the nuclear medicine section and did two processes. First, the radiologist numbed the area and then I had a small plate mammogram to determine exactly where the tiny clip from the biopsy was located. The radiologist then inserted a tiny thin wire to guide the surgeon to the tumor. When she was finished I looked down and saw a tiny wire sticking out of my breast a few inches. I asked the tech if it just stayed like that and how did I put my gown back on. She said, Oh I have a cover for that I'll put on. She came back with an opaque plastic dixie cup which she taped to my breast. I laughed and said, Oh good, now I look like Madonna! After that, the radiologist did also inject 4 needles with the radioactive dye which would travel to the nodes so the surgeon could remove the sentinel nodes. It all wasn't really too bad in the big picture. Hope this helps, I, too, didn't really know the process and think it helps to know what's going on. Once the wire was in, I had no pain whatsoever from it. All was removed during the lumpectomy. I'm sorry you have to go through this again. I highly recommend you sign on to the Lumpectomy Lounge thread, and Summer Rads thread. Both can help you with a wealth of information and support. Dara
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I agree with the others who've said the wire was no big deal. It just looked weird until the surgery which was only an hour later. I also had the dye needles which weren't a bother either
I did do the radiation which I had no problems with........Just a very tan boon! If you decide to do it , just remember lotion, lotion, lotion! Whatever they suggest you use, be faithful using it and you shouldn't have bad side effects except maybe fatigue.. I would think that breast radiation wouldn't be as hard, as far as SEs, as having it done on your throat.
Make plans for something fun after this Cancer stuff is all over.......it will make the time go faster maybe? Wishing you the best!
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I know it’s not fair to have gone through your throat cancer ordeal only to develop breast cancer. But if not for the throat cancer--which necessitated the followup PET scan, your breast cancer might have gone undiagnosed until a later stage requiring more onerous treatment with a less favorable prognosis. If it turns out the tumor remains small, and your nodes are clean, you’d be considered Stage IA. Tumor size (as of now) T1a. You didn’t mention grade, but ER/PR+ and HER2- all combine to paint a picture of “as good as it gets” with invasive ductal carcinoma. They’re recommending radiation to “mop up” any stray tumor cells that might be lurking in the breast. It’s up to you, but it’s highly advisable unless you’d rather get a mastectomy (which for a tumor that small and non-aggressive seems like overkill, especially at our age). You might even be a candidate for the shorter partial-breast protocol. If the surgical path report confirms it’s under 1 cm and your nodes are clear, then they usually don’t even order an OncotypeDX test, as you’d be extremely unlikely to have the kind of fast-growing cancer cells that would respond to chemo. After your radiation, you’d be offered endocrine therapy to reduce the estrogen in your body, cutting off any remaining cells’ access to it. At 60, you’re postmenopausal, so that would be an aromatase inhibitor (1 tiny pill/day for 5-10 yrs) rather than tamoxifen. Even without functioning ovaries, your fat cells and adrenal glands make an androgen which aromatase (secreted by your liver) converts into estrogen.
If you had to get invasive breast cancer, that’s the best kind to have (not that there is any such thing as a good cancer). There’s a phrase I’d grown to hate, but when I was fretting to my nurse-navigator as to what a biopsy might show (I was BIRADS 4), she replied “it is what it is.” (The 21st century equivalent of “que sera, sera”). To use a different metaphor, you have to “play it as it lays.” Wherever the ball lands, that’s the only place from which you can take your next shot. Each step of the treatment journey is a new “lie” on the “course.”
As the chorus of the song goes (well, okay, the song I wrote back when I thought I might have brain or bone cancer a decade ago):
"Then the sun appears, and you dry your tears. You’re way ahead, just gettin’ out of bed.
You hope against hope that’s how it stays. You learn to love your days, and play it as it lays. Play it as it lays."
(no, I haven’t recorded it yet, but I hope to next month).
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I love ispy's comment -" you play the hand you are dealt." I can't count how many times I heard this and have echoed those very words myself and to others. Let me add one my dad used to say all the time -" this too shall pass." Those words have kept me going during many a difficult time. Also,I remember telling my parish priest I didn't want to hear that God doesn't give you more than you can handle. I had almost lost my husband to a broken neck and 6 months later my brother died suddenly in his office while I was there working for him. The priest responded by saying "who do you think helped you get through this?"
You certainly don't need permission to vent. Don't blame you a bit. We have all drawn the unlucky card.
I am curious about radiation as your treatment. I thought you couldn't have it again but maybe that's just for BC?
It doesn't make me feel more optimistic when I read or hear about women with worse situations than mine because I feel bad for them but it does make me feel more blessed.
Regardless cancer doesn't define us. You got through a horrific medical crisis before and you will again.
Good luck and keep the faith.
Diane
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You have every right to be angry, but as you know, anger won't change anything and you just have to get through it, because really, what choice do you have?
On the plus side, radiation for breast cancer should be MUCH more tolerable as only the breast gets radiated (especially if your lymph nodes are clear which they probably are given how early this was caught). Some skin irritation (similar to a sunburn) is common, but I didn't even have that - just some swelling in the breast which resolved following treatment. Yes, there can be worse side effects but they are very rare. I would imagine the radiation for the throat cancer would have affected your ability to swallow, etc., but this won't do that, although it is still of course not fun.
And to Edwards question about having radiation more than once, you can't irradiate the same part of the body twice but as long as the radiation field for her throat cancer doesn't overlap with her breast she should be able to have it. I have a friend who had breast cancer twice, 8 years apart in both breasts and did radiation both times - once on each side.
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hi, Charlene. Sorry you're in our "club" but am glad you found us... your initial findings sound a lot like mine... tumor was estimated at 5 mm... it was 1 cm in the end.... yes, I had the location wire, 2 of them actually bc they noted a suspicious growth on my pre-op mri (which turned out to be an atypical node, nonmalignant). The wires were placed via ultrasound, and I was given a topical (lidocaine, I think) so it wasn't painful. Congrats on beating throat cancer... this too shall pass for both of us. I start radiation on Wed. Sending you good thoughts.
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I'm sorry this happened to you! I'm not surprised you're angry, especially given all you've been through.
I have a lumpectomy last year. I didn't feel the wires going in, and strangely enough, I thought they looked funny. First the bare wires made me think of an old tv antenna, then when they put the caps on to keep them in place, I said out loud, "I have an alien boob!". This past week I had a surgery on the other breast for some atypical tissue, and again got a wire. It didn't hurt either time. Prior to the operations, the wires were curled up under a gauze pad. Made it easy to get around.
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so sorry to hear what a difficult news. I think it is worth asking about mastectomy vs radiation. It might be worth it to have the information. Also I haven't had radiation but you sound like an amazing resilant lady i am sure you will do well.
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Go see a Lymph PT and get measured before surgery. Very important. This is your baseline. In addition the Lymph PT can explain the SE's that may happen.
Also GO to the PT before & during your radiation. Measure, measure, measure.
Do not let them blow you off. You can never have that clean measurement ever again.
As far as "the wire", mine was done the day of my Lump. The day before I had an injection to mark the node.
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thank you so much for your response, I am still angry but have pushed it aside as it serves no purpose and does not change anything
I spoke with my radiologist yesterday, he told me we were probably looking at 16 rad treatments and they would not be as severe as the 35 he did to my throat and gave me the okay to keep working through the treatments.
The surgery will be on August 25th and once the pathology reports are back a concrete plan will be in place.
thanks again
Charlene
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thank you for your response I am less angry now and am concentrating on just getting through this
I met with my radiologist yesterday and he is suggesting 16 rad treatments and they will not be as severe as the ones done on my throat and I should be able to continue working through treatments,
I am in Canada and am at the top cancer hospital in my area.
Surgery is Aug 25th and once the pathology is back a concrete plan will be in place
thanks again
Charlene
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thanks for your response and yes I agree if not for the petscan for my previous cancer
this would have gone undetected for awhile
thanks again
Charlene
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thanks for your reply, yes they do use a numbing agent for the wires
but none for the tracer dye for SNB, but I am demanding it be used for that also
thanks
Charlene
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thanks for your reply I am still angry but have pushed past it to concentrate on getting through this
I met with my radiologist yesterday and he said probably 16 rad treatments and not as severe as what he did on my throat
and I could continue working through the treatments. Surgery is scheduled for Aug 25th
thanks
Charlene
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Thank you everyone for your responses
I am still angry but have pushed that aside to concentrate on getting through this
I spoke with my radiologist yesterday and he is saying 16 rad treatments and not as severe as my throat
I should be able to continue working through the treatments
Surgery is scheduled for August 25th
thank you again
Charlene
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Charlene the Anger is real. Its legitimate. Its ok to feel it and to move through it and push forward. I think that is all that any of us can do.
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I can definitely understand your anger. I was diagnosed with colorectal cancer and had LAR surgery on July 27th of last year. This year on the exact same day I had an ultrasound that showed a mass in my breast. A biopsy last week confirmed invasive ductile carcinoma. 2 completely unrelated cancers within one year and I'm months from my 50th birthday. It is safe to say that I too am feeling a little angry.
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Bock-
We are so sorry to hear of your diagnosis. Anger definitely seems like the appropriate emotion. Just know that you're not alone, and this entire community is with you!
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