February 2012 Chemo

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited September 2015

    Hi Lump. We were wondering if you were going to come back. Yes there's a facebook page. I'll look you up on FB. Glad you got the mammo though. I've actually had 2 and finally am getting around to getting a TE put in next week. Just got busy with life/work. I'll talk to you on FB! Maureen

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  • dltnhm
    dltnhm Member Posts: 873
    edited October 2015

    Hi Margo -

    Looking forward to reconnecting on FB. I still check in on BCO too.

    Hugs.

    Diana.

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited October 2015

    Lumpy I sent you a friend request on FB. I let the gals now on the closed group too. Everyone's looking forward to hearing from you!

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited November 2015

    Hey all. Glad to see you here. I am still kicking. I've been on Kadcyla for 2 years now. Last scan showed a 1.4 centimeter lesion on my rib, indicating that the cancer has learned its way around this treatment. My oncologist recommended 5 quick zaps to the spot on the rib to get rid of it, with the hope that we can get more time on this treatment. Only 5 zaps and the fatigue and nausea kicked in. Very grateful it was only 5. Glad to hear everyone is doing well. I just keep on going to see how long I cannot live the statistics. Susan

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited November 2015

    Hi Susan

    Glad to hear from you! Wow 5 zaps and you feel that way. Hopefully it zapped the bugger out of your rib. You are not a statistic!! Effing cancer

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited November 2015

    Hey Grit. Joe this wiped out the cancer spot and that's why your fatigued. Much love

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited July 2016

    Hey, all: Sorry I've been gone for a long time. I got married two weeks ago, and wanted to post. I acutally have blog and detailed a bit of the wedding there. Dating and Marriage with Advanced Cancer: Hope in the Midst of Sadness www.curetoday.com/…/hope-in-the-midst-of-cancer-sadn…

    image

    And here's an image from the big day. Pretty scary for me since never been married before and scared about what is next with my health, but blocking that fear for now. Just praying the targeted therapies keep working. How is everyone else?

    Susan

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  • ali68
    ali68 Member Posts: 1,383
    edited July 2016

    Susan so lovely to hear from you! What amazing happy news xxxx I'm doing great and the rest of the girls are on a closed group on facebook under my name Ali. The girls will post soon loads of goings on. You look great will read your blog. Xxxxxx

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2016

    i love that picture! You both look so happy, it makes me smile!

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited November 2016

    Hi Ladies


    I haven't been on here in ages. For those of you not on our FB page I'll update you. Long story short I was DX Stage 4 with mets to liver and lung along with a 7cm tumor on my heart, mainly the main vein that carries the blood from the heart. So 6 doses of rads and 12 chemo treatments ending about a month and a half ago, I had a total response to treatment with only a minute tumor still on my supra vena cave which they'll keep an eye on with scans every 3 months. So great news all things considered. Now my RO wants to do 10 rad treatments on my brain to prevent brain mets. Anyone here have rads to their head?

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited November 2016

    Gritgirl. Congratulations on the wedding.!! You look beautiful and your hubby is very handsome!! Hears to many years of wedded bliss!! Cheers Maureen

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited November 2016

    oh, Maureen. How horrible. I am so sorry to hear this. I'm glad you had a complete response. That is very good news. I've never heard of whole brain radiation done as a preventative measure. Did they find something on a scan? I know people who have had stereotactic brain radiation which is more targeted, and had great results. My her2 positive cancer covered my liver and I am knocking on wood to be five years out. If you want, send me a private message and I can call you if you'd like. I would also recommend an organization called imerman angels. They connect you with somebody else who has a simular diagnosis, and you can get support that way too. You might also want to check out this thread which talks about just living life in spite of the cancer. Lots of love and hugs. Susan

    https://community.breastcancer.org/forum/8/topics/818931


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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited December 2016

    wishing everyone the Happest Season of all. Much love

    Monica

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited December 2016

    Same to you, Monica, and to everyone else. :-)


    Susan

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  • Lumpynme
    Lumpynme Member Posts: 747
    edited March 2017

    Susan!!!!!! whoooo hoooo congrats on the marriage-you both look so happy in this pic!!!!

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  • Lumpynme
    Lumpynme Member Posts: 747
    edited March 2017

    Maureen-what crap,news to see today---hugs and prayers

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  • Lumpynme
    Lumpynme Member Posts: 747
    edited March 2017

    i've been gone so long that i had to look up my log in info!!!!

    i am caring for michael still-he now has Parkinson's Disease which started roaring during my 2012 tx-he has dementia of undetermined source but i think it's vascular-he has COPD with 50 % lung capacity as well as his heart issues--he has dysphagia from aspiration pneumonia twice...and grumpy ol man syndrome has gotten worse--we moved in 2014 and again in 2015 and i am exhausted

    the reason i even logged in today was concern about sleeping on my left side-after my lumpectomy i was told not to (left side surgery with 9 nodes removed) but i'm reading now that it is much healthier for the body and i agree that i sleep better that way--anyone know anything?

    btw--i have not seen my oncologist since 2013 when we thought we were moving to Hawaii---AND my dad died of colon cancer on Halloween 2015......no i have yet to get checked---

    i am very active-too active -on fb but i don't remember hooking up with any of you there-----

    Margo Malcheski is my acct name--

    anyhow--still love y'all !!!!!

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited March 2017

    Marjorie. I just searched you but can't friend you. Do you have FB set up so only friends of friends can friend you. My husband is from Rocky River

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited April 2017

    First Spring flowers here

    Happy Passover and Happy Easter,

    Happy Spring Solstice and Happy Oestre! image

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited April 2017

    Moonflower. Gorgeous. Happy Easter to you too. :-)

    Susan

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  • ali68
    ali68 Member Posts: 1,383
    edited June 2018


    Hi sisters,

    Does anyone still come on her from day one ?

    I'm having a few problems , how are you all doing.

    Ali xx

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited June 2018

    Ali: did anyone answer you? what kind of problems are you having? I certainly can talk about that kind of stuff.

    Susan

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited July 2018

    hi. Im here too.

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  • Alicethecat2
    Alicethecat2 Member Posts: 105
    edited July 2018

    Hello ladies

    I just pop back now and again to offer encouragement if I can.

    Moonflower: So good to see you posting.

    Ali: I've just seen your post and hope things are OK for you now.

    Alice


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  • christina0001
    christina0001 Member Posts: 1,491
    edited November 2018

    Checking in!!! I hope everyone is well.

    I'm getting a needle biopsy on a mass in my abdomen Tuesday morning. An ultrasound only said that it's not a cyst. I'm terrified. I sure hope I find out for sure what is going on quickly after the biopsy.

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  • gonegirl
    gonegirl Member Posts: 1,871
    edited November 2018

    Good to see you Christina. I'm so sorry you are going through that. Praying the mass is something harmless. Let us know what you find out when you do find out. Hope you go to a place that can do a quick turnaround on the biopsy. That is scary. Ultrasounds can find masses, but they can't tell us much us. How big is this thing? And if it near the ovaries? Just being nosy.

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  • ali68
    ali68 Member Posts: 1,383
    edited November 2018

    Thinking of you xx


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  • christina0001
    christina0001 Member Posts: 1,491
    edited November 2018

    Ali!! *hugs*

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited November 2018

    hugs to all

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  • Alicethecat2
    Alicethecat2 Member Posts: 105
    edited November 2018

    Hello ladies

    Good to see you here. I still come back from time to time.

    Hope you get a good result from your biopsy Christina. Could it be sarcoidosis? Over the years I have found lumps and bumps but all turned out to be benign.

    Hoping for the same for you.

    Alice

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