CT and bone scan for DCIS?

I had an MRI (to make sure there was only the one area and that the other breast was clear) and there will be CT scans as part of preparing for radiation. I haven't heard of a bone scan being routine.

Hi DeepBlueC:

I was diagnosed initially with apparently pure DCIS. I had bilateral mastectomy (due to extensive bilateral disease), but no further treatment. Despite some small areas of invasive disease found on surgical pathology, I never had a CT or bone scan (treated at Mass General in Boston, MA).

Since the surgeon did not mention these tests to you, the possibility of a clerical error and/or some miscommunication cannot be eliminated. Therefore, please do not hesitate to call the surgeon's office and request that the surgeon call you back to explain the basis for ordering each of these tests in your specific case, and how the information will be used (purpose). Please also confirm your understanding that your diagnosis is apparently pure DCIS (with no evidence of or concern for invasive disease).

If you have not already done so, as best practice, be sure to obtain copies of the report of the radiologist for all imaging to date (not a summary or letter) and of the pathology report from all biopsies. In the US, you are entitled to copies of your medical records and these should be available to you via on-line portal or the facility can provide copies in some form (e.g., via secure e-mail, fax, hard copy).

For more information about DCIS, if you have not already found it, see this post from Beesie, "A layperson's guide to DCIS":

https://community.breastcancer.org/forum/68/topics/790992?page=8#idx_230

BarredOwl