Starting Chemo March 2015

Options
1384385386388390

Comments

  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited May 2016

    hello to you all! Glad you are doing well avMom. Don't push too hard.

    Meme I'm sorry about your uncle. It isn't fair at all

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited May 2016

    so lucky and grateful to be treated to a lovely lunch today by KSusan and her wife. Can you see the new charms? A bit of elegance, art, and the humor we know and love KS for.

    image

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited May 2016

    tried to enlarge.

    image

  • Trvler
    Trvler Member Posts: 3,159
    edited May 2016

    Had you met before or was this the first time?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited May 2016

    no we met once before, when she and Slothabout came to my house for a weeding/gardening cleanup in the rain weekend in early March. One of the greatest gifts I've ever received.

  • Trvler
    Trvler Member Posts: 3,159
    edited May 2016

    Right. I remember now.

  • neverthought
    neverthought Member Posts: 90
    edited June 2016

    Love the bracelet and the community it represents!

    Miss everyone posting very often but grateful because it means (hopefully) life is returning to normal?

    Has anyone considered thermography for surveillance? Recommended by local integrative medicine doc.

  • Italychick
    Italychick Member Posts: 2,343
    edited June 2016

    Thermograhy didn't work for me, but the facility messed up the test. They left an air conditioner on and blowing which skewed the results. I also have seen information that it doesn't show anything too deep, so I'm not 100% sure. I decided to suck it up and pay for an annual MRI if my insurance won't pay because my surgeon and oncologist said it has shown to be the best test for me and my facility charges $700 for it

    But definitely research. Not trying to dissuade you, just make sure if you do one that the facility really knows what they are doing, and recognize that it may not show deeper tumors, according to what I have read.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2016

    The FDA does not approve thermography as a sole means of breast surveillance - advises it to be backed up by mammography. I only have one personal experience with thermography - a fellow BCO member locally who was using it to monitor and it missed her tumor totally. By the time it was diagnosed by conventional means a very short time later she was staged at IIIC.

  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2016

    I don't know why but I posted on some other thread. Duh. For those not on FB group; I just had my exchange surgery and fat grafting done Friday. Here is my "question"... I'm a little panicky right now. I am on tamoxifen for about 8 months now. Haven't had my period since April 2015; one month after I started A/C chemo. GYN said I should contact her asap if I started bleeding. I had my TE's exchanged for implants two days ago as well as some fat grafting from my abdomen/tummy. Now, today, I get my period for the first time in 15 months. Of course it is a holiday weekend so I'll call her Tuesday. I'm sure I'm worried over nothing but what could it be? Anyone else had something similar occur

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    Carrie- I don't have an answer but it's nice to hear from you. I hope you heal well and quickly. It could be your body was just in chemopause and your body just is getting back to it. Everyone is different. You are still pretty young and the Tamox doesn't necessarily suppress your period or bring on menopause (that I know of). Try not to worry. Why do these things always happen on holiday weekends? Arrrgghhhh.

    I miss everyone here! Happy 4th!

  • Trvler
    Trvler Member Posts: 3,159
    edited July 2016

    Hi Ladies,

    Happy to see some activity here. How is everyone doing? I am doing well. Trying to exercise and get back to working out after Stage 2. Got a puppy Sat. Crossing our fingers my daughter doesn't have any allergy issues with her. They have wanted one for so long but my husband didn't. I finally just did it. Gotta live life, right? (He knew well in advance). He seems to like her and is being nice about it all. I just think kids need a pet. Of course I am doing most of the work but I don't mind. She is sweet. My only issues are hot flashes (maybe 4 a day), being cold A LOT, very dry hair and of course the sexual issues which are being worked on. I also get painful cramps in my right harm which my MO says are not Tamoxifen but I know they are. It makes no sense for it to be anything else. I can live with it. Oh, and I appear to be gaining the Tamoxifen weight. I weight the most I have ever weighed in spite of working out more. :(

    Please check in and tell us how you are doing.


  • ksusan
    ksusan Member Posts: 4,505
    edited July 2016

    Hi, March 2015 women. Sorry; this thread fell off my favorites. Katy, I swear I haven't been ignoring you! I hope to meet some more of you lovely people at Glacier.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    What fun, Allison! A puppy!!!

    Ks- the thought truly never crossed my mind. I know you're out there. 👭

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    it's been a long time since anyone posted food porn. I think this qualifies. Happy summer everybody!

    image

  • pboi
    pboi Member Posts: 663
    edited July 2016

    Happy summer everyone! Looks yummy Katy and I'm hungry...it's lunchtime!

    I've been doing well...can feel my strength and stamina returning slowly...finally. Just returned from a week vacation in LA and San Diego with my family and had the best time! Unfortunately am struggling with Arimidex side effects...mostly muscle/joint aches...but keeping up with the exercise and hoping it gets better with time.

    Miss you all. Hope everyone is doing well and would love to hear how everyone is getting along 🙂

    PB

  • Trvler
    Trvler Member Posts: 3,159
    edited July 2016

    Love peaches! We are getting good ones this year finally.

    PB: I am sorry you are having joint paint. So glad to year you had a nice vacation. During those times, just for a minute or two, we can forget about the horrible year we had...

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    Great news PB and Allison!

    Those are actually plums!

    image

    image

    image

    imageI'm all for anything that diminishes memories of "Annus Horribilus"


  • pboi
    pboi Member Posts: 663
    edited July 2016

    Glad I have eaten lunch now Katy...those plums look delicious. What did you make in the dish with the cinnamon and nuts?

    And how are you doing Katy?

    PB

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    I just sort of made up a crumble. The plums are so juicy they would soak through a bottom crust. Brown sugar, butter,flour, walnuts. Cinnamon. Popped it in the oven for 39 min @ 350.

    I have been struggling with joint pain. Whole body pain. Migraine headaches far beyond the frequency I ever had in my life. Like 5 nights in a row. A few days without. Then another spate of them. Trigger thumb. (Can't quilt, everything is done with my right hand. I have been pretty down. Finally stopped the anastrazole. Tried two brands. One worse than the other.

    After a break I'm going to have another heart to heart with my mo. But my qol is important to me. When it got to the point I wasn't moving at all, not leaving my house for days, I quit. There not only was no qol. Barely any l. I try to be brave and positive and put a good face on it, but it became too much. I might try one more time. The MO is suggesting exemestane. Ugh.

    I never thought I'd still be feeling bad so far after dx. But there it is. Thankfully I'm feeling fairly mentally stable and I am finding joy in life. Little moments. But I really believe physically I need to be on a higher plane.

  • pboi
    pboi Member Posts: 663
    edited July 2016

    Katy...I'm so sorry to hear that the Arimidex was so difficult for you. I'm struggling learning to live with the muscle/joint aches, and if it gets worse I may try other brands. So I understand some of what your are feeling. I hope that taking a break is helping your side effects, and that maybe Femara or Aromasin will be better for you. I've heard people mention sometimes just changing AIs help the side effects, so I'm hopeful you will find one that works for you. I've heard from some it can take a year or even two to recover from all these treatments, so I'm trying to stay patient that I'm not feeling as good as I'd like, but just hoping each day I feel a tiny bit better than the day before.

    I'm so happy to hear you are finding joy in life! It really is about the little moments!

    Hugs 💕

    PB

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2016

    Sorry about all the pain Katy. The things they don't tell us!

    All is going well for me, at least I think it is. Except for still being heavier than I want to be, hubby keeps telling me give it time.

    Hope all are doing well. It seems that most people have migrated over to Facebook, so just wanted to post for our sisters who aren't on Facebook.

    Still love you all and think about you every day!

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2016

    Katy, I PMed you on Facebook.

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2016

    My food porn doesn't match Katy's, but here's a carrot. image


  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2016

    yum. A homegrown carrot. Have you fresh tarragon?

    I'll see you and raise:

    image

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2016

    I do have tarragon, but freely acknowledge that you won this round before it even started.

  • Trvler
    Trvler Member Posts: 3,159
    edited July 2016

    Beautiful plums! Katy, I am so sorry you are struggling so much. I wish we could help. But it sounds like you are being proactive and trying every option.

    I guess I should join the FB group. Just freaked me out when it was public at first. Can someone patch me in somehow?

  • Lovemylab
    Lovemylab Member Posts: 80
    edited July 2016

    Hi everyone

    I feel like I only come here when I need support and boy do I ever now. I have a hard lump on my sternum and onc ordered us guided biopsy of it for next week. It's like bone hard. Not sure how they will put a needle in it. Not going to tell my family. Just don't want all the questions. My new motto... Just breath! Sometimes that is all I can do.


    Mauree

  • rleepac
    rleepac Member Posts: 755
    edited July 2016

    I too, struggle with continued joint pain. Primarily in my hands, felt and elbows but intermittently in my, knees, hips and shoulders. Nobody seems to have an answer and certainly not a solution. My PCP has been monitoring my liver enzymes and my AFP tumor marker is slowly going up. I don't think it's significant but she seems a little concerned about it and wants another chest and abdomen CT. Whatever...I've met my out of pocket max $for the year so they can scan me all they want LoL.

    I restarted the Tamoxifen his week and I've noted an increase in depression, and pain on my right knee and my left TMJ area. Could be coincidence or could be Tamox?

    Went on a cruise and had a wonderful time! With my daughter and husband

    imageimage


    Hope you are all well. Now I have to catch up on posts

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited July 2016

    Beautiful photos, Bekah. Looks like you had a great time.

    On one hand I'm sad to see our thread here dwindling, but on the other hand it probably means that a lot of us are feeling better and are moving on with life.

    I'm a little achy from Tamoxifen too, especially my neck and right shoulder. I stopped taking Tamoxifen a week before another surgery I had, and the pain went away after a few days. Once I restarted the Tamoxifen after the surgery, the pain came back.

    I've been getting more weepy and supposedly moody too and my MO is keeping an eye on me out of concern that I'm getting depressed from Tamoxifen. I'm not convinced it is from the T. This whole "cancer experience" is depressing enough and the fact that I feel like I aged a lot in the last year and a half. I definitely do not want to switch to AIs.

    Speaking of surgeries, I had fat grafting as a part of my reconstruction and I had my ovaries and tubes removed at the same time. For years I had ovarian cysts and suddenly one of my ovaries ballooned up within 2-3 months and I got scared into removing them. This could be the cause of my moodiness too.

    I had a nice vacation too - my husband and I drove to Las Vegas all the way from Illinois back in May. It was a long drive, but I hate flying. This way at least we got to see Colorado and Utah - beautiful.

    BB



Categories