January 2016 Chemo!

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited July 2016

    LovesToFly...Jill, you look FABULOUS‼️

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Jill you look amazing!!!! But then you looked great with no hair.

    Cathytoo, I have bumps on my chest now.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    I met with my surgeon yesterday. She said that if she were my sister, she would tell me to do the re-excision. She said <1mm margins can't be overcome by more rads. She said we could do the surgery as soon as two weeks from now! All along the MO has been saying a month out from last chemo, so I've gotten used to that in my head. I have absolutely no stamina, and a host of side effects to recover from, so I'm taking the month and will have surgery on August 10th.

    I'm not happy to have more tissue taken out and reduce my breast size again, but I never want to go through chemo again. My sister, who is a brand new nurse, is being less than supportive in my decision. Not happy with her right now.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited July 2016

    sorry about your sister. What does she think you should do.

    I'm sure by August you'll be feeling a lot better and more prepared for the surgery.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    My sister would have had a mastectomy and been done with it. No chemo, no rads. Easy for her to say, but not so easy when you are triple negative. You never really know what choices you will make unless it happens to you, and you shouldn't second guess anyone else's decisions. Chemo bumped me down from 35-40% chance recurrence to 17-20% chance. Still not great odds, hence the re-excision and rads.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited July 2016

    Valstim52....according to the radiation tech, the acne like pimples on my nose have nothing to do with rads. But, for the past week I've been getting blood bruising on my legs under the skin. Googled and found (among other things) it's a side effect of chemo and radiation. Anyone else experiencing this???

  • LifeAloft
    LifeAloft Member Posts: 150
    edited July 2016

    I had my lumpectomy yesterday, feeling good, just some soreness at the incision sites. The best news is that the lymph node that had 3cm of cancer in it when this all started was cancer free!!! That was unexpected and a big relief, now just waiting for the rest of the pathology.

    I'll be joining all of you with this rads "fun" in a few weeks.

  • JCS28
    JCS28 Member Posts: 153
    edited July 2016

    Cathytoo -- yes, I just got my first rash of bruises on my leg a few days ago. It's not raised. It didn't hurt. It's like burst blood vessels or something. It faded within a few days. I messaged my MO about it and she said take a Benadryl, let her know if it gets worse, and take a Benadryl before my next Herceptin.

    FYI, I finished Taxotere at the end of April and am still on Herceptin alone. For some unknown reason, this past Herceptin affected me more (very tired, a couple of mouth sores, leg bruising) than the previous two which were nothing.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    Congrats LifeAloft!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Congrats LifeAloft.

    Had a seroma drained this morning by surgeon and had rads this afternoon. So tired.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    How are your rads going, Val? Where are you in the process

  • Cathytoo
    Cathytoo Member Posts: 667
    edited July 2016

    JCS28...sounds like what I have blood bruising under the skin on both legs. I am not doing Herceptan. It started about two weeks ago when I began rads. On Thursday I see the RO and will see what she thinks. Thanks for responding

  • Paxton29
    Paxton29 Member Posts: 221
    edited July 2016

    I had a BMX and still needed chemo and rads. Everybody's different so I don't get this idea of just get a mastectomy and be done with it.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    I think that my sister thinks that is what she would decide to do, not that any doctor would recommend it. My sister can be very stubborn about something once she makes up her mind about it.

  • Frill
    Frill Member Posts: 311
    edited July 2016

    Hi, lovelies. ❤️ I just ran across an article during Google obsession. Catching up on this thread, at least I know it's not just me, lol.

    http://scienceblog.cancerresearchuk.org/2015/07/08...

    It's relevant for ER+/PR+ of us, which I know is Jill and Paxton, but that's just off the top of my head. Lol, I checked Paxton's, but I really did know Jill's...I guess that's what happens when we're around each other for awhile. Anyway, I've been curious about Progesterone cream even before BC, and have seen it as a natural alternative to Tamoxifen, but not that it's a proven substitute. I'd be willing to try Tamoxifen if the dr will give me the cream, too.

    I'm on my phone, so it's hard for me to respond really specifically. I just thought that article was really interesting and it actually put me in a good mood and wanted to share with y'all.

    My new symptom is difficulty breathing. I can't do anything without having to rest after this last chemo. Going to dr, but frustrated with this new turn of events.

    Cathytoo: Thank you for the cabbage info!!!!! I've heard that .... and the name of the greasy recommended rad cream has flown out of my head. Chemo brain. Y'all know which one I'm talking about. What I want to say is, there's a thread in rads from women who were successful with it, and they all seemed to use that AQUAPHOR lol stuff immediately after treatment. Like do not pass go, do not collect $200 right after each and every time. I'm thinking it will help the cabbage leaves cling? :)

    Jen: I'm so happy for you!!!!!!

    Since I'm on my phone, I'm including a pic for eyebrow progress. Looks like they're not going to fall out with each treatment. image

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Hello all, my Rad oncologist prescribed a cream that the pharmacist has to mix. My youngest DD is a pharmacist and a RN and she told him (she is with me when I see the dr) to write a prescript for it.


    it is AMAZING.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited July 2016

    Valstim52 Do you mind finding out what's in it? Interested in hearing more!

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited July 2016

    great article. I am er+/pr+ and her2+

  • Wendiwithani
    Wendiwithani Member Posts: 108
    edited July 2016

    Hi, ladies! Been away for a while, but been lurking as much as possible. I am now 10 weeks post chemo and feeling soooooo much better! I actually got a treadmill yesterday and running again using the Couch 2 5K method. I have been very successful with it in the past and am looking forward to moving my body again. I started taking Tamoxifen about 4 weeks post chemo and have no ill side effects - including weight gain or sexual. So, I am pleased with that.

    Hair is growing back slowly but surely. Lost all of my bottom lashes about 8 weeks post chemo and most of my top now...I cried. Sometimes it's the little things.

    Anyone using CBD oil or have any thoughts on it? I've been doing a bit of research on my own but a little hesitant to make the jump. My oncologist actually mentioned that she has several patients that use it but didn't out right recommend it.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    Having my final chemo right now. I think I might be the last one of us to finish.

    Met with my MO's nurse practitioner this morning. She told me to watch for things like a new cough, fatigue, loss of appetite, etc. I see my MO again in three months.

    Next up for me is a re-excision on August 10th, then rads.

  • Paxton29
    Paxton29 Member Posts: 221
    edited July 2016

    LovesMyVizsla, I promise I wasn't criticizing your sister. I just remember my surgeon telling me the day of my diagnosis that most women do some sort of systemic treatment even with BMX. And they really didn't know radiation would be on the table until after surgery.

    Frill, thanks for the article--interesting, I just wish they were further along (don't we all, about everything). As usual, you look so cute in your scarf!

    I only had really one week of pain during radiation, though it was pretty miserable. I finished about 3 weeks ago and you can hardly see the tan/red any more. I will never use Aquaphor again if I can help it, though. It ruined several shirts. Emu oil works well.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    fightergirl its called : Silver Sulfadiazine Cream

  • Sheri64
    Sheri64 Member Posts: 113
    edited July 2016

    I used Sulfadiazine cream also and it really helped with the red raw skin in my last 2 weeks. Cleared it up in about 10 days. Great for burns I was told but a chef friend.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016
  • mltdd
    mltdd Member Posts: 87
    edited July 2016

    Wendiwithani -- I have not tried CBD. I've been using RSO for about 1 month. The people at the dispensary recommended it. I have been seeing improvement with symptoms from chemo, but not sure if it is due to time or the RSO. Finished chemo the last week of March.The RSO is easy to take and I've only felt "high" twice.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Today was #15/33. No more no more bolus. It has made a huge difference. The bolus intensifies the rads on the skin, as I had IBC.

    Looking towards the ending. I'm quite pink

  • MissBee123
    MissBee123 Member Posts: 186
    edited July 2016

    Jill you're looking good! Kelly, how are you feeling post surgery?

    As for me, I've almost got hair again! Funny thing, the first time I did chemo last summer my hair grew back dark brown. After finishing this new round it's now back and blonde! Proof (please ignore the lack of makeup, it's been a long day!):

    image

    image

    The nerve pain down my arm continues. It doesn't feel like neuropathy, as I have that in my toes and it's different. This feels like it starts in my armpit and travels down to my middle, ring, and pinky finger. I'm wondering if it's from the ALND? It burns and feels like someone is pulling from the inside. Today I was trying to write notes for my students and my hand hurt so much I had to quit writing. My OT said it's likely all related to the neck tightness I've been experiencing so I'm trying to stretch it, but I'm not sure it's helping yet. Has anyone else dealt with this?

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    Paxton, I didn't think you were criticizing my sister. I was criticizing my sister!

    MissBee, you look great

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited July 2016

    When I met with the NP yesterday, she suggested that I might want to keep my port until after my re-excision. Now I'm second guessing myself and wonder if I should keep it. Thoughts?

  • jensgotthis
    jensgotthis Member Posts: 937
    edited July 2016

    Miss Bee, I think have that same pain. I find I do better when I'm stretching g my arms over my head every day and purposely stretching my hands. Somehow that staves off the pain through my bicep, forearm and down through my fingers. Weird.

    I jUst lost my first toenail today (right big toe). That was kind of a shock. It doesn't hurt but it sure is inconvenient during the summer. Won't complain though...I know things could be so much worse. Just hoping the rest of my nails don't follow suit

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