Bummer

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kebab
kebab Member Posts: 873
edited September 2016 in Stage IV/Metastatic Breast Cancer ONLY

Well, the other shoe has dropped, I guess you would say. Mid June I had some trouble with dizziness and balance. They gave me meds for vertigo, which did nothing, and then I got an MRI of my head. Tumors in my brain. Bummer.

So, hospice care it is for me now.

I'll continue to check in here as often as I can; hopefully with less disjointed messages as the brain allows.

Love to you all.

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Comments

  • JFL
    JFL Member Posts: 1,947
    edited July 2016

    Kebab, I am so sorry to hear this. I really hate this disease. It makes me angry sometimes. Did you opt for hospice or are you out of options? Thinking of you

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  • zarovka
    zarovka Member Posts: 3,607
    edited July 2016

    kebab - sending supporting thoughts and prayers to help you and your family along this path. does hospice feel like the right thing, given the facts at hand?

    >Z<

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited July 2016

    kebab,

    Well this just plain s•cks! Just no nice way to say that. I am really sorry to hear about this turn of events. It pains me to say this, but I hope that your hospice team is compassionate and helps you with any pain or confusion you might have.

    All the best,

    *susan*

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2016

    Oh No, Kebab. I've been off boards for too long...and this news makes me want to just crawl under covers & not come out. I am so sad, sorry, heartbroken. Damn cancer. I know you've given this decision to go on hospice your most serious consideration...my hope & prayer is that you are comfortable and yes...I will hope for a miracle. My question is also whether there are no more options. Is this her2 raising its ugly head again? So many questions. Sending love to you.

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  • stagefree
    stagefree Member Posts: 2,780
    edited July 2016

    Dearest Kebab,

    So hospice it is.. Each one of us will get there at some point.. Lazy science, still no cure yet! Huge hugs from the other side of the world..

    I so adore your family pics and all.. Please do keep sharing..

    Love

    Ebru

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited July 2016

    So very sorry to hear about the progression. Wishing pain free days and nights.

    Brenda E

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  • Kandy
    Kandy Member Posts: 1,461
    edited July 2016

    Kebab, heart broken to hear this and shocked. I hate the big "C" also. I'm praying for peace and comfort.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2016

    kebab, oh dear, I'm so sorry to read the latest progression to the brain. How are you adjusting? Please keep us informed on what you're feeling, if you feel up to it. Many hugs and special prayers for you. We are here for you in spirit.

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  • steelrose
    steelrose Member Posts: 3,798
    edited July 2016

    (((Kebab))) I too am heartbroken to read this news. But peace and comfort are the priority now... and time with your wonderful family. We're all here for you, as always.

    Sending love...

    Rose

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  • Tina2
    Tina2 Member Posts: 2,943
    edited July 2016

    Kebab, I am shocked and sorry to learn this. That blasted other shoe! Please let us know what's going on when you know.

    Damn, damn, damn.

    By your side,

    Tina

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  • sueopp
    sueopp Member Posts: 1,541
    edited July 2016

    Kebab, I am so sorry that this has happened. Can't find any words to offer, just sending my love. Fondly, SU

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  • Ohmydarlin
    Ohmydarlin Member Posts: 292
    edited July 2016

    I am so sorry! Thinking of you.

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited July 2016

    So sorry. Peace for you and your family.

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  • Mel26
    Mel26 Member Posts: 67
    edited July 2016

    Kebab, I am so sorry to hear of your progression. Is there more you can do, like the various forms of radiation? Please contact agness, as she is an expert in all things brain mets.

    Healing thoughts at this difficult time. Blessings to you and your family

    Melanie

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2016

    Kebab, so sorry to hear this. We're thinking of you, and sending you strength and love.

    The Mods

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  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited July 2016

    So sad and upset to hear this, Kebeb. Very sorry that you had that progression. As others have said, we are all thinking of you and will be praying that you are comfortable and spending time with your family and friends. Please come here when you want and when you can. Wishing you peace.

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  • blondedoris
    blondedoris Member Posts: 197
    edited July 2016

    {hugs} wishing there was something I could do or say to make things better - sending love instead x

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  • jobur
    jobur Member Posts: 726
    edited July 2016

    I'm so sorry to hear your news, bummer is an amazing understatement!  Wishing you peace, comfort, and precious time with those you love.            

    Jo

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  • pajim
    pajim Member Posts: 2,785
    edited July 2016

    I'm so so sorry. Many hugs to you and a few extra for your family. I hope your hospice team is the best!

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  • 208sandy
    208sandy Member Posts: 2,610
    edited July 2016

    Sorry to hear this Kebab - sending you love, hugs and wishes for peace.

    S.

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited July 2016

    I'm so, so sorry to hear your news. This disease is the pits. Sending you hugs and hope you are painfree.

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited July 2016

    Kebab,

    Very sorry to hear of the spread to your brain. Last year was a big recurrence for me. From bone mets only to liver & pituitary gland. I did not do well on taxol or xeloda. It's been 7 years for me. My bones are doing well on Xgeva and a great surgeon at UCDAVIS took out the pituitary tumor. Since I have to monitor with PET scans & MRI's every 3 to 6 months; I can't go onto hospice. They will not cover those charges on hospice. I would have to agree to absolutely no treatment; not quite there yet.

    Hugs to you.

    Terri

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  • kt1966
    kt1966 Member Posts: 1,326
    edited July 2016

    I'm sorry Kebab. :(

    I've just been diagnosed with Leptomeningeal mets so I kind of know how you feel, although I'm going to give WBR a go... Don't know if it will help. Very scary.

    I'm going to contact hospice this week too, just to introduce myself, & find out what they have to offer.

    Thinking of you ((hugs))

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited July 2016

    Hello kebab, I too am so sorry to hear of this terrible news. I was also wondering if you had run out of options or just Hospice just seem like the right thing for you now. Whichever it is I hope that those tumors just stop in their tracks and you still get much time with your family, in comfort and peace. We will all be thinking of you. Please check in when you can.

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  • stagefree
    stagefree Member Posts: 2,780
    edited July 2016

    dearest Kebab,

    Prayers for good qol and quality time with your family & loved ones.. Still trying to digest the news myself, my friend with the gorgeous smile..

    Love

    Ebru

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  • Mzmerz
    Mzmerz Member Posts: 1,054
    edited July 2016

    I'm so sorry.

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited July 2016

    So sorry to hear about your progression. Wishing you good days to come and peace after that

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited July 2016

    Oh no, I'm so sorry. Please know that you are in my thoughts and my heart.

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  • Iwrite
    Iwrite Member Posts: 870
    edited July 2016

    Kebab,

    Bummer indeed. Sending good wishes to you and praying for peace and courage and rich times with family and friends.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2016

    I'm so sorry Kebab. You will be in my thoughts and prayers.

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