Summer Rads 2016

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  • Cancerpickedthewrongone
    Cancerpickedthewrongone Member Posts: 33
    edited July 2016

    I start radiation on 7/13 anxious to get this started so that I can finish. So grateful to have all of you share your experiences

  • ejmann44
    ejmann44 Member Posts: 89
    edited July 2016

    I was told I could swim in our saltwater pool as long as I rinse off as soon as I get out. Saltwater pools still have chlorine, just not quite as drying. I was told to stay away from public pools like the one at the gym. I had number 7 today and so far things are good. I use Miaderm as much as possible and at night add aloe. The skin under my breast feels hot. I have large breasts so they aren't getting too much air. I do sometimes tuck some fabric under there to absorb moisture. I'm lucky that I am a stay at home mom and can put on a my house coat type of pj and just hang out. It is too hot to be outside in FL.

  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited July 2016

    I start this summer, too. Had the initial consult with the RO this week. She's mostly all business and was a bit rough with the breast exam. I was telling my 10 yo daughter that it was like she was trying to milk a cow. That cracked her up.... 10 yo humor is all about bodies and body functions. I have my Sim next Thurs. Then I start tx the next week. Elaine, I showed my almost 5 yo (bday Tues) the amazing countdown poster your kiddos made. She said ooo they put ice cream cones on it (the flying hearts). Made us smile.

  • Terrywithawhy
    Terrywithawhy Member Posts: 8
    edited July 2016

    Singing: "I'm radioactive, radioactive, la la la". Had my first radiation treatment today. 15 more to go

  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    Way to go Terry! Are you glowing? (Hehe)

    I am up to 13/30 and getting pretty tired. Been going to bed earlier and earlier :) skin still good! It's 8:11 pm, still light outside and I am laying in bed!

    How is everyone else doing?

    To all the newbes, my RO said rads are just a boring errand you have to do daily and it's true. The ladies are super nice and I do look forward to see them...totally bubbly personalities but it's a boring errand like grocery shopping!

    Weekend break time now, have a good one!

  • Truffles1214
    Truffles1214 Member Posts: 31
    edited July 2016

    Carlsoda - I love my techs too! They are great! I'm not going to miss radiation, but I will miss them. I will have to think of something special to give to them on my last day.

    Ddaisy - I have found the fatigue with rads to be much better than with chemo! There were some days I couldn't even get out of bed with chemo. I've been a bit tired on rads, but nothing a little nap or going to bed early won't cure.

    Valstim52 - I had the Red Devil too. I'm thankful that is over! I didn't have an appetite during chemo. I lost 20 pounds. My appetite is back full force with radiation! Good thing, I was down to 103 pounds and my nurses were starting to get worried. It seems to be different for everyone.

    I had 19/25 today! Six more to go! I'm starting to get a little worried. I'm dark pink, very itchy and starting to peel a little. I saw my RO on Wednesday and she said my skin irritation is what she expects to see at my stage in radiation, but when I passed by the NP today, she asked if she could take a look. She said I need to start using the Aquaphor at night, maybe even trade off Eucerin, Aquaphor all day, and up my protein. She wants to take another look at me on Monday. She is concerned I might start seeing some skin breakage. I was really hoping to get through radiation without any skin breakage. I'm terrified I'm going to get an infection. I'll do what I'm told and hope for the best! I know a lot of us are itchy and my RO suggested something that I had not heard before. She suggested taking some Benedryl a half hour before bed. It should ease the itch and help you get to sleep. I might give it a try if my itching gets any worse. "Good luck" to the ladies starting rads, "#RadiateTHIS" to the ladies currently going through rads and "congratulations" to the ladies nearing completion! I'm already dreaming about the gigantic margarita I am going to treat myself to when this is all over! Have a great weekend!

  • ejmann44
    ejmann44 Member Posts: 89
    edited July 2016

    Love my family - Glad I could make you smile. You can make one. Just cut up some construction paper and make links. We chose to hang it in the kitchen.

  • 2016CancerDX
    2016CancerDX Member Posts: 6
    edited July 2016

    I start my radiation Monday. I will be having 32 treatments in all. A bit scared about all of it but wanting to get it done and over. My RO is wonderful and I feel confident with the plan - just all the unknown side effects.

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited July 2016

    Nice! That was my post to my family a few weeks ago when I started- my theme song as well for 4 more weeks!

  • Rowmac46
    Rowmac46 Member Posts: 7
    edited July 2016

    hi. I start rads tomorrow. I have to say I'm feeling nervous. My biggest concern right now is bras/support. I'm a 42d and the idea that things could get tender worries me. What have you ladies done to handle it? I saw some just used t-shirts or tanks but they won't give me any support. Any ideas are welcome. Thanks

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Rowmac46, so far I'm using a tank with a shelf bra, and sometimes a loose sports bra. My shirts are really baggy so i can get away with it.

    Welcome to all just starting. I am/was nervous but after they get you all situated it really is not too bad.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    Rowmac, I just wear cotton sports bra in a larger size, I still sleep in them too as my incision site is still sore. It helps me.

    Good luck tomorrow....it's a piece of cake, no worries

  • Boston2015
    Boston2015 Member Posts: 15
    edited July 2016

    1 down, 32 to go! I was really nervous about this but it was not nearly as bad as I thought it would be. Now I just have to hope the side effects are not too bad

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited July 2016

    The soreness is just starting now with me. More in my underarm but also some weird pains off and on in my breast. Had number 12 today. 4 more whole breast and then next week 5 boosts and I will be done.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    I had #12/33. I'm very sore under my arm, and my neck area, but still doable. I looked and it's all red though. They had to re do a lot of my positioning today, and it almost made me have a meltdown. Definitely taking a xanax tomorrow.

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited July 2016

    @ Karen - that is great, you are more than half way there! I don't know if your pains are like mine, but I tell my lovely technicians it is like someone is constantly stapling my boob. I did my 14th treatment today- 14 more to go, then 6 boosts. But, half way through whole breast. I told my Rad Dr today I have been using cabbage leafs to relieve some of the "heat" following the treatments and he told me to look into Lindi skin cooling rolls- went and bought one today (they are about $40 bucks - not cheap!) but you leave the roll in the refrigerator and just cut off pieces as you need them. I love it so far. Best of luck to you all through the rest of the week, and the rest of your treatment.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    Valstim...I am sorry they had to do a lot of re-positioning but just remember it needs to be done right, we can't have radiation going any which way :). At least the appts are super fast!

    Karen...ALMOST DONE!!!

    Jennifer, I had my 14th treatment today too! I haven't noticed any heat or soreness yet, but it is getting red. It is funny how you can see exactly where it is hitting...such an exact science! I think my main complaint so far is just tiredness. Our bodies must be working hard to heal the healthy cells on a daily basis

  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited July 2016

    You know, that is actually what bugs me the most Carlsoda, I am doing this on my tummy and letting it swing like a pendulum - ha. Gravity is not on my side! Anyway- I can't see a thing because my face gets placed in this weird head hammock while laying on my tummy - I can't see a thing!

  • VLH
    VLH Member Posts: 1,258
    edited July 2016

    I've noticed almost everyone is having whole breast radiation. Were the shorter courses considered? Rejected because of insurance or lack of long term studies on efficacy / side effects or ???

    I'm having my lumpectomy later this week and, looking ahead to radiation, am thinking about my F-G cup bosom. Since I've lost 100 pounds , reduction wasn't likely to produce good, symmetrical results and I ultimately balked at a BMX. Thanks for sharing your experiences and suggestions!

  • Jacklin
    Jacklin Member Posts: 162
    edited July 2016

    Hi all, today is 22/25 for me and I have found rads to be much easier than chemo for sure. Yes, I am experiencing more fatigue now than when I first started, but nothing like the all-day sleeping I had with chemo. Our bodies are working hard to repair the damage that rads is doing, so sleep is the best remedy. Like many others, my RO has said no swimming in chlorine-based pools, she's said nothing about salt water, but then again, we're land-locked here so there's no salt-water nearby to talk about. Every day I do a saline soak when I get home from rads, followed by aloe from my aloe plants and then Flammazine (silver-based prescription cream) for the blistering. My RO said the blistering is a result of the boosts to the skin I'm getting every other day - my tumour was just below the skin surface so this is just making sure the cancer wasn't in the skin (my MRI showed thickening of the skin). I agreed to this as I figured I wanted to throw everything possible at the cancer now and not have any regrets later. I'm having whole-breast radiation because I have triple negative BC and the tumour was quite large. Due to my ALND, I have no feeling in my armpit so the redness doesn't bother/irritate me. I continue to put Lubriderm on my skin that's not's blistered; hint: I keep my creams in the fridge so it's nice and cool against my warm skin. I do have some tenderness on the rads side, this is due to the irritation from the rads itself, very normal. Sometimes i also experience electrical shocks too, this is from the nerves (cut during surgery) being aggravated by the rads. Apparently this will quiet down once rads is finished. Hope everyone has a wonderful day today, don't forget to keep yourselves hydrated internally by drinking lots of water.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Same here Jacklin. I had skin involvement and did not want to worry later if recurrence, what could have been done. This way ce lie vie.



  • jenniferjo71
    jenniferjo71 Member Posts: 19
    edited July 2016

    Same here. I opted to go as 'strong" as I could. Some days I regret that, but I never want to look back and think "maybe if I did more.." although, my biopsy was a bit strange. They removed the idc tumor, but in front of the tumor (possibly part of it) was a small patch of DCIS, so they wanted to do 6 1/2 weeks (but who is anyone kidding - 34 treatments is 7 weeks, and the machines do break down, so it is really more like 8 weeks.)


  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Yes, machine breakdowns, holidays. It just drags on.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    Drum roll.....I am officially half way done! 15/30! It feels great as I can see the end of all this nonsense! :

  • Cancerpickedthewrongone
    Cancerpickedthewrongone Member Posts: 33
    edited July 2016

    I begin RADS tomorrow, this has been a long time coming and now that it's almost here, I am a bit nervous; would love to have RADS be a smooth ride 😊

    Allie

  • Boston2015
    Boston2015 Member Posts: 15
    edited July 2016

    When did everyone start to get pink or red? I am wondering when I can expect this to happen.

  • Jacklin
    Jacklin Member Posts: 162
    edited July 2016

    Glad to see I'm not the only one who decided to throw everything I can at the cancer now, I don't ever want to wonder "if only I'd....."

    Carlsoda - congratulations at being at the 1/2-way mark. You're on the home stretch now - you can do this.

    Allie - I was very "nervous" for my first few treatment days. Actually, I felt in shock after the 1st treatment and wanted to shout to everyone "can't you see I just had my 1st rads and you're so busy doing busy stuff!". I do deep belly breathing when the technician leaves the room and before the treatment begins, this helps me relax and makes it easier to hold my breath for the treatment duration. During the treatment, I sing songs in myself in my head, or pretend I'm snorkelling in the ocean and seeing beautiful animals in the ocean (since my cancer is on the left side, I have to wear a snorkel device). Sometimes I also wonder about something and then end up asking the technicians lots of questions when they come back in the room. Don't be afraid to ask what's happening and why, it has helped me to understand what they're doing and why it has to be done. I have found rads to be much easier than chemo. I hope that you'll find rads very smooth too.

    Boston - I found that I got pink around the 8th treatment. Each night I'd be pink-red on my chest but it would be gone by morning. It's only the last few days that the redness is still there in the morning. My underarm is very 'tanned' but my chest is definitely red. Today my RO complimented me on how 'well' my chest is doing, she expected that the blisters would be open and oozing, but she said my chest look much better than she expected and to continue doing whatever I've been doing. I do saline soaks when I get home, then aloe and then flammazine from the fridge, repeat saline and aloe as much as needed, flammazine is 3 times per day.

  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    I have a question, how many of you have X-rays taken every 5 or so treatments? Today I had my X-rays and the technician actually came back in the room half way through to re-measure me. I know they do it to make sure the treatments are where they want them, but I was wondering if this is standard? One thing I have learned is it seems everyone's plan is slightly different (which is scary!)

    Boston, I had treatment #15 today and I am pink but that's about it. Just putting aloe on twice a day. I think it gets worse closer to the end of treatment but we are so different. I guess we will see!

    Jacklin, funny how you mentioned your first treatment. I felt this way too...hello people, I am going through radiation and everyone else is just living their lives. I guess it's the shock of having cancer!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Carlsoda, I seem to have x-rays frequently too. They have to make sure the positions are correct.

    Im now pinkish all over #13/33(counting 5 boosts).

    I was and still am anxious,but I hate to keep saying it, it's a breeze (no pun intended) compared to chemo. I do have to say, even with all the re-positioning ( I have to hold my breath etc) it's going by rather smoothly.

    Jacklin, I want to say that on a regular basis, HELLO TO ALL, I JUST HAD RADS!!!!! .. And then I take a xanax and I'm all mellow again. :)

  • Kroge6
    Kroge6 Member Posts: 14
    edited July 2016

    Hello summer rads friends. I start on July 26th. I had to have one breast deflated so it wouldn't be in the way of rads. I am super bummed to be lop sided. I just feel so overwhelmed with this whole process. Good luck to all of you who are just starting, in the middle, or almost finished

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