Prosthesis Advice

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Kali44
Kali44 Member Posts: 65

Hi everyone, I am recovering from a mastectomy on my left breast with delayed recon. My PS advised that I wait until after rads to have recon done, no TE. So I was wondering if anyone else was like me and got prosthesis while waiting for rads and if so, did u get fitted for them or just got them online?

Walgreens has this option but I am unsure about which one to get that will be comfy during the days but still look good. Any help would be appreciated. The

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2016

    I'm like you in that I had a bmx, then rads, and was told I should wait at least 6-9 months after rads before any recon. I was fitted for prostheses after the rads had healed a bit, though. Before that, I wore Coobie bras with the foam inserts (I was small before bmx).

    If you have a place to get fitted for bras and prostheses, I highly recommend doing so. I was very fortunate that my insurance covered fittings at a shop that specialized in clothes for mastectomy patients. I would not had ended up with the same result if I'd tried to do it myself and ordered online. The lacy bra I thought would work turned out to be painful on my radiated skin, so I went with the seamless bra. The sizing of the bras and the prostheses turned out to be different from what I expected, too. The fitters were experienced and knew their stuff; they were all former bc patients and I really appreciated their advice.

    Good luck with everything! If by any chance you're in or near NYC, I'll pass along the name of the place where I went.

  • Irish65
    Irish65 Member Posts: 18
    edited July 2016

    I had a lumpectomy with a lift and reduction but the non affected breast won't be done until 6 months after radiation. I was told that my insurance covered a "balancer" and 6 bras a year. It's my understanding that just like reconstruction, its mandated that prosthesis be covered. My PS gave me the name of a place to be fitted that participated with insurance. I too am outside NYC (Orange County) although I was overly thrilled with the place I went, they were sufficient.

    rainnyc - can I ask where you went near or in NYC? I still have 3 bras that I haven't gotten and I'd like to try a different place then where I went the first time.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2016

    Irish65: The shop is called Underneath It All. I recommend them highly. I went to another place first and really disliked the atmosphere, so I left without placing an order.

    It's a short walk from both Penn Station and Grand Central.

    Website here: http://underneathitallnyc.com


  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited July 2016

    I had BMX with delayed reconstruction. I didn't even know my insurance would cover professional prosthetic services until a friend of a friend who was in that business told me. I had a few foobs that I tried and they just didn't work well. I had the fluffy fill type and they floated all over and didn't stay where I wanted them to. I loved my prosthetics though. The provider was so knowledgeable and caring and I got to pick two pretty and perfect bras. I only wore them a short time before I started recon but it was totally worth it. Good luck to you

  • Irish65
    Irish65 Member Posts: 18
    edited July 2016

    Thanks rainnyc!

  • Kali44
    Kali44 Member Posts: 65
    edited July 2016

    Thank you for all your replies and great advice getting fitted rainnyc I just looked for the the coobie bras and found a website that carries this bra and was wondering which inserts you bought. I know u mentioned foam. I was also wondering whether they stayed in place as you moved around or if you would have preferred something more substantial.


  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2016

    Kali, I bought Coobies off their website; they seemed to have a deal in place most of the time that gave you three bras for the price of two. I got the basic bra; I forget the name, but it's their best-seller. The bras come with a very thin, removable foam insert. So, since I got three bras, I just combined the three inserts--there was plenty of room in the cup--and that became my prosthesis during the time I was healing from rads. It gave the effect of a small A cup. There actually is enough room in the Coobies for my regular prostheses, and I have worn them in it, but I prefer the mastectomy bra that I was fitted for. I think if I was getting Coobies for my everyday bra, I'd probably get the kind with the wider shoulder strap, still, the mastectomy bra feels more secure and doesn't move around. I think because the Coobie bra is lighter, the prostheses drag it down a bit. It was pretty comfortable when I was healing from rads and wanted something light.

  • Kali44
    Kali44 Member Posts: 65
    edited July 2016

    Hi rainnyc I ended up on curediva and ordered an insert and mastectomy bra. I am much bigger than you so if I bought the coobie I'd still have to buy a mastectomy bra. Anyway, I figured I'd get a bra that would comfortably hold a prosthesis firmly, to use after rads, as my surgery won't happen until Dec 2016/Jan 2017.

    Anyway, hopefully the combo I bought will work until I can have surgery completed so, thank you for your help

  • Mariangel43
    Mariangel43 Member Posts: 136
    edited July 2016

    Kali44,

    I had my mastectomy on June 27. I wanted to have my reconstruction done after therapy has ended. However, when I went to see my rad onc, she told me she won't do anything until I was evaluated by a PS, which shocked me. I had to go to my health insurance plan, ask for the plastic surgeons' names and put me on God;s hands because I don't know any of them. Also my skin hurts a lot and I cannot even tolerate the minimum friction of clothing. When the PS puts the expansor, the onc will then apply the radiation. You are really lucky.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2016

    Hi Kali44, I'm glad you found a solution. Good luck with everything!

  • Kali44
    Kali44 Member Posts: 65
    edited July 2016

    Hi everyone

    I just wanted to say thank you for all your replies. I really appreciate it very much.

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