My positive experience with Tram flap

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Anonymous
Anonymous Member Posts: 1,376
edited July 2016 in Breast Reconstruction
My positive experience with Tram flap

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  • PNWBCHgirl
    PNWBCHgirl Member Posts: 115
    edited July 2016

    I wanted to give my story about my experience with my tram flap.  When I was diagnosed with DCIS grade 3  and after 2 MRI's a 2nd biopsy and a tumor board review I was given the ok to have a lumpectomy with radiation. I was happy with that. I thought great I will be able to keep my breast and move forward. I was thankful my breast cancer was still what they considered pre cancer and contained. Had my lumpectomy October 7, 2014. My pathology came back with no clear margins  and because of where it was there was no where for my surgeon really to go with out disfiguring me.  We opted for A unilateral mastectomy and I was to meet with a Plastic Surgeon, so I would be able to make a informed decision about reconstruction.

    My appointment with the Plastic Surgeon went very well and he and his staff made me very comfortable from the very beginning, they are wonderful to work with.  We went through my medical history, my diagnosis , we talked about expectations, what I wanted and what I already knew about reconstruction, his recommendations for my body type and the different procedures that would work. Ultimately it was up to me if , when and what type from there.

    I knew from reading the OHSU site, Mayo clinic, John Hopkins and Breastcancer.org about tissue transfers and my Plastic Surgeon was saying I was a candidate for a Tram Flap, it was making sense to me . I wanted to stay natural , keep my left breast , my right breast would be made out of my abdomen even though I knew it wouldn't be breast it would be me.  I would be keeping my left and still have sensual feeling there.  Let's face it;  to some of us that is important. Also I finally was able to do something with the baby flap I had for the last 23 years. Sounded like a win win to me. 

    To try and keep this short which I do talk a lot so that may be hard. I chose Tram Flap.  My mastectomy with tissue expander was scheduled for late November 2014.  I went through tissue expansion which I am or was a 38DD , so we're talking a lot of tissue expansion , I did have some issue with some scar tissue forming at the top. But we worked through it. 

    My tram flap surgery was scheduled in June 2015, 7 hour surgery, no need for my banked blood to be used, 5 days in the hospital, took a lot of rest, had a little trouble with coming off my pain medicines and anxiety. But Salem Hospital did a fantastic job monitoring me and helping me through recovery. No infections and yes I couldn't walk straight for 3 weeks , I also have limited mobility and the things you thought were easy to do , like roll over in bed are not anymore , or lift your legs up when lying flat on your back. Your 4th AB does have a function.  All in all it has been a positive experience. It is time consuming and you do give up somethings. You gradually get strength back. I am one year out I am taking small hikes again , riding my bike, and exercising almost to my same level. I am currently at 10 miles a day on my stationary bike and I was at 12 before tram flap. 

    The only negative I really would say is the 3 drains but I also realized a very necessary and important part of healing. 

    During my nipple reconstruction and breast lift on my left to balance them out in November 2015. My plastic Surgeon sent in the fragments ( from the left lift)  the pathology found DCIS my tissue. So between him, my surgeon , my husband and I . We chose a mastectomy for my left I am currently in the process of tissue expansion and will be having a implant and nipple reconstruction done in August. 

    My only regret about My Tram-Flap is I didn't opt to do both breasts during my first Mastectomy. because you can only do a tram flap one time.  But I feel very blessed to be placed in the hands of such wonderful DRs who have given me outstanding care. 

    I thought it was important to share this because the one thing I did not find was positive stories about reconstruction. People like to only tell about the bad surgeries and the bad outcomes. Almost to a scary level which I am sure they discourage a lot of women from seeking what they really want. I would read them and think, this is probably really in reality a very small percentage compared to the thousands of reconstruction surgeries done out there. And it is too bad more positive stories are not told. Even though it was a long recovery and I truthfully am still recovering , I would do it again. My advice is ask plenty of questions to your Dr's and know exactly what you will be getting and looking like in final result. Make sure you have someone to help for a couple weeks too. 


  • not
    not Member Posts: 203
    edited July 2016

    Thank You for posting your story. It sounds like you went through a lot of pain and suffering but it was worth it. That's what I'm trying to decide if I'm physically ready to go through that much pain and suffering at my age and if it's worth it. I'm 62 and just retired in part because I can't physically do my job after being so sick in 2012 with a dead colon and BC at the same time. The colon was 100 million x harder than BC. It took a long time to heal, and honestly, I feel like I've aged 20 years from it, so I'm reluctant to go through more surgery which isn't really necessary except for a better quality of life mentally being single and unhappy with the way I look.
    Also being estrogen + and having this fat gut that stores estrogen it would be healthier getting a tummy tuck to use the fat for reconstruction. The fat wont go away from being cut vertically in half from colon surgery.

    There's so many pros and cons to weigh.

    I look at the photos of how they make breasts look so normal when there was nothing there, that gives me hope.

    I had her2++++, estrogen and progesterone + in Jan 2012, a skin sparing mastectomy on the left, chemo and herceptin. I also had to keep a colostomy bag for a year while I was on BC treatment and that was the worst thing I've ever had. I was so sick with MRSA from the dirty hospital, anemia and then got another blockage from losing so much weight and had to go back to the hospital for a month with an NG tube because they couldn't figure out what was wrong with me. It turned out to be SMA which only young anorexic women get. The cure was gaining weight so I had to have a feeding tube (that was awful, he put in one that was too large and I pulled it out as soon as I got home). Then I had to have another surgery to put my colon back together, which was major surgery that required 3-6 months off, but I had to go back to work after 1 month because they didn't give me any more time off. I can't believe I'm thinking of going back to the hospital for more surgery!

    On the positive side, I'm not getting any younger and it's free.

    On the negative side I don't want to have my daughter move back to take care of me. I read of people being fine after tummy tucks, but in horrible pain after liposuction. I hope I don't need liposuction. I don't think I'd do it if he says I need it.

    I saw 3 docs in 2013 and I really liked one who sounded like he could make me look normal all with tummy fat, no implants, and getting a tummy tuck was a real bonus with the situation I'm in.
    I was surprised the other 2 docs didn't do tummy fat reconstruction (IDK the name for it) and they sounded like perverts flirting with their sexy assistants. Yuk.

    I could go on and bore you forever.

    Thanks again for sharing your experiences. It's helping me understand how much time it takes to heal.

  • not
    not Member Posts: 203
    edited July 2016

    I'm a little worried putting belly fat into my breast would add estrogen to feed cancer, but there's not supposed to be any cancer there now. I was told there's no flesh in there, just a shell of skin.

    So, is adding fat from there to here dangerous? Who knows.

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2016

    my belly fat seems to be right at home. I continue get sensation back.

  • not
    not Member Posts: 203
    edited July 2016

    If you don't mind there's a few things I don't understand: why couldn't you walk straight for 3 weeks after surgery? Is it common not to be able to roll over a year after a tummy tuck? Can you sleep on your side now? I'm a side sleeper. I could sleep on my side when I was cut vertically.

    Your recovery sounds long and hard and you're over a decade younger than I am. I'm glad I didn't read all the stores you say are much worse than yours. I'm afraid to do it now.

    So, a tummy tuck used to form a breast is called a Tram Flap. You're lucky you have such good doctors and a husband. All the best to you next month. Without the tummy surgery it should be much easier and your recovery faster.

  • PNWBCHgirl
    PNWBCHgirl Member Posts: 115
    edited July 2016

    I 'll try and answer some of these questions and definitely want to say I have had fantastic Dr's and Surgeons. Whatworked for me may not work for someone else I can only share my experience as a patient who chose to do a tram flap reconstruction. A tram flap is only one type of tissue transfer surgery out there for breast reconstruction. They have many other options that are out there, it all depends on your health , body type and what your Surgeon is well trained in. A pedicle tram - flap is when they take a portion or all of your 4th ab ( the lowest) muscle and blood supply and transfer ( still attached) by tunneling it with other tissue to form a breast mound.

    Since they have removed that muscle it takes time for your body to get used to working with out it. A tram flap gives you the look of a tummy tuck , but a tummy tuck usually does not take muscle away it takes fatty tissue and extra skin. They may repair muscle when doing a tummy tuck but generally my understanding is they don't remove muscle. So by removing muscle to make a breast mound it is a longer recovery time.

    I couldn't walk straight after surgery because my Surgeon has sctrict guidelines of what you do and when because he has his patients best interest and wants to set his patients up for a successful recovery . With a tram flap you have lost some muscle tissue and skin, your stomach has been tightened up and you need to give your muscle tissues time to heal and repair. Gradually every day you stand more and more straight.

    Yes I can now lay on my side , I use a pillow because that is what is comfortable for me. But i started sleeping on my back after my mastectomy and pretty much gave up side sleeping.

    I would agree with meow13 that my tummy tissue has made the transition well to my breast.

    As for risk of cancer and if this procedure or another tissue transfer will work for you, especially with all you have been through already and if you are a good candidate for it especially with your other surgeries. I encourage you to ask your plastic surgeon. Ask your other Dr's what they think too. Your quality of life and health is important.

    I Made the decision to do this not because of the tummy part of it , I truly wanted to be me and not have an implant . It made sense to me using my own tissue would mean I still had my own tissue as my breast and they would feel the same, look somewhat he same and grow old the same and gain and lose weight somewhat the same.


    I hope this has helped .




  • PNWBCHgirl
    PNWBCHgirl Member Posts: 115
    edited July 2016

    To Meow13yes I totally agree so do I . And it has worked out well for me


  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2016

    I only had left side done and I was able to sleep on my side. I got by with Tylenol pm at night.

    I had weird sensations while healing. I didn't wear jeans for maybe 3 weeks. I rested alot. There really wasn't much discomfort. I could stand and walk ok.


    I would do it again

  • PNWBCHgirl
    PNWBCHgirl Member Posts: 115
    edited July 2016

    I pretty much got by on only Tylenol too, after the first 3 weeks and before that it was very little muscle relaxers. I am still really active I just now am very aware if I over extend myself and my body will definitely tell me when not to push it.

    I also did not wear jeans the for about month either, I also had a binder to wear not only on breasts but also on lower abs. I wore sundresses

    My hope in writing these posts is to encourage other women not to be discouraged and listen to all the bad stories you can find on the web. Follow your instincts, listen to your Dr and ask questions , don't just go by what you read or a friend of a friend told you about their experience. It was definitely the right choice for me and it has been a good experience. Everyone is different and everyone heals at a different pace.

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