Anyone have ER+ at 100%?

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LoveMyFamily
LoveMyFamily Member Posts: 58
edited July 2016 in Just Diagnosed

I do... ER+ came back 100% on biopsy pathology and 99.9% on tumor pathology.

However my PR+ was low... about 14% on the biopsy and 4% on the tumor.

Just curious.


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  • mombuns
    mombuns Member Posts: 5
    edited July 2016

    Hi, LoveMyFamily. I just got diagnosed three days ago and am trying to plow through my pathology report. I am ER+ 100% and PR+ 100%. Her2 negative. I really don't know what this means yet but I am sure I will find out. Good luck. Will pray for you.
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  • cp418
    cp418 Member Posts: 7,079
    edited July 2016

    http://www.breastcancer.org/symptoms/diagnosis/hor...


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  • Carlsoda
    Carlsoda Member Posts: 249
    edited July 2016

    I am close, ER+ @95% and PR+ @95%. I think it's a good thing since we can cut off hormones to cancer cells meaning they shouldn't grow

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  • Lisey
    Lisey Member Posts: 1,053
    edited July 2016

    A lower PR value is not as good as a higher PR value. You should find the thread on Luminal A vs. Luminal B ER+ cancers... very illuminating.

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  • Lisey
    Lisey Member Posts: 1,053
    edited July 2016

    https://community.breastcancer.org/forum/108/topics/845324?page=1

    Here's the link to that thread. My ER+ was >95%, but the PR+ was low 5%... thus it's a little scarier..


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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited July 2016
    I don't think a 95% PR is anything to worry about. Just from my own observations it seems much less likely to have 100% PR than ER.
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  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited July 2016

    lisey, we have similar %%s... I asked my MO if I was Luminal A or B... he SD we would need to do more testing to find out but that my numbers were suggestive of B. My ki67 is 18%, not low, not high.

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited July 2016

    100% ER+

    Forgot the PR value...

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2016

    MIne was 75% ER+ but 97% PR+. MO says Luminal A.

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  • LM070917
    LM070917 Member Posts: 323
    edited July 2016

    I was 90% ER, 35% PR

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  • kathy1925
    kathy1925 Member Posts: 34
    edited July 2016

    100% ER +, 95% PR +

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    Lovemyfamily, I was Er+ 100%, PR+ 20%. Still awaiting mt oncotype test results. Originally Her2 neutral, but my Ki-67 was 20% and FISH said I was Her2 -

    Getting my genetics yes results on Thursday and onco on Monday.

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    LMF, I see our journey is almost identical. Have you already begun radiation? Do you have an oncotype score? Also, I see you are on Femara, have you started that already?

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  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited July 2016

    hi, dara! I haven't started Femara yet. Yesterday I had my Sim apt... got 4 "freckle" tattoos. Start rads on Wednesday. Still tender chested from lumpectomy. RO says it's from a large hematoma that will gradually go away. My onco dx score was 12 so no chemo for me. I'm 53, soon to be 54. How are you doing?

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    Hi LMF! I'm doing really well. Yesterday finally got all my genetic test results and learned that I have no mutations! Yea!! I'm driving an hour each way to go to City of Hope here near LA, and have been so impressed -- at least at first. Yesterday at my 4 week mark post surgery, I learned both the hospital and the lab messed up and my onco score won't be available for almost two more weeks. So frustrating! And genetics tests took 6 weeks to get results. The tests were returned June 29th but also learned yesterday that the delay was because of the doctor's schedule! Anyway, my recovery has been exception, I am fine after surgery but just waiting to move on. I have an appt with RO next Friday, but may now need to reschedule to wait for onco score. I got my dx 1 week before my 65th birthday, but as I've mentioned in another thread, am the 6th in my family to get bc, have several others with different cancers, and just lost my sister in October to bc. This support forum has been a lifeline for me! I'm staying really busy, doing photography, art, pottery, and enjoying family including 5 grandkids. I'm so fortunate to have found my bc as early as I did. Saw your posts that the tattoos hurt. Yuck! It's so helpful though to be prepared. I've been dropping in to the summer rads thread, even though I haven't started yet. I think it helps to know what's coming. Hope your weekend is great. Sure seems that our dx and timeline is so similar! Will be nice to follow along with each other. Do you go to the lumpectomy thread? Really a great group of ladies there also! Take care, Dara

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited July 2016

    Dara - I saw your comment about the tattoos and wanted to let you know that you can ask not to have them. Some ROs may fuss a bit but it's not uncommon for (informed) women to refuse them. I was marked up with Sharpies and the marks were covered with clear bandages. I had extras in case one came off between treatments but that did not happen. The techs checked the coverings and the marks every day, which added about 20 seconds to my treatment time, and refreshed them as needed. I have photos so that, in case (God forbid) further treatment is ever needed, we'll be able to ID the treatment fields. Tattoos are a minor issue compared to all the rest of what we go through but I am really glad not to have those permanent marks. If this is a concern for you, please do speak up to your RO. Good luck with the remainder of your treatment, whatever it turns out to include.

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  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited July 2016

    Dag, I never thought of refusing the tattoos... oh well. they are small, like the pinpoint of pencil lead I still have in my leg from 6th grade.

    Yes, Dara, let's follow each other. I was sorry to learn you lost your sister to BC... my sis smokes and I'm encouraging her to quit. She got a mammo right after I was diagnosed and she's fine in that department. She's younger by 2 years. Glad you got your genetic test back and that you are not a carrier. I didn't do a genetic testing. We built our family through adoption, so I'm not concerned that I'll pass anything on to my children. Re lumpectomy thread, I'll check it out. Thanks!

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    LMF, nice that you adopted. I just spent the day with my DD in Carlsbad and 3 of my grandchildren. She adopted a little boy from Ethiopia 4 years ago who just turned 5 this week. He's had a very hard beginning to his life and has numerous disabilities due to malnutrition, sensory deprivation, and medical issues his first year. We just love him to death and are so happy he became part of our family. She also has her own older son (7) and daughter (2). Today was a great day.

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  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2016

    95% ER 50% PR

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  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited July 2016

    Dara, gotta love a good day with the wee ones. So affirming of all that is good in this world. We had a good day, too. My youngest spent some of her birthday money at ToysRUs.... now she has the Peppa Pig car and camping van sets. My oldest spent some allowance $$ on Legos. We went to an arts and crafts (and more) fair in the hamlet of Beevercreek, OR, and came home with organic blueberries and zucchini. Yum.

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  • GraceB1
    GraceB1 Member Posts: 213
    edited July 2016

    ER+ 100%, PR+ 12%, KI67 4 HER2+ 6.1 (6.0 is the threshold)

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    LMF, this is too coincidental. Yesterday, I was bringing birthday presents for my middle grandson, but went to ToysRUs and bought big brother, little sister gifts for the others. Started to buy the Peppa Pig camper, but switched to the PP house for my granddaughter, and Star Wars Legos for my grandson. It's a small world.

    Grace, your pathology is so interesting. That is a high Her2 score. Hope you're doing well.

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  • live_deliciously
    live_deliciously Member Posts: 346
    edited July 2016

    Im 99%er and 99% pr. Her-. Ki67 was 30-40%

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  • josieg
    josieg Member Posts: 26
    edited July 2016

    I'm still trying to make sense of everything but I was diagnosed 100% ER+ve and less than 1% PR. Ki 67 15%. Haven't seen oncologist yet as need to get lumpectomy results back . Avoiding alcohol & sugar (which I hear is not good for ER +ve) & trying to be super healthy

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  • DaraB
    DaraB Member Posts: 945
    edited July 2016

    Hi Josie, I'm also still trying to get a handle on the whole Luminal A and B thing and the implications for treatment. I see my oncologist tomorrow, but there was a mixup with my onco test so still won't know the plan until around the 27th. I too have heard how bad sugar and alcohol are as they feed the ER+ cells. I'm trying to do more vegetarian and organic as well. My sister is in the Bay area and has been sharing lots of great recipes! Good luck.

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