June 2016 Surgeries!

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  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    To be honest it has not been nearly as bad as I thought it would be. It has been 2 1/2 weeks and I have been out walking my street since two weeks out when 5 out of 6 drains were removed, the first time they had me sit up in the hospital bed then move to a chair I was wondering what was I thinking but each day it got better. The drains and not being able to stand straight were the worse but from what I understand the stitches should be dissolving and standing up straight will get better this week. As far a results go, so far I am very happy I am pretty swollen everywhere so I don't know my true size yet but she said I would be smaller than I was ans she gave me a lift...lol. I was a DD before so I don't mind being smaller. My back will thank her. Reconstruction is up to each individual and if you are comfortable then that is all that matters.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    I'm glad to hear you're mending well. Yes... true it's so personal and recovery is so different for each person, isn't it?

    We decided to watch Newsroom on Netflix. We are on season 3. It's pretty good!

  • Clauclau
    Clauclau Member Posts: 88
    edited July 2016

    Thank you all for sharing some private information here. I feel vulnerable and the same time comfortable knowing that we are going through almost the same problem. I say almost because each one of us have different reactions or side effects from the BC process.

    I try to be strong for most of the time but today I broke down in tears because I wanted to go to the movies with my daughter but my husband decided to play doctor and he said it was too soon to be leaving the house. On top of that I found out that my hairdresser spreaded the news about my situation and I felt betrayed.

    Is anyone else super sensitive or is it just me ?



  • xxyzed
    xxyzed Member Posts: 230
    edited July 2016

    Clauclau, I wouldn't say I am super sensitive but I wouldn't be too happy with my hairdresser gossiping about me. I was somewhat annoyed by the drivelling chit chat of the secretaries at my oncologists last week when I was in the waiting room before my first chemo treatment and they were idly chatting to each other about a friend currently travelling and where their favourite travel places were and I was sitting there thinking just shut up, not very professional, and it's not like any of us cancer patients will be going anywhere anytime soon, if ever. Not my normal thought process so obviously somewhat sensitive. I don't try to be strong and I really don't like it when people say I am. It is what it is and I am what I am and that is ever changing

  • Clauclau
    Clauclau Member Posts: 88
    edited July 2016

    Thank you all for sharing some private information here. I feel vulnerable and the same time comfortable knowing that we are going through almost the same problem. I say almost because each one of us have different reactions or side effects from the BC process.

    I try to be strong for most of the time but today I broke down in tears because I wanted to go to the movies with my daughter but my husband decided to play doctor and he said it was too soon to be leaving the house. On top of that I found out that my hairdresser spreaded the news about my situation and I felt betrayed.

    Is anyone else super sensitive or is it just me ?



  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    I'm super independent. I'm not a nagger or complainer and hate to rely on others too much. Having to have so much help makes me feel grateful I have it and sad that I need it. It's an odd feeling.

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    I feel the same way it is the little things that get to me. Yesterday when I got out of the shower I sat down and covered up completely exhausted from taking a shower I asked my 9 year old daughter if she could put some lotion on mommy's legs and feet because it is too difficult to bed over to get to my feet. My family has been absolutely amazing and I could ask for better care but it does get frustrating when you can even pour your own glass of lemonade..lol

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    Thanks for he suggestion tsoebbin...I will have to check out newsroom.... I think I have seen most of the shows now on investigation id

  • Lolliipop
    Lolliipop Member Posts: 32
    edited July 2016

    My BS advised me to start doing exerceses at home at 2 1/2 weeks, lifting arms over head, putting arms behind back, etc. I see her in another month and she will then have me start PT. It's weirdbecause I have more mobility and less pain on my right side and that is the side that I had the nodes removed.

  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited July 2016

    yeah in the beginning I had people doing the gossip thing and I nipped it in the bud. I decided to control the messaging and came out publicly with the news. My place of employment is the only place I'm a bit private since I work from a remote office from the other side of the country- I chose to only tell my Vice President (who then went and told our president with my knowledge)... That took a while to forgive. So my sales force and all those who report into me know- but my colleagues in Toronto do not.


    As for restrictions, my PS and BS have been pretty good. Drains out on day 6, but told I could shower day 2. No lifting over 5lbs for 6 weeks.... No raising elbows over shoulders for 4 weeks.... I was given ok to drive at 1 week when I was off all narcotics for pain but was cautious. At that point I was also permitted to drink so long as I didn't use it as a pain killer and only drink in moderation, (glass of wine with dinner etc) my PS said to be careful with high fives and big hugs as well. My pain is largely just the alloderm that is stitched to my pectoral muscle in several spots to create the hammock effect where my implant is sitting. It is super tight along the bottom side of each breast and into my cleavage. Still have a fair amount of swelling under my arms. I am just over 2 weeks out and have slept in a bed with a wedge from day 2, but miss sleeping on my stomach! I do a couple excercizes but not a ton until 6 weeks as he wants the implants to settle and not disrupt the alloderm stitchingso it's pretty low key here.

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    clauclau , I had my surgery on the 30th also. Last Fri I went to the movies with my kids. I get so stir crazy. I was soar and tired but I was happy that I did it. Do what your body tells you it's ready for. Each of us heal differently so you should listen to yourself. And I'm planning on going for a drive today. I just need sunlight. I figure if I can sit on a couch then I can sit in a car. My biggest issue at this point is nauseous.

    I know what you mean about the mood swings. I'm not normally emotional and this has turned me into a crazy girl. But I actually told the town gossips on purpose. I don't like retelling the story over and over. This way they do it for me. But I've really felt the need to tell all the women I'm close to because I want them all to know about the "insane itch". That's what tipped me off. No one talks about that and it saved my life. I found out about this from another friend who had it a few years ago. And if she was brave enough to share her story to so many then maybe I could be that brave. Who knows maybe you will save another life. And maybe seeing it like that way will make you feel better.


    As far as Netflix I have been trying to watch shows with my kids. My oldest son and I have watched "Flash and How I Met your Mother." My oldest daughter loves "Gilmore girls and Greys anatomy." My younger ones I've watched Rio and every animated movie out there.


  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Dawn, 6 drains!!! Doesn't bear thinking about. I am having the DIEP in September.

    Clauclau, as far as the chemo, it won't interfere with the expansion. Just be sure not to schedule fills on your bad days when you won't want to go out. I've been doing chemo since January. Recently finished the chemo proper, but still dealing with the side effects, and having targeted therapy infusions.

    This week I've just felt like my life is being taken over by aliens in white coats. 9 medical appointments in 4 days. It's like a full time job just going from one doctors office to the next. I'm so tired of it.

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    my plastic surgeon told me this past week she often tells patients that the drains are worse part of recovery and I would completely agree with her. One has been a blessing😃.

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    Anyone having 4 or more drains this little kit was a god send. My hospital don't do anything for drains expect a lanyard around the neck, I could not imagine. My plastic surgeon recommended this. The kit comes with two belts (one for showering if Dr. OK's it) and cups for measuring and a sheet to write the output down on(we made copies).

    www.birdcronin.com

    Just put 0814 8221 I the search field and it pops right up.


    image

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    Dawn, I was given a mastectomy kit to bring home with me and they gave me a few surgical bras. I had the cups to measure the fluid, the sheets to keep tract the drains' activity, small mirror, lanyard and belts to use when showering, pads to put underneath the bra etc.. they even gave me gloves and alcohol wipes...I didn't have to buy anything, really. I was grateful they made it a bit easier by providing all that was needed.


    P.s. Hey girls, I had a beer last night (whoo hooo) it felt darn good but I didnt take my narco afterwards bc I didn't want to mix them so I woke up with some pain. Can't wait for the day that I could sit down and have a glass of wine over dinner with my girlfriends

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    How nice of them,.My nurses gave me a couple of pads and alcohol wipes and that is about it. The nurse navigator came around and gave me a bag that had a couple lanyards and a little pillow thing that attaches to the seat belt. Each hospital is different something to look into before surgery.


    Oh and how nice a beer sounds....soon😉

  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    My hospital provided nothing when discharged. I'd love to get a foundation going to fill that gap. Just hearing what other hospitals give is helpful.

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    oh Dawn, when we left , the valet guy outside asked us if we wanted a pillow, and he went to my room on the 5th floor and brought down my pillow. I thought it was extremely nice of him.

    Tsoebbin, the kit was a box with everything you need inside ( not the gloves). If I'm not mistaken it said " mastectomy kit". I've got the feeling that the kit is probably sold to hospitals, and it's probably up to the hospitals to provide it to their patients.

    I wonder if anyone else received such a kit when they left the hospital.

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    I just went off of reading on here what I would need especially with the plastic surgeons recommendation of the drain belt.

    I can say the nurse did bring me in a bottle of chroloseptic spray when I was brought to my room when I asked if I could have biotene and that really helped with the sore throat the first couple of days.

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    so I noticed today that my implant are not even at all. One is about 2 inches higher. Is that normal or did my PS mess up?

  • barbski60
    barbski60 Member Posts: 39
    edited July 2016

    just finishing up Downton Abbey on Amazon Prime - but looking forward to getting up to speed again.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    I loved Downton Abbey. So well done!

  • Sue555
    Sue555 Member Posts: 3
    edited July 2016

    Hi all. I'm new to site and this is first visit and post here. BC missed at mammogram in January. Found a lump early May. Had mastectomy on 14th June, problems with drain after but resolved after few days. Still have fluid - when is it likely to go completely? Weeks/months/years? Pain (felt like burning) just started to subside but now more pain under arm. Any thoughts on timescale of pain etc. Also, when is cording most likely? Worried that will be next. Should I massage scar/underarm? Due to start chemo in August. No radiotherapy needed.

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Welcome Sue!

    Cording is most likely within a few weeks of surgery. It's annoying but totally curable with PT. You should gently massage the scar tissue, it helps to break it up.

    For the pain, it really depends on the source of the pain. Most post surgery pain should subside within a few weeks, but nerve pain can take a lot longer. What chemo are you having?

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    How long after your surgery did you guys see your oncologist and find out about treatment? I'm so mad right now because they set up the appointment for tomorrow which is a week and a half after my surgery. They just called me and canceled it because they didn't submit for the onco Dx test until last Friday and won't have the results for 2 more weeks. So I won't know what my treatment is for 3 1/2 weeks to a month after my surgery. All of this completely takes over my summer. I'm not happy at all. I know they found 4 tumors of mixed type. I'm pretty sure that tell someone that it's aggressive. Grrr

  • Lunderwood
    Lunderwood Member Posts: 125
    edited July 2016

    Hi Mom2fourplusmore - I too am waiting for Onco Dx test and also a 3rd party pathology review before my DO decides on treatment. In some ways it is good that I can be off the hormone therapy (I had 6 mos prior to surgery) for at least part of the post surgery recovery time but on the other hand it's just more to worry about. I had my surgery 6/15 so it will be about a month for me as well. I hope I can give my employer some sort of update or timeline for return to work this week! Hang in there!!!

  • Dawn41
    Dawn41 Member Posts: 54
    edited July 2016

    Hello, I met with the whole team two weeks after surgery but the onco test was just sent out so I have to go back in three weeks. I know I will need tamoxifen and no radiation but that is all I know so far. Waiting is a pain

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    My first MO appointment is tomorrow (one month from the surgery) and my oncotype test is not back yet...I am hoping they will have it by tomorrow

  • silviah
    silviah Member Posts: 46
    edited July 2016

    I'm trying super hard to stay positive. The oncologist recommended a PET scan before I start any chemo. That is scheduled for this Wednesday...she said we should have results by Friday. She suggested the PET scan to see if it has spread anywhere else.

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Oh Silviah my heart goes out to you. Spread is not likely but the waiting to find out is terrifying. I've had 2 PET scans, one before and one after chemo. I actually had a champagne dinner to celebrate being "only" stage 3 when the results came back negative for spread. Make sure someone really is going to call you on Friday so you don't have to wait over the weekend.

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