HELP- MRI showed 7.5 cm Tumor

Quite a few people have large ILC tumors at diagnosis probably because it is more difficult to detect.

Try not to be too alarmed about the size, if it has not spread outside the breast the prognosis should be good.

What was the biopsy showing as far as Nottingham score and estrogen progesterone status? Also HER2 is a good indication of aggression.

Really it how well it will respond to treatment, I wouldn't get too hung up on size.

Mine did not show up on any imaging and was 7.5cm. 2 nodes positive. Coming up on my 6 year diagnosis date. I had neoadj chemo and it shrunk it significantly then surgery and then radiation. You are going to get through this. One step at a time.

My breast surgeon said MRIs are 99.9% accurate...till he got mine wrong

Mine was supposed to be 7mm and ended up 1.8cm, but as others have posted, theirs ended up smaller than expected. No way to know till they are in there.

ILC tumor size is less reliable for prognosis, so try not to let whatever happens freak you out too badly. I know it is so easy to say, but since there is nothing you can do at the moment, take deep breaths and wait for the actual information.

Best to you.

my tumor was 13.3 cm. giant! I've had double mastectomies, chemo, radiation,and reconstruction. Even though there was lymph node involvement I am doing well. A tough road in the beginning but hanging in there. Listen to your doctors and listen to yourself. Ask questions and be informed along the way. Good luck and God bless you.

Hi there. I know how scary this is but I also have a success story. My friend was diagnosed with ILC 5cm and 6 positive nodes. She had a BMX, refused the recommended chemo but did Arimidex for 5 years. That was almost 15 years ago and she is fine with no recurrence. Hope that helps and good luck to you. Please keep us posted....

dtad, they probably thought your friend was crazy not to do chemo. I think they under rate the effectiveness of AI drugs. I didn't do chemo when my oncodx was 34, so many thought I was taking a huge risk. In life there is risk everywhere, I don't believe in chemo as an insurance policy. Good to hear I am not the only one who doesn't listen to everything doctors advise.

Meow.....Actually my friend's MO told her she was crazy not to do chemo but her BS was ok with it. Her daughter was about to have a baby and she did not want to be sick. They did not do oncotypes at that time but she would have refused chemo no matter what it was! Sometimes we just have to go with our gut. As we know the docs are not always right! Good luck to all....

Mine was hockey puck size and multifocal. Because it was so large and about ten years old we decided to do double mast. as it tends to lurk in other breast. I'm happy I did that. 11nodes out because they thought one was cancerous even though no tests showed node involvement but one onc thought he felt one enlarged. Now that I'm much older and smarter I would have pushed for more tests cause I have lymphedema.

Get educated about lymphedema cause docs know squat about it but pretend they do.check out the lymphedema thread. Wonderful resource if your having ANY nodes out.

I know how you feel about raising kids with this disease.its scary but take one day at I time. I do and it's been since 2004.My kid was in grade 7,all I prayed for was just to see her graduate.she's been out of school for six years already. You'll be ok

Marie, thanks for your great post. Did you have a mastectomy? (It isn't clear from your signature).

Also, how are you doing now:? What kind of follow up do you have at 2+ years?