June 2016 Surgeries!

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  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited July 2016

    mom2four... My ps told me this can happen pretty easily, because our nerves are damaged post surgery and thus don't identify the binding/rubbing until it causes real damage. I would maybe take it off and use a bandage wrap to create compression but not place direct pressure on your now injured skin. If it's not an open wound, Traumeel or arnica cream work wonders on healing bruised areas and providing relief.

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    Hope floats, it very much is an open raw would now. And I told them in the hospital. The dr told the nurses to get a larger size and they blew it off. And when I called back to the dr office the said he didn't know anything about my surgery so he couldn't tell me any ideas? What is the Dr on call if he can't address the patient problems. I'm afraid of taking it off and my Dr getting mad. Did you ever have one of these on before

  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited July 2016

    before getting my drains pulled, my PS didn't place me in any sort of compression garment, so probably not much help... After he pulled my drains last week he recommended any sport bra that was snug fitting that I could step into vs. Pulling over my head. Walmart had some good options. It was then that he warned me about the rubbing.... When I was in yesterday getting my seroma aspirated, he said to keep wearing a sports bra. If your doctor isn't much help maybe go out and see if you can find a snug but less restrictive bra? It's better than being in pain!!

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Sorry they're being so mean to you, not what you need after surgery. I say take it off and make yourself comfortable. They didn't give me anything to wear. They gave me a prescription for a camisole but I didn't buy it because I thought it was really expensive for what it was and I used a belt for the drains. They were fine with that. 10 days post surgery my PS gave me a surgical bra and said wearing it was totally optional. I haven't been wearing anything for a bra and I'm healing really nicely.

  • ScotBird
    ScotBird Member Posts: 650
    edited July 2016

    Mom2four I'm so sorry about your experience, it sounds horrible. For the first few days after getting home I found it uncomfortable wearing a bra at night so I just left it off. Then after a week I checked with the nurses and they said it's important to wear a bra 24/7 for 6 weeks post surgery, so I started wearing one again. I bought a few different styles and sizes all cheap supermarket onesand change it each day for a fresh one.

    I'm 3 and a half weeks out now and feel pretty normal again, just a bit tired and slightly uncomfortable when stretching but have been doing everything I normally do and making sure to do the exercises a few times a day. I haven't needed any pain relief for the last 10 days.

    Hope everyone is healing well and feeling better. Hanley how are you? Hope doing well. Lots of love to you all. XX

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    update: I had massive chest pain on my left side. I had both breast removed but it was the left side was having spasms. The pain was beyond awful. My husband called the dr (who quite frankly I don't think he really cared and just wanted me to go away.) and he told my husband to go to the ER because it could be a heart attack. We drove in and the pain started to get better. At the hospital we had to wait quite a while. (I guess having a heart attack any that important anymore.) I was about to leave when a nurse called me. I explained that I didn't want any pain meds and I didn't want to be tortured for hours. Turns out she also had breast cancer and wanted to help. She took off corset bra thing. I almost cried. It was almost 4 inches too small. We are pretty sure that I broke ribs. It was unbearable. She wrapped me up in an ace bandage. She couldn't imagine why they did this to me. So on top of the mastectomy I have broken ribs. And I can't take pain meds because my intestines will not work. I have used miralax and sennecot. I haven't had a BM in 2 weeks. Overall I'm having a great time. I hope you all have a great holiday to

  • ScotBird
    ScotBird Member Posts: 650
    edited July 2016

    Ooh Mom2four my goodness what a terrible thing to happen to you that is beyond awful. I'm so glad that you finally found a nurse who helped you. Now you can at last get comfortable and put this terrible experience behind you and heal well. I can hardly believe this could happen. I hope that you are feeling much better already now that you have the right care. Sending very gentle hugs and lots of love to you. XX

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Mom2four my heart goes out to you. That corset sounds like a medieval torture instrument. The nurse is right, why on earth did they do this to you? If you feel up to it next week you should get those ribs x-rayed.

    I case it's of any use, I ended up in a painful bloody mess at the start of chemo due to lack of BM (side effect of meds). My doctor said I needed to get things moving ASAP. She told me to do the following: take Miralax every 3 hours until you have a BM, then once a day. Plus Senokot twice a day, stool softener 3 times a day, and glycerin suppositories as needed. Within 6 hours things were moving again. For the surgery I took the meds to the hospital and took each once a day, and had no problems with the pain meds.

  • Clauclau
    Clauclau Member Posts: 88
    edited July 2016

    hi, i had a double mastectomy followed by reconstruction with expanders on 6/30/16. Overall I am doing fine, but I did have a bad case of constipation after anesthesia, and a set of pain killers.

    A friend of mine recommended senocut which I took 4 pills without results. I also tried natural ways to have a BM such as papaya with fresh orange squeezed, oatmeal , activia with probiotics, beans, bold cup of coffee, Reese's chocolate, prunes and prunes's water, cottage cheese, and warm water with a bit of sea salt. I don't know exactly what happened or which one of these items did the trick, but I had my first BM on the 4th day after surgery.

    I was told to keep up with the ritual of foods above mentioned, and today is my second day trying these or other things. I am crossing my fingers today ;)


  • barbski60
    barbski60 Member Posts: 39
    edited July 2016

    Clauclau

    How are you feeling? What kind of recon are you doing?

    Hope all is well.


  • Clauclau
    Clauclau Member Posts: 88
    edited July 2016

    hi Barbski60, I am fine. Thanks for asking.

    I am going towards the expanders with implants. I am not sure if the implants will be silicone or saltines yet. My doctors suggested that I take my time to decide what's best for me. As far as I know, all types of reconstruction has pros and cons. I need to do more research on each type to make sure it's going to be ok. Let me know your thoughts and a little bit about you. Hope you are doing well

  • SPECTER55
    SPECTER55 Member Posts: 77
    edited July 2016

    I lost a lot of blood after my surgery and had to be put on it on supplements. That plus the narcotics really plugged me up. I hated the laxatives as they gave me horrible cramps and explosive diarrhea once they started working. I found the perfect remedy in raw sunflower seeds. You have to ear at least a cup. I love them so it's not a problem for me. I got relief by the next day. I haven't had a problem since. Constipation is awful when you are already uncomfortable from your surgery.

  • barbski60
    barbski60 Member Posts: 39
    edited July 2016

    clauclau

    I am 55 and was diagnosed on 5/5 - I'm sure there is some symbolism there with all the 5's. Besides being overweight, I had no other health problems. I am doing a DIEP flap for recon, probably in late Sept. My plan is to avoid a recurrence by exercising a lot, yoga, meditation/prayer, and diet (no soy, dairy, meat, gluten and less sugar - pretty much vegan). I do not have to do chemo or rads and I want to avoid hormone therapy. One of my sons (18) is vegan and my husband and other son (15) follow a paleo diet. I think it will work out ok. I'm just not cooking the meat but will cook other stuff. I am pretty concerned about the cancer popping up somewhere else since no one can figure out a cause. Since I have 6 weeks off from work (I truly work for the best company ever), I am working on a schedule to implement the changes I mentioned. I was already exercising at least an hour a day and haven't eaten gluten or much dairy or sugar so just need some tweaks. I wish the best for all of us and am doing so much better than I expected. Please take care!

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Had my first fill today. Everything went great. The needle looked really scary so I looked away, but the area is numb so I felt nothing. She was going to put in 60cc but I didn't feel any tightness, so she ended up doing a double fill and putting in 120cc. It's not painful so far and I can only feel the tiniest bit of tightness.

    Welcome silviah and Clauclau!

    Mom2four and FUBC, how are you doing?

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    I'm not holding up at all. I'm sure I've traumatized my poor kids. I had both breast removed but my left side is really giving me problems. I don't know if it's muscle spasm or if it's nerve damage but I have it about 3 times a day and I can't do anything but scream in pain for about 45 min It's absolutely unbearable. I did a hysterectomy a couple years ago and had no problem at all. I'm not sure if this is normal. I really can't get up and walk around. When I do the sharp intense pain comes in and I even vomit. I saw the Dr and she prescribed a muscle relaxer and a different pain meds. She says some women never have any pain at all and that I wasn't the norm. Anyone else have this happen? Will it end?

  • silviah
    silviah Member Posts: 46
    edited July 2016

    Thanks Maya15!!!! I'm so happy I found this forum!!

    Mom2 - sorry you are feeling poorly!!


    Had my post-op check up today. Still no results but..they made an appointment for me to see Oncology Friday morning. Had one of my drains removed...boy was that an awkward feeling!!! Didn't hurt really...just strange.


    The waiting is weighing on me...I just want a game plan!!!



  • barbski60
    barbski60 Member Posts: 39
    edited July 2016

    Mom2

    That is horrible! I hope the meds work - maybe it is a muscle spasm. Can you take 1/2 of your meds for the spasm so you can take more often? If you are supposed to take every 6 hours, maybe take 1/2 every 3 hrs? Can you use a heating pad on a low seating? It sounds like the muscles need to calm down to me. I hope things improve.

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    wow mom2four sorry to hear about your pain.

    I have been in horrible pain too, my right side its killing me. I doubled my narco dose today and that helped. I wasn't sleeping for days. The pain is not normal, yours seems to be worst than mine, and I know mine is not normal, something is up with my right side. You should insist that your doctor pays attention to what you're saying to him.

    I'm debating if i should get a fill this coming thursday. I am at 150 cc right now.

    Maya, so whats your total so far? How much did they add during your surgery?


  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    My total is 170cc: 50 at surgery and 120 today. The TE is not that big, 300cc total, so I'm over halfway there.

    I was in excruciating pain for the first few days after surgery, especially if I rolled over onto my side. Needed narcos round the clock for first 5 days. I refused to leave the hospital after the first night until they'd sorted out a pain med regimen that worked and I'd tested it out for 12 hours before being discharged. The insurance company even sent their own "nurse" to "visit" me at the hospital to see what all the fuss was about (i.e., why they were being billed for a second night).

    I agree with FUBC, insist that your doctors listen. At my post op, BS did physical exam then said "everything looks good, see you in 3 months". At that point I had lost the use of my right arm due to excruciating nerve pain and cording, so I said no, everything is not "good". Thankfully I had seen my MO just before and she had already got the ball rolling to get me the treatment I needed.

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    Maya, you're too funny...I can picture you refusing to leave the hospital...but, good for you. I have learn by now, you need to insist to get docs to pay attention.

    My TE's are 400 cc, so I have a while to go, it's scary. What size bra will you be with 300cc TE?

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Currently I'm a small B. The TE side looks like a lumpy brick and doesn't really need a bra for the moment. It's an iron bra unto itself. Because I'm having a DIEP rather than implants, the size of the TE doesn't really matter as long as the PS has "something to work with", as she puts it. I have asked her for a C size and she thinks that's totally feasible as I have plenty of spare tissue in the abdomen (never would have thought that would come in handy!)

    Yesterday they also got the ball rolling for the DIEP surgery in September, so thankfully the TE won't be there for too long.

  • Lunderwood
    Lunderwood Member Posts: 125
    edited July 2016

    Tomorrow I am going to my first post op visit with PS and hopefully my first fill. My TE is only 250cc. When the nurse removed my drain last week she couldn't believe that the PS had not done any fill during time of surgery. It appears about 1/3 of size of my native breast already. Hopefully my skin quality has improved and I will be ready for the first fill. Somewhat concerned what to expect. Today is 3 weeks post UMX and I hope to return to work at least part time next week. My job is fairly physical (mfg. operations) so will need at least some of the current restrictions relaxed. Hoping everyone is recovering well.

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    went to see PS today. Her comment was she's never seen anyone in so much pain. That irritated me to no end. I said " maybe this isn't normal. But I don't know. What I do know is that the left side is causing excoriating pain. I'm not crazy and I'm not a wimp. I have gone through kidney stones, gall stones, a hysterectomy, celiac , I gave birth to 4 babies, and I broke my toe. I have never once complained. I alway kept on going but this is awful. Something isn't right. And I'm sorry if you've never seen this before but this is real and you need help me not feel this way." Man was I mad. I told her the bra was way too small. She never apologized. She took off the ace bandage that a nurse help me with instead of the bra. I guess it looks good except there are huge ridges where the bra was too tight. She said that might be permanent. That's just great. I'm still not in good shape. Still have massive pain on the left side but the flexeral is helping. And now that the bandage is gone I don't have as much pain. I'm nauseous and exhausted. When will this end?

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    Mom 2 four, i completely understand. I have the same issue, the right side (top left corner of right breast-to be more precise) was killing me and its also bigger than the left, not sure if its swollen bc it looks the same for the past 2 weeks...anyway, i couldn't sleep for the past 10 days. Finally yesterday the pain went down a lot. I finally slept last night. I wanted to go at my friends house for the 4th of July and was asking here for opinions if I should have a drink, but after all I was in bed all day long because the pain was unbearable.

    Today I drove to the doctors and with all the potholes on the road, the pain started again, (I am still referring to the same spot on my right side) but if i massage it gently, it seems to go away. My doctor says it's not a seroma. I am not sure if it's a muscle spasm. I totally understand your pain and there is no way this is normal. It's not you and me, there is a problem when the pain it's so specific, muscles or the nerves not sure...but again, IT IS NOT YOU !!!

    Maya, I was going to say that at least you'd look awesome with the new boobs and the tummy tuck, but honestly every time i hear someone tell me; "at least you'll have the boobs I always wanted", I feel like strangling them...the physical and mental pain associated with this damn cancer is unbearable..


  • SPECTER55
    SPECTER55 Member Posts: 77
    edited July 2016

    last two drains removed today. Can't wait to shower in 24 hours! Now that most of the swelling is gone. I can really feel the TEs. It's a good thing they are not permanent because they are bulky and hard. Imnervous about my first fill next week. My breasts are not numb. I still have sensation. It's not a normal sensation, but I definitely have feeling in that area. I'm still very fatigued as well. At least my pain isn't that bad anymore.

  • FUBC
    FUBC Member Posts: 137
    edited July 2016

    Specter, I was told not to take a shower for 48 hours after the drains were removed, Im surprised they told you 24 hours

  • Maya15
    Maya15 Member Posts: 323
    edited July 2016

    Wow, everyone gets such different instructions! I was allowed to shower right away after the drains came out (it was sooo good!), and some people are allowed to shower with the drains. Not allowed baths though.

    And yes, the potholes!!! Sooo painful. Driving is like an obstacle course full of sudden flashes of pain.

  • ScotBird
    ScotBird Member Posts: 650
    edited July 2016

    Maya yes isn't it strange, that the instructions we all get are so different, and they always seem to be delivered with such authority so that you feel nervous not to follow them in every detail. It reminds me of advice people give to pregnant women, one person tells you you must never do something or other, and the next person says you must always do it, it's so confusing. You end up worry that you are doing something wrong.

    I'm happy to report that I'm feeling completely fine today, I have been back at work since 10 days ago (desk job) the scars seem to be doing OK, PS said I should massage them 2 or 3 times a day with moisturiser, I'm not sure what that does but I've been doing it religiously. I have a month of radiotherapy starting on 26th July, then I just get seen again in October. I can't wait for the day when I don't think about cancer at all.

    Mom2four and FUBC I'm sorry to hear about the horrible pains. I hope they sort it out soon, and that you are feeling better already. Lots of love. X

  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited July 2016

    a friend of mine is a Dr. She made me feel so much better. She said that pain management is not a surgeons main strength. I haven't been able to take the pain medications because it makes me really sick. So she explained that of course the Dr has never seen anyone in this pain because everyone else has pain meds and I can't take any of it. She said it's like having natural childbirth. So that's why I'm in so much pain. It's so frustrating that my Drs didnt help. My friend told me I could take Aleve twice a day and do Tylenol 3 times a day. Why my own surgeons couldn't tell me that is beyond me. So hopefully I can feel better soon

  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    Ive had quite an adventure this past week. BMX was June 29... came home same day and slept on the couch and recliner for a couple of days. I was feeling great but chocked on a cracker, had a bad coughing fit, tore internal stitches and ended up with a ambulance trip to the ER and emergency surgery. My husband acted quickly and really saved my life.


    I spent a couple of days in the hospital since I'd post a.lot of blood and was released on July 4.


    Started recovery again.... then dammit one of my drains failed. Surgeon had dh cut the stitches and remove it last night. Worried a bit about infection today.

    I do have GOOD news... pathology report states no cancer in lymph nodes! Celebration in order🙌.

    Taking this one day at a time. I'm trying to rest and take care of myself and I'm aware of how blessed I am... but these drains are a pain in the rear!

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