May 2016 Surgeries

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Good for you Moreshoes. They need to know to stop saying that crap. Or you'll be fine? really? Um I've had 5 months of chemo, a horrid surgery, am in the process of being fried daily for 33 days. No I will not be fine. Yes I will get through it, but it's not ok, fine, or over.

  • Mom4four
    Mom4four Member Posts: 117
    edited July 2016

    I had surgery on May 2 and I was doing great emotionally but then my son's girlfriend of 3 years broke up with him, he is having a really hard time and I am so depressed. I can't get out of bed.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    So sorry Mom4four....it's hard to see the ones we love having a hard time.

    MoreShoes - I kind of chuckled when I saw your comment, too. ;)

    Valstim and GreyKat - Thinking of you. It doesn't seem fair to have to suffer so much to eventually (hopefully) feel better.

    I'm starting to notice a little tiny opening in the incision on my right side - the side I've been trying to fight off infection. Hoping this isn't going to eventually send me back into the hospital for yet another surgery (and possible loss of my TE), and round of IV antibiotics....ugh.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited July 2016

    Hi all.... I had my BMX 3 days ago. Feeling good, but tight. I had a few big coughs tody and now I have some bigger clots in one of my drains.

    Are clots normal? We've been stripping them every 2 hours and emptying every 6 hours as directed.

    Anything to worry about?


  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2016

    tsoebbin - just watch to make sure they don't clog the drain - but otherwise pretty normal. Really depress the bulb before you close it with the stopper to make sure you are getting enough suction. As time goes by you should see them dissipate, and the fluid in the drain just looks pink, then eventually kind of straw colored.


  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Mom4four so sorry about your son and his girlfriend. It's so hard when our children are hurting.

    tssobein, yes I had clots but i would depress them through the tubing. Otherwise your hand may swell from the backup. I did exactly as Specialk says.

    Mytoystory2- oh no, say it isn't so, here is sending you healing hugs that you don't have to go back to the hospital.

    Hey Raven4mi...

    I had my first back to a good place day yesterday. Went shopping, to the movies and dinner and then met some friends for cocktails. Woo hoo.

  • GreyKat
    GreyKat Member Posts: 225
    edited July 2016

    Tsoebbin - yes, strip strip strip those clots along into the drain. I had a clot clog the drain up inside the bandage where I couldn't get it about three days after surgery, and the bloody fluid started oozing around it, out the skin, out the bandage, and dripping down my back, which woke me up. I ended up having the PS paged at 430 am and all I had to do was go in to his office first thing after they opened so they could peel the bandaging off, strip up where I couldn't get it, clean and disinfect it and bandage me up again. Not the end of the world but definitely something to stay on top of!

  • Mom4four
    Mom4four Member Posts: 117
    edited July 2016

    Thanks for the positive words about my son. I just think it's hitting extra hard.

  • raven4mi
    raven4mi Member Posts: 562
    edited July 2016

    HelenWNZ, good luck to you!

    Mom4four, I'm so sorry you're struggling with not only your own emotional issues, but that of your son as well. Hang in there. Is there anyone local you can talk with?

    myToyStory2, oh no! Not again! Fingers crossed for you!

    Valstim52, glad you're moving to a better place emotionally.

    Things I learned over the holiday week-end, both post-BMX and non-post-BMX related:

    • If you're rocking a uniboob like I am and you're having problems keeping the FFoob (Fabric Fake boob) even with the other foob, using a mitten clip between the bottom of your bra on the FFoob side and the waist of your pants helps keep them even. Score.
    • Simply putting your FFoob in a sandwich size baggie keeps them dry in the swimming pool. (Downside – they float up when you're under water. Doh!)
    • Having blue hair and riding in your little hometown 4th of July parade is fun. (Although the blue hair is going away this week, as a matter of fact. Glad I waited to get rid of it!)
  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Raven4mi, that is the best tip ever about the mitten clip. I always feel it's lopsided or riding upwards.

    Blue hair makes me smile.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    I managed to stay out of the hospital over the 4th! Grateful.

    Yesterday's appt with the PS turned out to be a non-event. Drain output was too high to remove the final drain.....moving on to week #8.....yep.....and the stitches remain in to help with healing. Appt scheduled for next week to possibly remove the drain, take out the stitches, and try a fill on the right side as long as the redness stays away. Finishing up my 14-day oral antibiotics this week. Progress.....hopefully!

    Thanks for the hints on the stuffed side, Raven. Always conscious of the roaming ffoob! No more blue hair? Say it isn't so!

    My hair stylist is a popular lady who has cut down her hours - it's hard to get in with her, particularly if you want the full experience - cut/color/style. I've had to cancel my last two appointments due to being hospitalized, and I desperately need to get this mop (and emerging gray hairs....ugh) dealt with. I don't want my infection firing up, or to be re-hospitalized this week, because I really don't want to miss out on another hair appt on Friday - I need to feel more like myself again!

  • MoreShoes
    MoreShoes Member Posts: 322
    edited July 2016

    Today I started with rads. I also had for the first time hyperthermia. It's no walk in the park. They put all kind of thermometers everywhere and raise the temperature to 43 C (109.4 F). After 1.5 hour I felt like turkey on Christmas. I was dizzy, tired and felt like I had fever. Rads every day and hyperthermia 4 more times. I really hope it helps. The nurses were all very understanding. The young assisstent doctor (not my doctor) had an irritating nasal voice and kept on saying nonsense. Thank God she left early.

  • GreyKat
    GreyKat Member Posts: 225
    edited July 2016

    @MyToyStory - Well, I ended up in a walk-in clinic with this ongoing infection. So I guess I got the holiday bite this time. Glad to hear you're doing better! Another of my doctors is going on vacation, naturally, just as I need. It's the Summer Curse or Murphy's Law or something.

    @Moreshoes - that sounds awful. Just awful. Sending you thoughts of ice cubes and sprinklers and flavored ices and cold watermelon and anything else to cool you down.

  • raven4mi
    raven4mi Member Posts: 562
    edited July 2016

    OMG, MoreShoes, that hyperthermia sounds awful! I'm so sorry you have that ahead of you four more times. Guh!

    GreyKat, sorry you pulled the short stick on the holiday woes this time!

    I saw the ID doctor today for follow-up on the infection. My appointment was at 9:45, and I had to pick my son up from a tennis lesson by 11:00 a.m. (only 10 minutes away.) At 10:43 a.m. I was just walking out of the exam room when the doctor walked in. Why don't these medical people understand that people have schedules and lives? Anyhow, he asked how I was doing and I said "You have five minutes; I have to leave to pick up a kid." He apologized several times about the wait all while efficiently going about his business, and he's a really nice guy, so I'm willing to forgive him. Bottom line is that I don't have to see him again until two weeks prior to the next attempt to put the TE back in on the right in September at which time he'll put me on a pre-op antibiotic regimen. (And I made it in time to pick up my son, to boot!)

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    So sorry to hear you're still battling infection, GreyKat, especially when you just want to be celebrating the 4th with family and friends. Sending healing thoughts your way!

    MoreShoes - Yikes - no fun! Here's hoping it's a successful process that greatly benefits your future health!

    Sounds like things are on track, Raven! I've become very appreciative of how quickly the clinics at my hospital get patients checked in for appts and face-to-face with the doctors. Extremely short wait times in the waiting and exam rooms - sometimes I can't get my gown on fast enough before they're knocking to come in. ;) That standard of care seems very intentional in each of the clinics I've visited. Glad it worked out for you!


  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    Just curious how many of you have returned to regular daily exercise and what your workouts are?

  • HuskerFan
    HuskerFan Member Posts: 85
    edited July 2016

    I am 6 weeks out from my BMX and have been cleared to resume all normal activities. So far I've only been doing very brisk walking, about 5 miles a day. I'm also curious about what others are doing. I'm interested in trying yoga. Does anyone do yoga at home via video on the Internet

  • raven4mi
    raven4mi Member Posts: 562
    edited July 2016

    myToyStory2, I've been cleared for everything. Currently I ride a stationary bike most weekdays for 45 minutes, and I get out to walk 2 miles as often as I can when time permits. I'm playing golf, have been cleared to go back to both ballet and yoga, and I'm starting tennis lessons next week.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Hello All, just spent most of yesterday and last night in the hospital. Pain in my hands and arm, my electrolytes were low, and I do have neuropathy. So very painful.Nothing worked. But on to rads today #10/33

  • raven4mi
    raven4mi Member Posts: 562
    edited July 2016

    Oh no, Valstim52! So sorry you're suffering so much. Gentlest of hugs to you. :(

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    So very sorry, Valstim! You've already gone through so much! Sending healing thoughts your way....

  • MoreShoes
    MoreShoes Member Posts: 322
    edited July 2016

    Thank you all for the support. Yes, it's as awful as it sounds. It better does something good too.

    Valstim, it seems as if it's one step forward, three steps back. I was so happy when you went out with your friends for cocktails and now this. How is your skin? I've only done two rads and it already feels burned.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Thanks MoreShoes, it was really a downer to have to go to the hospital. My skin is holding up well. So far # 10/33 and some slight redness but not bad at all. I use aloe right after, miaderm, then aquaphor at night.

    I have plans Saturday to go to a Hollywood themed party some of my friends are giving. I can't wait. Will probably nap during the dancing but plan to be there, no matter what.



  • GreyKat
    GreyKat Member Posts: 225
    edited July 2016

    Oh Valstim, I hope you catch a break soon.

    Things just aren't really going well on my end, but I don't feel like writing up a list of my complications. Just don't have the energy anymore. I overheard the nice tech at the walk-in center who took all my info from the last two months giving the case notes to the dr outside the door, and he was all "She's really been put through the ringer, just awful". Sigh. Well, it's not by choice, you know?

    Edit: Had a question, found the answer, never mind, carry on, stiff upper lip and all that rubbish.



  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Thanks Greykat, yes it is rubbish, stiff upper lip etc.

    I have been hit by a truck so to speak. See I expected it during chemo. I was ready and prepared as much as you can for the horridness of that experience. But surgery, and now rads? It has really thrown me, the left over things to deal with.

    Oh and to top it off I have a huge seroma, that they are just watching because it's filling up. It makes my rads longer because my molds were made off my original contour and with the swelling they have to adjust it. Arghhh. It's not red, and does not hurt, but i see the surgeon Tuesday.

  • MoreShoes
    MoreShoes Member Posts: 322
    edited July 2016

    Are we ever gonna catch a break? The only thing that's keeping me is when I remind myself that back in November I thought it was the end and I'm still around to see my son graduate.

    Greykat, hugs.

    Valstim, have lots of fun! I just realised that I don't really feel like socializing. I prefer to stay home. It's just an observation, don't mean anything by it.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    Moreshoes, I more than understand. Yes that keeps me going how hopeless I felt in December. I just want a break.

    On a lighter note, though I felt close to crap after rads, I went for a delicious old fashioned Iceee. Wee for me. Have a good weekend everyone.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    Had my hair appointment yesterday, going to a wedding and reception today, returning to my church to lead music tomorrow, and gorgeous weather continues around here. This would all be even sweeter if I didn't have that drain attached to my side.....but still grateful to be taking some steps forward and feeling better. Have a great weekend ladies!

  • GreyKat
    GreyKat Member Posts: 225
    edited July 2016

    Moreshoes, Valstim, Toystory et al - well, I'm glad it wasn't the end for you ladies last winter, even though it's still rough now. I'm glad to have met you here and it's been invaluable to have women to share this journey/mess/heartache/painful process/grief/joy at surviving terrifying things with.


  • myToyStory2
    myToyStory2 Member Posts: 162
    edited July 2016

    I agree! Grateful for the May board! We started with a much larger group of ladies here, but I think those of us still posting are the ones with complications and issues. It would be fun to hear updates from some of the ladies who had different outcomes from their surgeries and recoveries, too. ;)

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