Probable metastatic IBC depending on more test results

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traces09
traces09 Member Posts: 2

After being in remission from inflammatory breast cancer for almost 4 years, I was having a constant pain in my left side, so my primary doctor ordered an ultrasound. The ultrasound didn't find the cause of the pain, but did pick up some lesions on my liver. A CT scan of the abdominal area later showed not only tumors in my liver, but one on my spine and hip bone. My oncologist has now ordered a more complete CT scan to check my lungs, along with a bone scan and liver biopsy.

I never saw this coming. After almost 4 years in remission, I was feeling pretty confident. Smug, even! Now I'm coming to terms with the fact that I now probably have what is presently an incurable cancer. My doctor says that as soon as it is confirmed that it is indeed metastatic breast cancer, as he is almost sure it is, we'll start attacking it with chemo. He said the goal is to turn it from a terminal disease to a chronic disease.

I think I'm in shock. I haven't cried. I've remained relatively calm. But I think I feel pressure on the dam, and it may burst any day. I hated telling my family and friends, especially my daughter. I haven't told my son yet. I'm so tired of telling people and answering questions. I realize people mean well and feel helpless right now...and I am truly grateful that I have so many people in my life who care. When I was diagnosed with just the breast cancer, I knew I wasn't going to die. I didn't worry about "getting my affairs in order" or anything like that. This time...well...I should probably think of those things. Not that I'm giving up! I'll fight hard, but I am not fooling myself that this isn't much, much more serious now. Has anyone gone through or are going through this too?

Tracy

Comments

  • dAd
    dAd Member Posts: 94
    edited July 2016

    My heart goes out to you Tracy but do not give up. There are many who have been in Stage IV for years.

    Hugs, Anne

  • traces09
    traces09 Member Posts: 2
    edited July 2016

    That's what I have heard, Anne! I intend to be one of them.

    Thank you for your kind words.

    *hugs*

    Tracy

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2016

    So sorry traces. I am not going through it but a friend in our group at church is. She went for her scheduled ONC visit and her tumor marker numbers were up. Her ONC said there could be a multitude of reasons for that so he told her she would be retested in 2 weeks. Prior to that no pain or anything to suggest problems. Two weeks later the numbers were up again. A scan showed it had metasized to her hip. She was in shock too. The plan was radiation since she had had chemo but the lesions were scattered so she couldn't do rads. She is taking a chemo pill now and for the rest of her life.

    Keep the faith.

    Diane

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