Stage IV Bone, Liver, Lung Mets

hope1961
hope1961 Member Posts: 4
edited July 2016 in Stage IV/Metastatic Breast Cancer ONLY

Hello ladies

I was originally diagnosed with Stage IIb IDC ER+ no node involvement breast cancer in May 2010. Six years later I have just been diagnosed with liver,bone and lungs mets and was wondering if there are any other ladies on here with a similar diagnosis. I thought that when and if it returned it would be in one site, never in a million years did I think it would be a hat trick. I have just started on my 2nd cycle of Xeloda and have another six to go. I'm just looking for messages of hope and inspiration and how others are coping with this sort of metastasis.

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  • Kandy
    Kandy Member Posts: 1,461
    edited June 2016

    Hope, sorry you had to join our elite club. My diagnosis is not like yours but I wanted to welcome you. You will find this group very informative and very supportive. When diagnosed with mets it can be found in one place or more. I hope your new treatment plan kicks those cancer cells back to the curb. Wishing you nothing but the best.

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  • zarovka
    zarovka Member Posts: 3,607
    edited June 2016

    Hope -

    I was diagnosed de novo with mets to the liver and maybe the bone in January of this year. Not a hat trick but still terrifying. There are threads in this forum on Xeloda, liver mets, bone mets and lung mets where you will find people with a similar diagnosis doing well. You will also find people fighting hard and not doing well. This is not a great place to be.

    But we have an increasing number of medical options, some of them less debilitating than you expect. Diet and exercise are critical. Complementary oncology strategies have matured and may be something for you to consider. Bestbird, one of the members of this forum, has written the best summary of available treatments for metastatic cancer.

    When I need someone to tell me that I can manage my cancer as chronic illness for a long time, I read Anti-Cancer a New Way of Life

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  • kaycancer
    kaycancer Member Posts: 38
    edited June 2016

    i have the same ecept its in my brain to now im a chemo called navalbine its keeping me staple now plus i had brain radaiation hang in there u r in my prayers

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  • bbecksoon
    bbecksoon Member Posts: 6
    edited July 2016

    Hello, hope1961! I have a very similar diagnosis. I was first diagnosed with Stage IIIB in 2012, and then in March of 2016 with Stage IV with mets to bone, liver & lungs. Overwhelming news at first, but am doing well so far. Did rads to bone mets in 3 locations, which helped with pain. Then did 3 cycles of Xeloda, but stopped that due to bad side effects for me. The response was good, though, so I went on Letrozole. Will see onco on Monday for checkup, and may switch to Arimidex, as Letrozole seemed to be causing joint pain and swelling (not sure if it is that, or something else causing this pain.) My CA 15 3 came down quite a bit, and my second scans showed shrinkage all around, so YAY, me! Hoping to continue the Whack a Mole game and stay ahead of it for quite some time. Feel free to message me anytime!

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  • hope1961
    hope1961 Member Posts: 4
    edited July 2016

    Thank you ladies for your messages of hope. I've started my 4th cycle of Xeloda and seem to be doing well. Liver congestion down from 226 to 69. Normal liver congestion is 50 so I'm pretty happy with that and think it is doing some good. Good luck to all you lovely ladies....xxx


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