Is anyone like me?

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Cwhitney
Cwhitney Member Posts: 87
edited June 2016 in HER2+ (Positive) Breast Cancer

Hello Her2 sisters. I was just wondering if anyone has a similar pathology as me since I don't fit into too many categories. I am just at the cut-off of suggested chemo/herceptin since I am Triple positive, node negative, with an invasive tumor of 6mm. Can anyone share their treatment experience with a tumor less than 1 cm? Did you have four cycles as opposed to six cycles of chemo? Thanks!

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  • kcat2013
    kcat2013 Member Posts: 391
    edited June 2016

    My IDC was similar in size and after looking at all the variables my MO recommended 8 cycles of dose dense AC/T plus Herceptin. I think it's a hard call with tiny tumors.


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  • Deaconlady
    Deaconlady Member Posts: 158
    edited June 2016

    Hey there. I had a small tumor and had weekly Taxol and Herceptin. I just finished rads and will have Herceptin every 3 weeks till February.

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  • Cwhitney
    Cwhitney Member Posts: 87
    edited June 2016

    Thanks ladies for replying. I just meet with the oncologist and it looks like 18 weeks of Taxol and Perjita then Hetceptin for the rest of the year. Can't wait to get it done!

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  • kcat2013
    kcat2013 Member Posts: 391
    edited June 2016

    Glad you have a plan now!


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  • Kdlee
    Kdlee Member Posts: 3
    edited June 2016

    Hi Deaconlady,

    Did you have a port? How many weeks was your Taxol? What about radiation. We have a similar diagnosis


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  • Deaconlady
    Deaconlady Member Posts: 158
    edited June 2016

    Hi Kdlee. Yes, I have a port. I had 12 weekly Taxol. I got the port about the 2nd or 3rd week. Even though my veins were good, I only had the one arm to use. I'm so happy I got the port. It makes things so much easier! I finished radiation last week. Are you going to get a port?

    Feel free to ask me anything!

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  • Cwhitney
    Cwhitney Member Posts: 87
    edited June 2016

    Hi Deaconlady. How did you handle the Taxol? I start next week and I know everyone has a different reaction but my doctor said other than the loss of hair, the fatigue is the main complaint. Thanks!!!!

    Kdlee, I had a port inserted too. Unfortunately, they have to go back in and reinsert it this week. I am a very rare case of a port shifting! I still can't believe it but I got to do what I have to do to get this going!

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  • Deaconlady
    Deaconlady Member Posts: 158
    edited June 2016

    HI Cwhitney! Taxol wasn't bad at all for me, but I see that you have AC too. My hair thinned some, but didn't completely fall out. I actually have lost some eyelashes and eyebrows on one side only now! I was tired some, but still worked through. I just napped on weekends when I could. I had a little nausea from time to time, and a little neuropathy. However, the side effects were not that bad at all.


    Best of luck to you! Sorry to hear about port shifting though...

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  • Cwhitney
    Cwhitney Member Posts: 87
    edited June 2016

    Hi Deacon lady. Thanks for replying! Actually, no AC. I made a mistake with my treatment plan. Glad to hear you didn't have too many effects. It gives me hope. People tell me I am the healthiest person aside from this nasty cancer so hopefully it will work in my favor.

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