depression - I need someone to vent to

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Lisey
Lisey Member Posts: 1,053
edited June 2016 in Stage I Breast Cancer

It sounds really stupid I know. I've apparently gotten a 'good' kind of BC (well except for this potential Luminal B thing since my PR+ is only 5%), and my margins are good. I have no idea if I'm getting Chemo, or what my ki67 or Oncotype score is. I had a double Mastectomy 13 days ago and got my drains out today. Overall, I should be happy. But I'm not. I'm sad. I'm sitting here ignoring my family, watching ten billion episodes of dance moms on the internet, when I should be doing work clients are patiently waiting for (I'm a graphic designer). I shut myself in my bedroom - which is now my home office, and all I want to do is eat popcorn and watching F@ing Dance Moms. I'm pathetic. I should feel blessed and want to hug my kids, but I don't'. I don't want to see anyone. I just want to stay in this room and cry. I have no energy for anything, and I haven't even had any chemo yet (if I do have it). The unknown is depressing, and while I don't miss my boobs, I'm terrified about losing my hair (that looks like Merida from Brave).

I feel enormous guilt I have shut out my kids and husband... but I seriously don't want them near me right now. I remember reading about how some celebrity said his most important insight was how when his dad was dying from cancer he was always in his room, locked away, like a ghost, and if he had cancer, he'd be spending every waking minute with his family. Damnit.. I'm the dad... I just want to be alone... and I want to sleep and wake up and have this all over. I won't know my oncotype until July 5th, and I feel like a zombie.

To top all this off, the money... I want to work to both keep my clients happy, but also to start contributing again to this mess of all the co-pays. I should be working and getting these things done - then why in the Hell is Dance Moms calling my name?
It's all just so horrible.

Comments

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited June 2016

    Oh Lisey - I've been there. It is a terrible dark hole. I chose to leave the family at home and sleep at our farm house so they didn't have to see me fall apart. I still shudder when I think of those dark days. Finally I got to a point where I was nearly catatonic with grief from the dx and my DD called my brother the onc. He recognized the symptoms of acute depression immediately. He said I would need anti-anxiety meds, an antidepressant, and counseling to pull out of it. He felt like the longer I suffered the longer it would take me to pull out. That call triggered a call to my PCP who helped me with the meds. I found someone to talk to thru my church. Still it was an agonizingly slow recovery. In hindsight I'm sure I had some degree of PTSD from never having dealt with my mom's BC death when I was five.

    Also I feel like the mx does something with our hormones and we have that to deal with. One of the things my PCP said was that I wasn't always going to feel the way I did in the dark times. That was encouraging. Don't feel guilty about any of your feelings. Airing them out and facing them is very cathartic. One step at a time. This is your time. Kids are resilient and they just want you to feel better. Private message me if you want to talk one on one. What you are feeling is totally normal. I couldn't even sit down and enjoy a good book for over a year. Something goes on chemically in our brains when faced with this type of trauma. You are doing just fine.

    Gentle hug.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited June 2016

    Dumb question... What is Dance Moms? Why have I never heard of it? I know I'm out of the loop, but.... Farmerlucy is right that you won't always feel the way you do. But, right now, you have to think about taking some steps that may help you pull yourself out of the hole you're in. Is there a friend, counselor, member of the clergy, or someone you'd feel comfortable talking to? How do you feel about anti-depressants? I never took an anti-depressant before cancer, but I've been on Celexa for a year and feel better.

    I worked through cancer treatment, too, and it wasn't always easy to keep up with my work. My grading was just piling up as I slogged through chemo. Can you reschedule due dates with your clients so that you don't feel so pressured to finish your work right away?

    One thing that helped me get through my work was to set myself very small goals and then reward myself for meeting them. Grade five papers and I could watch a favorite show (not Dance Moms, unfortunately). Do a set of quizzes and I could take a nap. Little things like that.

    Please go easy on yourself. There is no "right" way to cope with cancer. ((Hugs))

  • Lisey
    Lisey Member Posts: 1,053
    edited June 2016

    Elaine, Dance Moms is the equivalent of Toddlers and Tiaras... complete drama Trash TV of screaming mothers with their daughters competing professionally as dancers. Don't get started like I did.

    I will discuss the possible depression, I did just read that some depression medicine actually interferes with the carriers for tamoxifen (if I am on that).. effexor being a chief one. I just think I'm reading so much I nearly have my PHD in this stuff and there are so many variables I'm going crazy. I honestly feel if my PR+ level wasn't so small, I'd be in a much better frame of mind. We all hear that ER+ positive cancer is the best to get, but Luminal B (ER+/ Low HR+) has just as harsh outcomes as HER2+.

    And I think I need to come to terms with the idea that I'll lose my Brave hair for good. Every study I've read says that 10+ on AIs/Tamoxifen does indeed create thinning hair.

    My whole identity is just being torn apart. I'm usually on top of every project, and have every T crossed. All I can do is wait for the ki67 results and my gut says they are going to be high (due to the PR).



  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2016

    Aw, I think you need to give yourself a break here. You just had MAJOR surgery 13 days ago, for cryin' out loud!  Of course you're having a hard time--who wouldn't?  I imagine that most, if not all, of us who have gone through what you're going through have had some degree of depression and anxiety. I know I did.

    Like you, my tumor was a small stage 1, luminal B.  I endured a LX, re-excision, and 4 rounds of chemo before I had my BMX.  I was holding out pretty well until then, even when I lost my hair and everything tasted like paint and grass clippings. I had intended to be back at work in about 2 weeks, because, you know, several ladies here at BCO had breezed through theirs.  Well, the BMX did me in.  I had a 4" wide seroma on the left and massive tissue necrosis on the right which resulted in a huge hole 3-1/2" wide and 2-1/2" deep, down to the chest wall. I had to pack both twice a day. That lasted about 3 days and then I broke down.  It was just so horrible. It took 16 WEEKS for my wounds to heal.

    I think I was about 2 weeks post-op when I hit the wall--I couldn't concentrate, couldn't get off the couch, didn't want to bathe or dress, didn't want to talk to anyone. Basically, I just wanted to sit in front of the TV and eat chips for 18 hours a day.  I went to my doctor and poured my heart out. She immediately diagnosed me with PTSD.  She understood my feelings of mutilation and discouragement.  For me, the answer was a course of antidepressant, Lexapro, which treats depression and anxiety and is not habituating. Within 2 weeks of starting it, I was like my old self. I went back to work at 4 weeks post-op. I had burnt up all my sick leave and vacation, so I really didn't have a choice. It was hard, but since my depression was lifting, I was able to manage. 

    I guess my best piece of advice for you is this: don't compare yourself to someone else.  You can only heal so fast.  And make no mistake, your body is in fight mode during this time of intensive healing. Rather than focusing on what you should be doing, concentrate your energies on what you CAN do right now.  Baby steps. You'll get there; we all do. This won't be forever.  Perhaps it's time to talk to your doctor about your depression.

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