Bone Mets Thread

txmom,

Harborside Health Center is a very well regarded mmj center in Northern CA. They have some info on their site which may be helpful and they are good about answering questions. Good luck.

http://www.harborsidehealthcenter.com/

Babs- Hoping you hear good news with your scan results. 😃🙏🏻

Deb

Hello to all,

I've been away awhile due to a terrible pain flare which I'm happy to say has subsided. I couldn't do a thing but rest, rest and rest.

Babs, sending all my positive mojo your way and I have to say I'm feeling optimistic.

Aurora, I love that, I think I actually have it saved somewhere. How have you been?

Momallthetime, I've been following your posts about Dani and it's overwhelming to see everything that you're trying to do. I'm sending all my love and big hugs to you both. Dani has been amazing through all of this and so lucky to have you.

Wendy, I'm ecstatic at the results so far from your clinical trial, very encouraging!

Carol, how was your appt today? Did you ask lots of questions and get them all answered?

Lynne, how are you and how is dh? Thinking of you both.

Deanna, Linda, Lindalou, Terre, Andi, Caryn, Jennifer, Deb, txmom, and everyone here, wishing you all well and hugs to all, Annie

Annie oh my goodness, where have you been? what did you take for your pain? why did you have so much pain? wow really missed you.thanks so much for your support.

I FINALLY got a great radiologist onco in a large center that is gonna look after Dani, now comes the part of how to proceed with the lesions in the skull, it's def pushing out of the skin(can u imagine, and she might loose the hair permanently there, IN the front) she will freak out! And the new liver spots, we'll hopefully get answers, sent them all the files, now he's got work to do.

I remember someone sending me info on the UPA, i am so sorry but who was it? Someone told me also about a friend that is a nurse in one of these places i think, I tell you my brain is fried, i gotta get some groceries but cannot leave the information center!, and i was begging for doc in NYC to see us, but she does not take "transfer of care patients" did you ever??? Exclusivety (my word) all the way, that's what they call chutzpah! Really?? We did not need her before, now we do. Sick and sicker.

Carol thx so much for your help. Deanna was it you that sent some info?

Onco now wants to hold off the new miracle mixture till we get rads down. Arghhh. He wanted Lynparza/Keytruda/Herceptin/faslodex.

I better find some delicious Housewives something to watch now, gotta get my head out, it's been a long day.

Love ya all, you are the best!

hi ladies, got my scan results there today and unfortunately results were not good. Been on arimidex 2 months and there has been more progression. Zoladex finally seemed to work this month in 2nd cycle. Spots on sternum and spine are bigger and a few to spin and both hips and sacrum. I was Er+ 100% orginally so was hoping to do well on hormone. He also said that there as a little fluid on my lungs!!! He said that there was a shadow but that it was not confirmed as cancer. No lymph nodes or nodules so they were keeping an eye on it. Sounds like cancer to me. 1.4mm spot of liver still same. Also can't confirm that is cancer, has been there a good while unchanged. He says its just in my bones. He's doing chemo. Abraxane which I've never heard of. 1 every 3 weeks. Anyone any experience on this drug or thoughts. I asked about other chemo and he said this one is very good for what we need, it will work quicker than hormones...I don't know. I have holiday booked 10th July for 2 weeks in the Mediterranean. He is letting me go and starting immediately when I get back, week beginning 25th. Don't know if I'm crazy to delay treatment but need a holiday. He has stopped me going away before so I'm sure he would have put his foot down.

Lindae45 - hope you get on that ibrance trial. I would have like to try it orginalky 2 months ago but not available in UK yet.

Debi - good news about result esp lung nodule. I'm. 100% er too and first ai did nothing.

Cjanet - hope the xeloda kicks it's ass

Wendy - great news about your trial results! What have you been doing diet wise?

Hindsight - have heard kadcyla is very good. Read an article the other day a

bout a woman in uk who has been stable for maybe 3 years on it. My Onc said something about bone marrow in my bone biopsy. I asked him if I had bone marrow mets and he said everyone's bone marrow is effected so I didn't really get a proper answer.

Momallthetime - Hope the next line of treatment works well for your daughter. Sounds interesting.

Babs- hope you get good results .

That's good to hear Aurora, thanks. Maybe it I can get things under control with this for a while. Hopefully then ibrance will be available in the uk

Babs thx, will have meeting with rad onc today.

I hope whoever gave me those wonderful names Chime in.

LovesM working on the one on DF. But a yr ago when I tried to see someone there, they called me and said she would have to be off e/t and then they would see her, could that make any sense?

LillieMillie - don't panic about the fluid on your lungs. (did he say "in", or "on"?) I had so much fluid in the area surrounding my lungs that one of them was partially collapsed. They kept draining them, and they would fill back up again.... but they tested the fluid over and over and NO cancer cells. Finally I had a pluerodisis (sp?).... a not so pleasant surgery - twice - once on each lung - to drain the fluid and do something to the lung and surrounding area so that there is no longer any room for fluid. (hard to describe) My lung re-inflated and I haven't had a problem since, and that was three years ago. So...I guess that is a long way of saying that even though there is fluid, it doesn't mean there is cancer floating around in it. More often than not it's a side effect of one of the drugs you are taking.  So glad you are getting to go on vacation! It sounds wonderful...I hope you can relax and enjoy.

Hello to everyone else!

XO

Andrea

Thanks Andi67 for the post. He said no cancer in lung could be seen and lymph nodes looked fine. He said it looked shadowy but they coukd tell what it was. Had mri and ct scsn. I'm not sure whether he said on or in. I know he said at the bottom but tried to reassure me that this chemo would go straight to any areas of cancer. 3 years ago you would have been on arimidex as I'm on now. Hopefully it is some weird side effect which is what I choose to believe until I get back from holidays. He'll xray my chest when I get back and see what's happening. This thread is a lifeline at times when we are worried!

Babs, that's fantastic news! We're doing a happy dance with you!

Cathy

Yay Babs! Great news! Also NED, just found out a couple weeks ago! Celebrate!