in need of info asap

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I am new to this and not quite sure how to use or how this goes. However, last summer at this time; I 'thought' I had a thriving, strong, healthy 70 year Mom that no one would EVER be able to guess her age if you were to meet her. She's not a typical older woman. She has always been a fighter, strong, a fixer. In October of last year; she was mis-diagnosed with lung cancer. They never found cancer in her lungs (only dead cells) but after numerous biopsies; they found it in a lymphoid and called her in to break the news that she had lung cancer, They aggressively treated this cancer with high doses of the 'bad' chemo and in April; we were told that she would soon end chemo and be placed on Octovo (?) a oral form??? She ended up in the Hospital and while in there - her Dr said it was not Octovo that he intended to use for her but a clinical trial instead that he had already gotten approval from insurance to do. Nurses read some test results to my brother with the Dr no where in sight and the test results showed a much more serious situation than the Dr was saying. It was never lung cancer in the beginning. It was breast cancer that was now spreading throughout her lymphoids and well, just everywhere. He no longer sees my Mom. He sent her home and Hospice calls and stops in from time to time. We're trying so many things.... We all ran out and got our medicinal cards to get her sauves for her tumors (1 that had been radiated and has blister looking bumps on it) and the cbd oils. We know we can't save her but we are trying to buy time. She went to a nature store and they suggested apple cider vinegar. She did her two tablespoons of it for a week or so then her radiated tumor under her arm pit started to seep / drain fluid in her sleep. She is blaming the vinegar and stopped using it. Shes very sore and in so much pain. skinny. The pain just seems to move non stop. Can anyone tell me what this fluid is and if the vinegar did make it drain? Is that a good thing or bad? She's been shivering and saying its cold to her but its been 80 degrees, I am a new believer in holistic methods; I think and want her to continue the vinegar and anything else they suggest but I also want to respect her wishes. She won't tell Hospice how bad she is; really. She (and us) want to take care of her at home as a family. But I am no Dr and just want to make sure that this fluid is not a sign of something worse happening (as if that could even be true) and us just ignore it. I've been putting sauve on it and bandages to protect but I just really need answers! Anyone with any knowledge of any of this would be so greatly appreciated as I am completely lost!

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  • Why2015
    Why2015 Member Posts: 38
    edited June 2016

    It sounds like your mother may have an infection and maybe that's why she's having chills why don't you ask the hospice nurse what they think? I'm sorry for your troubles and sorry for your mother just be there to support her. Hospice is a wonderful service, and I'm sure they'll do everything to keep your mother comfortable. I was a hospice volunteer years ago it's very very difficult to try to help someone at home who requires hospice care. Back then they used to have an appointed primary care giver from the family and the hospice nurses would come in and out of the home. Since then so many hospice centers have been set up and it really helps the patient and helps the family. I'm so sorry for the misdiagnosis you mentioned.

  • marriemariegarland
    marriemariegarland Member Posts: 2
    edited July 2016

    My Dad and Daughter do take care of her around the clock as her primary care givers. My Dad and Mom decided together that she would stay at home. I am on my way out there now as she has taken a huge turn for the worse. Monday they started treating her for a UTI but it seems as if now it is something way larger. Her mind is very foggy and things are starting to happen that are very out of character for her. I went last night to help. Her poor feet were / are so very swollen along with her tummy and she's having trouble remembering things. Night time has been a nightmare. She has really declined this past week. I am honestly afraid to go because it makes this so much more real. My Mom is one of the greatest people ever and this just isn't how I ever would have imagined losing her. Seeing her suffer is heart breaking but her not being here is even more heartbreaking. Is it crazy that I still keep thinking this is something that will pass and she'll feel a bit better in a few days??????? :(

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