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LoveMyFamily
LoveMyFamily Member Posts: 58
edited July 2016 in Just Diagnosed

hello, friends... was dx w idc June 6, met with bc surgeon June 10.... had a lumpectomy w 2 nodes removed june 14 (the surgeon had a cancellation so i was able to get right in)... also removed some dcis, which my surgeon sd is often found in the breast tissue/ducts near the tumor. Looks like I'm stage 1a, as the tumor was 1 cm and nodes were clear. I'm 53. My tumor was found via a 3d mammo. Confirmed by ultrasound n biopsy. Such a crazy time. So many emotions, fears, anger, etc. I'm a walking talking psa for mammograms. Have a lot of support from friends and family but still on so many levels feel alone in this journey I never bought a ticket for... having some sleep troubles... ppl advise me to stay positive... in general I'm an upbeat person so I have no doubt I'll get to the positive side but right now my primary emotion is fear. I figure you all can relate. Awaiting onco dx test and other pathology but the tx path I'll likely follow is radiation and endocrine tx. My idc was er/pr + and her -.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited June 2016

    LMF, The BC DX is devastating and unfortunately fear comes along with it. So glad you are moving forward so quickly! You are very fortunate in that regard. It is a crazy time, for sure. It takes a while to wrap your head around the DX, but you will eventually come to terms with it. Although "staying positive" is important, for most of us, it is easier said than done. I found that once I knew what the game plan was, it put me more at ease and then I was ready to fight! Meanwhile, stay busy doing things you enjoy, surround yourself by those you love, let your support system in and ask them for specific things, as you need them. Pretty soon, you will be looking at it through your rear-view mirror! Best wishes in your TX and recovery.

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2016

    LoveMyFamily, Welcome to Breastcancer.org!

    We hate that you have to be here, but we're really glad you found us. As you can already see, this Community is full of supportive, helpful members always wiling to share advice and encouragement. Your fears and uncertainty are normal aspects of receiving a diagnosis, and as keepthefaith mentioned, you'll feel much better once you have a treatment plan in place. In the meantime, make sure you browse these boards, post your questions and engage in the support here. We're all here for you!

    Thanks for posting and please continue to let us know how you're doing!

    --The Mods

  • plumster1
    plumster1 Member Posts: 270
    edited June 2016

    LMF, I totally understand. I'm one year out and I still can have very fearful moments. The good news is I also have moments when it doesn't even cross my mind. So I figure the longer since it happened the better it gets mentally. Keep your spirits up. I know how hard it is


    Hugs

  • Kawigirl1260
    Kawigirl1260 Member Posts: 60
    edited June 2016

    Hi LMF! Welcome! You'll find some wonderful support here. You have a very similar situation/dx as mine. And I've had so many girlfriends tell me that they got a mammogram because of my situation. We're both so fortunate that our BC was found early!

    So glad that you have good support. I do too, and that helps so much.

    All of the emotions you described are natural and to be expected. And, yes, you'll feel better when you get that treatment plan in place. We become experts in areas we'd really rather not be and never thought we would. Take care of yourself and let others take care of you, too. Keep breathing............

    Peace

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2016

    Welcome! I have found that friends and family who have not been through it want to say something nice and helpful and supportive, and usually it isn't the right thing to say haha. "Stay positive" is one of the sayings that doesn't really help me; here are some sayings I like better: "Get educated, get a plan, and you will feel more in control." "Get on a forum and talk to other women who have been through it" (you did that). "Get a second opinion from an NCI designated cancer facility" "Let me know if you need a ride to a doctor's appt or some cooked ahead meals you can re-heat when you don't feel like cooking."

    Since friends/family don't know to say things like this, you can tell them that is what you are doing, and also ask for that specific help "If I need a ride somewhere....." or "would it be too much to ask if you cooked a few things that I could heat up when I'm not feeling great?" People LOVE to help -- they just truly don't know what to do/say. And unfortunately, you may find a few "friends" who are actually just acquaintances; weed those people out fast you don't need ANY negativity right now.

    Also, a book that really helped me was Dr. Susan Love's "Breast Book." You can get it on Amazon. I read it cover to cover and highlighted and dog eared. It helped me a lot. One of my favorite things she said was when her patients ask her "when can I just get my life back to normal?" she says "there is no normal after breast cancer; it is different now." Once I accepted that, it made things a lot easier. I realized I just needed to find my new normal, and stop trying to go backwards to a time and place that didn't exist anymore. By the way, I had to go to palm springs to work the weekend I was waiting for my biopsy (which I KNEW would be positive) and I decided to finish work early and go to a movie at 5 pm. I got to the nearly empty parking lot early on a weekday and I sat in the car and cried and screamed for 15 minutes -- I cried so hard my sinuses clogged all the way to my eardrums. I screamed out loud at how my life would never be the same. I wailed. And then I was done, and I have rarely cried since. That was my way of "staying positive": sometimes in order to get to the positive you have to let out the grief and the rage and the anger, and then you can get busy with creating your future.

    You will get through this and you will have a new normal; it will be different, but maybe it will be better.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2016

    To all of the above, I would also add:

    Be flexible--you can’t expect cancer to fit neatly into your schedule. Abandon preconceptions. Never suppress your concerns--ask questions and demand that they be answered to the best of your care team’s ability, and demand you be given accurate information as to your options. If you are skeptical about what is being recommended, ask to have the rationale explained in as much detail as a lay person could understand. Above all, do not ever be afraid to question authority or of hurting a doctor’s feelings. Repeat after me: they....work.....for.....YOU.......not vice versa.

    My diagnosis is pretty much the same as yours. You will get through this. The year ahead may suck, but probably nowhere near as badly as you feared.

  • badger
    badger Member Posts: 34,614
    edited June 2016

    hi LoveMyFamily and welcome to BCO. It's the best club you never wanted to join.

    My dx is similar to yours - digital mammo at age 50 picked up an area of concern that turned out to be IDC. Had bilateral mastectomy due to family history. Sentinel node biopsy found micromets in one of four nodes so opted for chemo. Didn't need rads and opted out of reconstruction. Did five years of tamoxifen and now on anastrozole. So far so good.

    You've gotten some great advice so I'll add one thing, exercise. I started a walking program after surgery with a slow shuffle to the mailbox and back. Kept track of my steps/distance and have now logged more than 6,000 miles walked (see signature line). Start slowly and build your strength. Listen to your body and your doc. You've had nodes removed so please check out this excellent thread about safe exercise for those with or at-risk for lymphedema. https://community.breastcancer.org/forum/58/topics/801453?page=1

    My 'home thread' is the Let's Post Our Daily Exercise in the Fitness forum. It's a great place for friendship and support. We have members of all ages, stages and fitness levels. Join us!

    Best wishes and gentle ((hugs)).

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hi Lovemyfamily,

    All of what's been already said is true...I am still fearful at times, and always 2 weeks before my check ups (just had another day before yesterday so fresh on my mind). I tried to flip what I heard into a positive. You are a walking PSA for mammos? Good for you--it might have saved you from a worse dx. Stage 1A is great, as is the negative node status and size of b.c.

    Even when I was getting chemo and felt awful, I looked at it as proof that the chemo was doing its thing, systemically, because I had proof with all the SE, and I told myself if it's getting to the good cells and making me feel awful, weight loss, hair falling out, etc, it was also getting to any bad stuff.

    I never talked about "my c", never called it the Big c, never gave it any power. And always talked about it in past tense. The c WAS, not is, etc.

    Hang in there. This is just a bump in the road and temporary. You'll be okay.

    Love,

    Claire in AZ

  • LoveMyFamily
    LoveMyFamily Member Posts: 58
    edited June 2016

    Thank you, everyone, for the warm welcome into the Sisterhood (or Humanhood, to include the men with BCA). Had my post-op apt this past week and the incisions (3) look good... I developed hives after surgery, which I thought were from the surgical tape... electronically (we are linked online), the surgeon said I could take an antihistamine and if I really was in discomfort I could take the bandages off early. Did so (it was a week after sx). When I saw her for the post-op (day 8 after sx) she took a look at the hives and surmised they were actually from the antibiotic (Cefazolin) they gave me during surgery, since I am allergic to penicillins. I still have the rash and am taking 1 10 mg Zyrtec at night (bc it makes me sleepy). Last night I put some Cortizone cream on my arms bc they were so itchy. Anyway, she replaced the surgical strips (steristrips) at the post op and told me that leaving them on for a couple of more weeks would help minimize scar formation. I asked about neosporin and she sd studies have been shown comparing neosporin use vs surgical strips and the surgical strips are associated with less scarring. That was a surprise to me.

    I have 2 young daughters (I know, at age 53, when many of my peers are grandmas)... we built our family through adoption and these girls beat the odds to be here healthy and full of light. Ages almost 5 (actually bday party planning today) and almost 11. (Pls don't judge -- I've had online folks tell me I was selfish b/c of my late-life parenting and being judged by anon ppl online (on the Weight Watchers site of all places) hurts me, but this does not seem like that kind of community.) IMO God has a plan for all of us and these two sweeties were meant to be part of ours.) We have a lot of creativity in the house -- lots of writing and music and dance -- so together the three of us have started a creative project about the breast cancer experience (I'll share that down the road... it's gestating/in early development just now), which helps it be less scary for them, and for me!

    I have an initial consult with a med oncologist this coming Thursday. Don't have my OncoDX results yet --- did insurance cover that test for you? The surgeon just ordered that test for me the other day -- per the front desk folks, OncoDX is part of the usual workup, so I didn't think to ask the surgeon about it until post-op. Turns out she didn't order it. So now she has.

    I've been getting lots of support (meals and child care) from my network of friends/family. Feel blessed in that regard. Plus, my husband has a TON of leave time so he will likely be able to work just half-days on most of my radiation days (so he can be with the kids), so that's a relief.

    Thank you for all of the great coping tips. I appreciate your support so much. xo

  • Penster12
    Penster12 Member Posts: 5
    edited July 2016

    we sound like twins... My surgeon appt is 7-12.. Trying to stay happy.. We'll see...

  • Ingerp
    Ingerp Member Posts: 2,624
    edited July 2016

    Just adding to the "this too shall pass" chorus. FWIW--I did not have the onco test but my RO said given the grade/size/hormone receptor status of my tumor it would come back high. Once she told me rads would cut the probability of recurrence in half, it was an easy decision for me.

    I think two things have really helped me. One was having confidence in my medical team. I always felt in charge of the decisions through the process but they gave me good information to help me make those decisions and I never second-guessed any of them, ever.

    Second is a little weird--I think it's important to stay busy while going through tx. It just so happens that about a month before my DX one of my kids told me he'd decided to get married. At my house. In late June. The day before we were already scheduled to host about 150 people for a pig roast. My spring was interesting to say the least but I so did not have time to obsess about the BC. Just did not have the brain space for it, so I can't say it ever really consumed me. I did have occasional teary moments, often at unexpected times, but you should keep in mind you have other things to turn your attention toward--like your two beautiful girls.

    Go dig up the Rads discussion thread for the season you'll be going through it (I know Summer 2016 is already up and running)--there's nothing like e-chatting with people going through the exact same thing you are. Wonderful advice and support.

    This will not be a fun couple of months for you but at some point you will come out of the other side of the tunnel. I promise.

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