patty

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  • Northtexas
    Northtexas Member Posts: 67
    edited June 2016

    oh peppermint, I'm so sad to read this. You're a true inspiration of hope and faith. Always helping and encouraging others. I pray God will give you pain free days and peace. Please get your pain meds adjusted.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited June 2016

    image

    Hi Patty, we had the most awesome thunder/lightening storm last night. Nature doing its thing.

    I hope you are getting adequate pain meds. I am so much more productive & calm when I am not fighting the pain.



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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited June 2016

    I hope you feel the sheer love we are sending your way. I may not be able to wipe away your sorrow from the effects cancer is having on your family but take heart I know the pain you are in. My heart is broken to see the effects cancer is having on my kids and husband too. The heart will heal. Your boys have an incredible Dad and great love for each other. They stay by your side because they love you. The seeds of love last a life time. I hope your pain is better controlled. Take another pain pill and have a glass of wine. Chocolate too. Prayers, lovingkindess and peace to you. Much love rosevalley

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    image

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Dear Patty,

    Popping in from IT to offer gentle (((hugs))

    I have lotsa mets to my bones and spine too. The pain is ucky. I don't do well on opiates/narcotics; no relief just really, really bad nausea. My Onc team has been good with thinking outside the box for pain management. I'm waiting to be scheduled for kyphoplasty(s) and ablation treatments. You had posted that you were going to have those procedures done when you were in the hospital. Did you and did you get any relief at all?

    Here's what I take to keep from jumping...ummm limping...out the window:

    None of these make me pukey :)

    Fioricet - A barbiturate that works on the central nervous system. Usually rx'd for severe headaches.

    Tramadol - Considered "narcotic like" and good for bone and nerve pain.

    Valium - Good for muscle and soft tissue pain/spasms. Also eases the panic of "yikes! I am in horrible pain!"

    Provigil - RX'd for shift workers with daytime sleepiness or for narcolepsy. Clears away the "cobwebs" and also eases all over body aches associated with Fibromyalgia. Recent studies have shown it boosts the effectiveness of pain meds. I have found it does!

    Trilisate (Choline salicylate/magnesium salicylate) - This one is new for me, not sure yet how it will work. It is a super heavy duty anti-inflammatory. It is harsh on the stomach, so I'm waiting a bit to try it.

    Cymbalta, Neurontin and Lyrica might be worth a try too.

    Sending thoughts of healing and comfort to you and your loving family and prayers for all.

    Hoping you'll soon be going for your midnight dips in the pool :)

    ~ Shep

    image

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  • Kjones13
    Kjones13 Member Posts: 1,520
    edited June 2016

    patty...I have waited to respond to your post, hoping I could come up with something. I have no words except thank you for being honest and authentic. I hate that you are here, in this current state of being. The pain you are describing sounds horrible. I'm so sorry. I hope you and/or someone in your family can advocate for relief! I truly believe ones outlook can shift dramatically when pain is under control. I pray they can help you! Tears, lots of tears. I love you miss patty! We are here right beside you ❤️

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited June 2016

    Patty. I just started cymbalta 20 and I had pain relief within a day or two. I don't have the same level of pain you have but I was amazed it disappeared. I'm still waiting for the pep my PCP said it would give me.

    Wishing you peace and comfort.

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  • Mominator
    Mominator Member Posts: 1,575
    edited June 2016

    Hi Patty,

    Thinking of you tonight and hoping that you were able to speak with your MO about pain relief.

    I know how proud you are of your sons. My daughters were both in a dance-theater production. Here's the cast members photo. My older daughter has aquamarine-colored hair, the younger one has long, wavy, blonde hair (and has a "serious" expression).

    image

    Wishing you a restful night and a peaceful tomorrow.

    Love, Madelyn

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2016

    Hi Patty....thinking of you and praying that you have gotten some relief....both physically and emotionally. Thank you so much for "real" talk about what is going on, we love you and while we cannot truly feel your pain, we empathize so much for you!

    ((hugs))

    image

    Toulouse likes to hang out on my lap top while I'm working. Little stinker! But he's too dang cute to get mad at long :)


    Love ya!

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  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2016

    Thinking of you, Patty.


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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited June 2016

    Lots of love your way Patty. I pray for your comfort and peace every day. (((Hugs))) rosevalley

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2016

    patty....thinking of you

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    image

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited June 2016

    Hey girl..... What cha' doin" You okay? xoxoxo

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2016

    Hi Patty.....muwah

    image

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  • Mominator
    Mominator Member Posts: 1,575
    edited June 2016

    Thinking of you, Patty, wishing you comfort and peace.

    From our walk...

    image

    image

    S'more says hi to you.

    Sending you love and light.

    Madelyn

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    From my walk this morning on the west side of the country.image

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    image

    image

    image

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited June 2016

    I'm sending my hugs to wrap around you, Patty!!! I remember last year when school ended and the boys were playing in the pool...it still makes me smile. You were feeling better & hoping this damn disease would take a break from making life so difficult. Those precious boys (and all of us, too!) have had you in their lives for that year and you've survived so many really, really tough trials. I know we hope for the miracle of healing, but I can completely understand how you wish this journey would just end, and you could save your loved ones the pain & suffering you feel. There's just no explanation as to why some pass so quickly, while others don't. I pray your Drs will find a way to control this pain...you've suffered so much... all the while, showing us all yourstrength beyond belief. May God wrap you in His arms....love you, Patty.

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  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2016

    image

    Something to give you a smile.

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    image

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    image

    Irish penguins (Razorbills )

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    image


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  • Kjones13
    Kjones13 Member Posts: 1,520
    edited June 2016

    ((((patty)))) thinking of you every day. Sending love, peace, and comfort. Praying that God holds you close.

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited June 2016

    Has anyone heard from Patty?

    Hootie hoo Patty! Hope you're staying cool.

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited June 2016

    Patty...thinking of you....praying for you. ((hugs))

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited June 2016

    I heard from Patty last week. She's still in a lot of pain and making adjustments in pain meds. Plus she fell, hurt her knee badly but thankfully not broken.

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited June 2016

    Thanks for letting us know Linda.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited June 2016

    Thank you, Linda.


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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited June 2016

    thank you!

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  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2016

    Thinking of you, Patty!

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