Here's what cheezed me off today
Comments
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Well, more power to me... I pulled the trigger and decided MO out and BS in :-). My mammo is in 2 weeks and BS is in 3 weeks. I looked at it this way, I will only need MO if I get cancer again and he's fine for that. I am pretty confident I won't need him again anyway and yes he suggested we do a yearly visit. My BS is actually a general surgeon and a damn good one. He was around for all my anxiety calls, etc. and there is more of a chance of needing a general surgeon in the future. Also, I always liked him as he was the father of my children's friends many years ago and I picked him for my team. He was a straight shooter, honest and funny. I'm not always big on trust so I should keep him in my corner. Also, our children are the same age and yes, I would be paying my co-pay to catch up and chat, but that beats the rushed dude who serves little purpose.
Thanks rohanna for the congrats on the 5 year mark. You too if I didn't already mention it. What is interesting is that I gave up smoking June 21 about 20+ years ago and that date I recall, but the BC date I have to look up. Okay, I just did June 9 was the day I got the news/report after an effing innocent yearly mammo.
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This really ticks me off, I can't believe that people who have cancer can't get life insurance until the five year mark because you are considered a risk!!!!!! Hubby was looking into it recently for both of us, but he was floored that they would treat someone like me who can't control the fact that I had BC.
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Mommy, I can't get life or health insurance in my state. It SUCKS!
I have to go see the onc. who replaced my former dr. and I don't like him. He has the personality of a dead fish. Wish me luck on Wednesday!
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Hey rohanna, how did the appointment go? I saw the BS for my yearly and it was kinda BS. I like him, but felt like I really don't need to see him anymore. Heck, the mammo they did on me was a screening. Same as anyone else. Not that it's a big deal, but even my friend was getting some 3D mammos a the same place. She said she had dense breasts and I was thinking not only are mine dense, but I HAD CANCER. Oh well, I am not going to ask for anything more since when they look more, they typically find things to poke and probe. So now that MO is gone, BS and RO are gone, I guess I am back to the GYN like everyone else.
How's your mom doing?
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Hey, Rocky! Appointment with Dr. Dead Fish got rescheduled AGAIN! Just as well, I didn't want to go. Do you see your onc. once a year? I think that's what they want me to do. And all I'm willing to do. They want to do blood work each time but, the inept person who did it last time collapsed my vein. What are they checking the blood for anyway? Already stopped taking the AI, so if that's it, they'll be disappointed.
I'm going to Mom's this week to move her couch out of the den and set up a hospital bed. She still isn't mobile and now we're dealing with severe swelling in her ankles. She has more surgery to remove some skin cancers from her face next month so I guess I'll be there awhile. How's your Mom? Does she still like her new place?
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I am soooo sorry to hear about your mom. Mine has seemed to settle down. Gosh it feels so sad at times and then other times I am happy since she is safe. I now post on an Alzheimer's newsgroup (still under rockym) and it feels like only yesterday we first started being cheezed. Some of our old posts still crack me up. I try to bring a bit of humor to that group, but I suppose so many of the caregivers are in deep, I am afraid of pissing someone off. I know, me? Well, I need them the same way I needed our group back when.
I don't see the Onc. anymore since I don't take the Tamox. He use to have me do blood, but last year said all I needed was a mammo. My BS checked me this year and for whatever reason, I felt a bit creeped out after the visit. He's a good guy, but I could feel his hands on my boobs for an entire day afterwards. Clear sign I am back to the gyn. I only come to BCO now for a quick look. I'll PM you later.
Hope everyone is having an un-cheezed day!
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So I go see the onc. for my 5 yr. visit. Honestly, I could have phoned it in! Anyway, he says let's talk about another 5 yrs. of AI. And I said let's not. Nope, not gonna do it! After all my negatives, he said well studies didn't show any significant results from it. Huh? Then why were you so gung ho for it at my visit 6 months ago? The upshot is this guinea pig will not be on the drugs from hell for another 5 years just so you can see what happens. But I had to wonder why my onc. is so different every time I see him. It feels like going to the principal's office after getting caught putting smoke bombs down the girl's toilets. Not that I ever did that. No video, no proof!
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Rohanna, I'm with you. Not going a day over 5 years.
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Rohanna, I don't blame you. My MO tried the same thing with me in regard to the maintenance med I was on
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rohanna, these guys seem to know so little other than how to order someone to mix chemicals for chemo or write a script for an AL. I skipped my MO this year.. I am so done with this crap. No drugs for me these past 5 and no drugs for me the next 5. By the way, my MO also behaved differently each time I saw him. In the beginning I really liked him, then he seemed way rushed, then he seemed to value my opinions and then is was rushed again. I cancelled last weeks appointment and I will head back to my GYN each year for follow up. Let's hope none of us ever need these people again!
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You guys are so right! Sometimes I feel like I get a different opinion (or doctor) every time I go. Since I'm 5 yrs. out, I also said I would come back yearly but not every 6 mos. like they wanted me to. What am I? Guinea pig or ATM?
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And while I'm venting, let me just get this off my chest (no pun intended). I retired from our local school district after my dx. But during the years I taught Special Ed., many of my co-workers were diagnosed. Like every one else, I took food to the person or sent flowers and cards, blankets, gifts and visited. Not to earn brownie points but because I wanted them to know I was there for them. After I was diagnosed, I heard nothing. NOTHING! Suddenly, I didn't exist. Not a single co-worker contacted me. And to top it all off, my church suddenly treated me like I had bubonic plague. And I had known some of these people and were very close friends with them for years. I didn't need them there for me, but I hoped they would help comfort my daughter. Didn't happen. All I had were my immediate family and the people on this web site. And thank God for every one of them. So I cut off ties with the people who forgot about me and I never looked back.
But here's the thing. A former co-worker has recently been diagnosed and now everyone is flooding FB with prayer requests and asking every one to "pitch in". Even a GoFundMe page! And they want everyone to change their profile pictures. Don't get me wrong. I'm glad she's getting the support, but isn't it a little hypocritical? Or something? I had no enemies in the school system, but it seems I had no true friends or supporters either. In March, a family member was hospitalized with Cystic Fibrosis and none of those former "friends" seem to care. This young man is only 26 years old and he is still in the hospital fighting for his life and waiting for a lung transplant. I know it seems petty, but it cheezes me off that some people become a cause and others are left to pound sand. Everyone deserves to be treated with love and respect when adversity hits. EVERYONE! So I just go on pitching in for the ones who need it and leave the FB Crusade to others. I'll continue to help those I love and those who show me respect. I'll continue to raise money all year for St. Jude Hospital and other charities of my choice. And my fellow cheezers will always be my besties. So. There's my rant.
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Rohanna. I am glad you thinned the heard. I try very hard to only keep people around me that add value to my life (you are still in that group :;-)). I am going to guess that your old co-worker rallies are probably more about timing then anything else. Sometimes people are feeling helpful and generous and other times they bite the big one. Keep doing what makes you feel good and eff the rest!
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Like I said to a cousin recently who is going through some stuff "In times of trouble, people really show their true and ugly side that they hide."
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You guys are so right! Eff 'em! I blocked them on FB. Who needs the negativity?
Anyway, I saw an item in the news that said some doctors are wanting survivors to stay on AI's for 15 years now. 15 years! Not this buckaroo! I don't think I'd make it.Also, I saw an article that told survivors to eat cherries, then a couple of articles down said to avoid cherries completely. *sigh* Sometimes, don't you feel like the world's guinea pig?
And to give you a laugh, I just rescued 2 more kittens. It's getting to be 2 kitten rescues each summer. That brings my kitty count up to 8. Yeah, I know I'm turning into a crazy cat lady but people know I can't let them go to kill shelters so they reel me in. We still have the handsome dude in my profile picture, Smokey, who is now 22 years old. Then we have Mr. Boots, Maggie, Bubbles, Simba, Meowzie, Mo Spunky, and Spiffy Sue.Although, Spiffy Sue might become Spiffy Stu, the verdict is still out. Maybe female, and maybe a male whose junk is reeeeealy small. TMI?
Also, we just got back from Senoia, GA. where we did all the Walking Dead Tours and ate at Nic and Norman's restaurant! It was beyond amazing! I could live there! Or be a zombie there! Beautiful town and such nice people. Check one off my bucket list. What are you guys up to this summer? Hugs and Cheeze!
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Glad you got rid of the negative dead weight! You don't need them!
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Rockym...Just want to clarify that you never took an anti hormone? I have refused them also and like to be in touch with others who have also made this decision. So it looks like you have past the 5 year mark NED! Congrats ! I wish they would follow us so we have some idea how are decision affects our outcome. Don't think that will ever happen though. Continued good health....
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dtad, I took that damn pill for 1 week. At first I was scared not to. I went through surgery and then another surgery when my incision opened one day after getting out of the hospital, then chemo for how ever many months and then the grueling radiation that took so many days away from me and left me a emotional mess. At that point I could hardly bring myself to take that pill, but after taking it for a few days, I hit rock bottom. I remember waiting for my kids to leave for school and then I would go into the closet and scream. I wasn't sleeping at night, I was having hot flashes 24/7 and my mood was the lowest I had ever seen. All this after I had "survived?" At that point I said done. I felt very empowered and soon began to work my way back to a normal person. Anyway, sometimes we just have to do what is right for us. I recall hearing others complain about the ALs and talk about their quality of life going down the tubes. To me it was a no brainer... I wanted to have a decent quality of life and so I did. Now that 5 years have passed, I only think about BC when I come to this site ;-)
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Love to hear survivor stories from those of us that refused anti hormone treatment. I don't think we will ever be studied so hearing from others is comforting. IMO this bc thing is a complete crap shoot. We all have to do what is right for us and I respect all decisions . For me it was about QOL too. Continued good health...
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Hi Ladies.......Please forgive me for jumping in after reading the last few posts but I felt that I just had to share my experience with my onco during a visit 2 weeks ago. It not only "cheezed me off" but hurt & frustrated me to the point of tears. No one except gals like you that have taken this BC journey can understand. I have had some minor se from Tamo over the years BUT now that I am in my 6th yr. the se are becoming more frequent & the duration longer. I have always tried to be a "good little soldier" but the onco pushed too hard last visit & I let him know plainly & clearly what was going on. Looking for some suggestions or helpful advice, I got none!!! What I did get was "you have two options.......keep taking the Tamo or stop taking it". What??? He had told me how critical it would be for my survival rate & now it really didn't matter??? I didn't know how to process this and he barked at me "well, what are 'we' going to do" ? REALLY? he wanted an answer right that very moment?
By the time I got to the car I was beyond stunned, I was crying and so p*ssed off that I found myself yelling into my cell phone at my DH who was just as p*ssed as me. I did not stop taking it yet, at least not until I get a second opinion with a fresh view of the big picture then I will make a decision. It is my body & I'm an older gal well seasoned! Thanks for letting me rant.
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Cheeze away Norma! We've all been there.
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Thanks MOmmmyof2, we all need to vent every now & then and glad we have this place to go. This can be a long, hard journey.
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NormaJean,
A second opinion is the perfect answer. I know it's a lot of hassle but do try to follow through. A new outlook on your case might be just the ticket.
cb
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I am all about 2nd opinions. After I started to pick my team 5 years ago, I didn't like what the first MO was saying. He wanted me to do TAC x 6 and my studies showed I was perfectly safe with T/C x 4. I went to a really nice MO for a 2nd and he was very much on board with T/C x 4. In the end, I took that information back to MO #1 and said I want my Onco test and I will work with you if T/C x 4 if you are willing. He agreed and that was that. I hardly ever saw the guy since it was his office and nurses who helped me through chemo and in the end he retired. I saved myself that dreaded red devil drug and even with the Onco at 22, I decided to skip Tamox. If my sharing can help others to go and get that 2nd, then terrific.
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Need to vent today. Really ticked off over some news we got yesterday concerning my hubby's PT for his wrist that he broke in May in an accident. Now because of someone's screw up when they were notified otherwise about the issue, we have to play the waiting game for it to be corrected and the person responsible for the screw up never apologized to my hubby! I am so mad that the person at fault better pray I don't go with him, because I will let that person know how ripped I am over this.
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Sorry I haven't been around for a while. My sweet 22 year old Siamese passed away a couple of weeks ago and I just haven't had anything positive to say. His picture is my profile picture. This sucks!
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I am so sorry for your loss. I truly know the pain of losing a kitty. I had my 6 year old lap cat pass about a month before we moved out of state. A few years back I had to put my 20 year old sweet kitty down. It was heart wrenching. Both times I walked around in a daze for a bit. I have two matching tabbys now and we love them dearly. Take care of yourself :-(.
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I'm sorry to hear this, Rohanna. Losing a kitty leaves a terrible hole. I hope in time all the good memories will help with your grief. I still miss kitties who died years ago.
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Thank you! I still look for him and sometimes think I hear his footsteps in the kitchen. I know it will get easier but it sucks. He was only 3 years younger than my daughter so he was pretty much a part of her life since the beginning. She got a new kitten and he's a handful! It's like having a naughty toddler in the house!
Anyway, have a great weekend and keep on cheezin'!
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We lost our precious sweet nephew, Cody, to cystic fibrosis last night. He was only 26 years old. My heart is so heavy, I can't find words.
Live every day to the fullest. We have so few.
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