Need to be talked off the ledge!
I am 36 years old married and a mother to the most beautiful 7 month old. Two weeks ago I noticed a pea sized lump below my nipple on my right breast. The Breast Center did an ultrasound Tuesday and it looked like a fibroid adenoma but she said I needed a core biopsy. She said the mass was about 1cm x 1 1/2 cm. it's moveable and not fixed and it rolls. She said I had an 80% chance of it being nothing.
Today I went for the core biopsy and after doing it she said she was more concerned and gave me a 50/50 chance. She said the margins don't look good. I now have to wait a week for results. She said she didn't feel any lymph nodes swollen but I feel like one hurts under my armpit. But also that could be in my head.
How do I get through this week? I am terrified I will have to leave my husband and daughter. I already lost my previous husband to cancer in 2012. I can't do this again. I am a basket case and on the verge of a breakdown.
Prepare for the worst and hope for the best
Comments
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Dear Scared - I'm so very sorry you're dealing with this, especially after going through your late husband's illness and death.
I don't have any secrets to share - I've spent plenty of time on that ledge and despite efforts to stay busy (distracted) and do pleasant things, think positive, etc., for me it came down to just dealing with the passage of time.
If you can, you might want to talk with your MD about some Ativan or similar to take the edge off and help you shut down your mind so you can sleep at night, if that's an issue. Exercise may also help.
You might also call to ask if there's any chance you could get your results any sooner. I had mine in 2.5 or 3 days. Hang in there. I know it's awful and I deeply hope you do get good news.
Edited to add - the initial biopsy report was not totally complete but it did give me the information I needed to have some idea of what I was facing. The complete report took a few days longer. It's possible that your facility doesn't plan to release your report until all the testing is finalized.
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thank you. I am just having ahard time wrapping my head about the possibilities. I have never known anyone to "beat" cancer so it seems like a death sentence to me even though I know it doesn't have to be. I am finding it hard to look at my daughter without thinking the worst.
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I am so very sorry you are dealing with this, and at such a young age. I do not understand why "the professionals" feel bound to guestimate what is and is not cancer. They cannot know. Even if they think they know and it acts, feels and looks like something they have seen similarly, they CANNOT KNOW until it is in a dish and a pathologist has looked at it (and from recent news, even then some people get second opinions).
They assured me mine had a very unlikely chance of it being cancer...that it looked nothing like cancer *should* look. They were wrong. They assured me the MRI is 99.9% accurate. They were wrong.
It is nerve racking to wait for any result, never mind cancer....ask for anxiety meds if you need them to get through the wait time. There is no shame in it.
As for people who have "beaten" cancer....Julia Child died at 93 from a viral infection. She was diagnosed with breast cancer at 54 (I think) back in the "dark ages" of cancer treatment. There are many famous women who are still alive, 20+, 30+ years after a breast cancer diagnosis. Gloria Steinem is 82, still going strong and was diagnosed with breast cancer in her 40s or early 50. My gyn (in WIi) was diagnosed at 31 with 2 small kids. She is 65 and traveling the globe to offer free women's health care now that she is "retired."
Don't assume you have cancer till you are told you have it. There will be plenty of time to be angry, worried, scared. Right now, enjoy your family and friends and don't presume the worst till they tell you.
Best to you!
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Dear Scared,
First, I'm brand new to this club as of 6/2/2016. It truly is a place where you can tell all of us how you feel and we understand. I'm also sorry for what you have been through.
My testing facility said it would take 48-72 hours for the results of the core biopsy. I was lucky that I was notified after only 34 hours.
Tomorrow call the office of the Doctor who ordered the test and ask if the results have come back. If not, ask how long it takes normally for them to get the results. Also ask if they will call you with results or if you have to wait until your scheduled office visit. (It is the policy of my facility to call immediately when test results are available when waiting for cancer results).
Until then, try to think the best and know that I'm Sending good vibes for you and your family
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scared7755 I know how you feel. My cancer experience to date is my husband and father who both died last year after two years of treatment and relapses and a friend who died last year after a much shorter time. Going through the assessment process I was in the same place you are. You're brain is saying there's no cancer until the lab says there's cancer. No matter how bad the images may look they can't know for sure. Sit tight. If it is cancer you have plenty of time to melt down then.
Now that they know for sure with me I have to try and see the differences between my cancer and theirs which is something I'm not good at yet. I am finding it much easier being the patient than being the carer so that may be some solace to you. In the absence of a father Itry to embrace my children with strong role models who share the same values as me so even if I'm not around to raise them they will be raised in a way important to me.
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thank you for the good vibes. I need them. I already asked them about that (I ask a lot of questions). They said I can try to call Tuesday for results. They said the lab is slow and they won't have them sooner. I don't have to come in. Although obviously if the results are bad I will have to do a follow up. There are so many positives that it's moveable and not fixed and I am under 40 with no history of breast cancer but I know that doesn't mean anything. The margins aren't good so I know that's a sign of cancer. Is it possible for margins to be bad and it be something else
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yes, xxyzed. I know what you mean. It's always terminal in my experience so it's hard to think if I do have cancer that I will be able to survive it. I compare it to my husbands. Logic says not to do that but I am lacking logic and sanity at the moment.
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ladies, you are amazing and totally right. I will have plenty of time to worry so I don't need to do it now. I need to reign the crazy in and relax a little. It's just so hard looking at my little girl and wondering if I will see her grow up. I have to think even if it is the worst, we still don't know what stage it is or anything. Maybe it's early
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Blessyour heart Scared. The fear factor is something we all truly understand and empathasize with. Believe it or not the TBD phase is the hardest.
I got my biopsy results in a few days. Thing is I already knew. The mammo showed one breast was bigger than the other. I had never been called back in after leaving the facility until then so I was braced for THE call.
We all hope and pray it isn't BC but remember even if it is you can handle it. We are all testaments to that.
So enjoy your family and do take meds for anxiety if you need to. No harm in that at all.
Keep us posted and keep the faith.
Diane
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Scared....time for some Attivan and Ambien! Good girl getting checked out so fast. They should have your results much sooner than a week. I wish you all the best and hope you fall in with the majority of lumps and bumps that it is a blocked milk duct or something. If not, get a treatment plan and you will take it from there. This is not a hit and run. It is not a death sentence. An inconvenient little bitch but one who can and will be kicked to the curb if needed. Get some rest and hold that lovely little girl. Her mommy will be here for her for a long time!
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I was you - I was diagnosed with BC at age 34 with a 9 month old at home. Here I am, 24 years later, alive and kicking.
I agree with the suggestion of a little Ativan to get you through the next week.
Joan
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thanks ladies. I think you are right. Definite drugs needed. Thank you for calming me and knocking some sense in my scrambled head. I don't have cancer until they tell me I have it. Masses with irregular margins may sway towards cancers but it doesn't mean it is. If it is cancer, it doesn't mean I am going to die. There are wonderful women like you guys that are proof of that. I just need to step back and handle this problem one step at a time and quit jumping 10 steps ahead.
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Also, masses that are mobile sway toward benign. It is unlikely that you have cancer, but if you do, look around and see the vast majority of us are very much alive and kicking butt. "You got this"....whether or not you "have it."
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It's mobile but has irregular margins. I think it's the margins that has the dr and me so concerned.
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Im not sure what is meant by irregular margins? Do you mean edges?
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yes the edges are not smooth.
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Talked to the nurse today. She said the lump was 1.6 x 1.4 cm. the ultrasound on Tuesday showed it as oval with smooth borders but the ultrasound on Thursday for the biopsy showed it mostly oval but with a few irregular borders. That is the reason for the concern going from 80/20 to 50/50. Could it be that there were two ultrasound techs and the angle of the wand? No results yet. She said it's going to be Tuesday or Wednesday.
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My borders were perfectly smooth. NO spiculated mass --at--all. They were convinced no cancer. Again, they were wrong. Changing from 80/20 to 50/50 is meaningless. I hope your results come in sooner rather than later so you can get on with your life. It breaks my heart because I so totally know what you're feeling, and it won't change a thing. I need to remind myself of that every time I go to the doc for my physicals. THey cannot "GIVE" you a disease you don't have and they cannot change what is already there. Deeeeeep Breath!!
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you're right. The odds changing don't mean anything. Only the pathologist will know. I guess I have been looking for alittle hope wherever I can find it to get me through till next week. At the end of the day it doesn't matter. If it's cancer, me worrying and freaking out won't change it. It's either there or not. It's definitely something because the dr said she didn't pull fat out of me
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Overthinking it won't do any good. It is or it isn't and either way you will manage. Love your little girl and get on with life until you're told it's something to worry about. Easier said than done but try your best
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well it looks like I have cancer. So far they are saying stage 1a grade 2 tumor. IDC. Ladies I can beat this right ????
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I'm sorry it wasn't benign; I'm sure we were all hoping it was.
I wish you well as you wrap your head around this, assemble your team, and figure out your treatment plan.
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Scared....YES you can beat this.It is not an automatic death sentence but we all know how scary it is! The beginning of this process is the worst. I promise you will feel better when you have all the facts and a treatment plan. So far your stats look encouraging. Try to stay positive and don't hesitate to ask for meds to get you through this tough part. Good luck. We are all here for you.
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thank you dtad. Your words are encouraging. I see that you have a similar diagnosis (even though I am waiting on my hormone receptor and HER results). Looks like you had surgery. Did you have chemo and radiation? Are you in remission at this point
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Scared, I'm sorry this turned out to be BC, but the happy news is that a stage1 BC isn't likely to kill you. As my MO said to me, "This next year is gonna suck." And it has, but I continue to fight and am mostly done with treatment now, except for taking my AI and one more preventative surgery. It's been almost a year since my BC was found and I am thriving. I am back to my baseline activities, and probably would have gotten there sooner if I hadn't had so many complications from surgery.
I won't lie and say that everything's all right. I don't know when/if I'll ever go another day without the word "CANCER" being part of my thoughts. It doesn't help that my DH has recently been diagnosed with aggressive prostate cancer; he will have radical surgery next month, so we are both sort of shipwrecked right now. But we have our Xanax and the occasional rum & Coke to help us through. (that reminds me--need to buy more rum.)
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thank you for the encouraging words. I have to think the majority of breast cancers are best into remission. How long they stay that way is a different subject but for the time being I have to think I will beat this. Like you said, it will suck. But I will come out thriving like you on the other end.
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I'm so sorry it turned out to be cancer...you've joined the club no one wishes to join. A biopsy can only tell you so much information and give you a preliminary staging. I'm sure they will want to do a lumpectomy or mastectomy (depending on what they determine) and you will move from there. I agree, once your treatment plan is in place, you will feel much better about all of this, as much as anyone can.
There are new treatments down the pipeline. So, focus on getting through treatment and see which doors and avenues open up for you. Allow yourself time to grieve and process what you are dealing with before you start thinking about the next 20 years. Day by day and time flies by quickly.
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Scared....I didn't have chemo or radiation. Had a BMX and so far have refused anti hormone therapy. Private message me if you want to talk more. Refusing standard treatment is not received well on the public forum. I don't think remission is discussed until the 5 year mark. I am doing things to lower my estrogen levels naturally. However I'm much older than you. Had I been your age when I was diagnosed my decisions may have been different. We all have to do what seems right for us. May I ask where you are being treated? IMO it's very important to be at a university based teaching hospital. Good luck and keep us posted....
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I'm so sorry it didn't turn out to be benign! We've all been there and it can be overwhelming. However, your stats are excellent - Stage 1 and ER, PR+, her-2 - and the odds are you'll end up on the right side of the equation. Day by day, day by day as soon as you have a plan, you will feel better PM me if you'd like to talk more. I was also diagnosed when I had an infant at home
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You will no doubt have an Oncotype Dx test done on your surgery pathology specimens, and that will really guide your treatment these days, with most doctors- as long as you are HER2-.
Sometimes the Oncotype is unexpectedly low, or high, given the pathology results such as grade. The idea is that some people will be more harmed than helped by chemo. The Oncotype report gives a lot of information on treatment options and recurrence rates. Anti-hormone meds can half risk of recurrence for those whose tumors are hormone-sensitive.Until you really need to research and get opinions (2nd opinions or even more are fine), watch a lot of Netflix, and take some Ativan or whatever to help with sleep- unless you are nursing!
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