Exercise and well being during chemo and radiation

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  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Thanks Andra, ksusan and CJ! I just did a 30 minute walk. It definitely makes me feel better to walk! I also did at 30 minute weight workout with an online trainer that I use sometimes. I think his service would be perfect for so many chemo patients who don't want to go to a gym. He is very reasonable (about $20 a session) and he works over Skype or Google. He will incorporate whatever equipment you have or none at all. Just having the appointment makes me keep to a regular schedule.

    CJ, thanks for the comment about the cat boxes. I know I will end up scooping litter. We have seven cats and 6 of them stay in a big cat condo at night (because of multi-cat spraying issues if they are left free). Each compartment has a bed and a litter box, so there is a lot of scooping to do sometimes. If my DH is not home I can't stand to leave them dirty. I will wear gloves and a mask. And I'm trying to wash my hands every 30 minutes and after any germ-possible contact. But I've already had the toxoplasmosis infection many years ago before I was pregnant (showed up in my pregnancy bloodwork). I'm not exactly sure which things we are most susceptible to when our blood counts go down. I will avoid all public places because I think people germs might be my worst enemy. And because it is always dirty and dusty in a rural environment, I may wear a mask when working outside and be extra careful not to get any scratches or bug bites.

    My MO will not give me the Neulasta unless I develop febrile neutrapenia or some other serious symptom. She says I am not eligible because I am not yet 65 and have no co-morbidities. And she made it clear (in a nasty way) that she will NOT make up anything to get it for me. I never even suggested that! I will be happy to switch MOs when my chemo is done. Good thing the nurses are so nice.

    ksusan, thanks for the EMLA tips! I'm drinking as much as I can stand. I hate drinking when not thirsty.

    Have a good exercise day, everyone!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited June 2016

    One down, Moondust! I cleaned catboxes all thru chemo. I just used gloves and a mask like you. Never had a problem. Interesting your MO won't give you neulasta. I begged my MO to let me skip it! Its as nasty as chemo! He made me take it every time. But....it kept my white counts high and I never got sick, so hopefully it was worth it. Good luck!

  • Andraxo
    Andraxo Member Posts: 410
    edited June 2016

    Very interesting indeed about the Neulasta. They wanted me to have it (age 46) every round. I did for the first round and had an allergic reaction to it 3 weeks later (hives, angioedema, dermatographia - ended up on 3 antihistamines) and could not get it again. It sucked anyway in terms of side effects! I did just as well without it (never got sick and I worked...in a hospital). Hope you do well too Moondust!

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    I'm feeling much better about my chances of staying healthy knowing that you worked in a hospital the whole time, Andra! And that you and CJ cleaned cat boxes, LBF. Sounds like I'm just as well skipping the Neulasta unless I really get in trouble. The nurse said I would have a blood test before each infusion but not in between. Is that what you all had? If so, they must just go by symptoms to know if your blood counts are too low. I'm beginning to think I am at a real "minimalist" cancer center.

    Andra, I'm going to look into henna tattoos in a few weeks! How is your body recovering from the run? I am going to try to keep up my steps and fit in some hikes, but not do anything really strenuous. Oh, and I'll do my weight training too.

  • Andraxo
    Andraxo Member Posts: 410
    edited June 2016

    Moondust - I had the same...only labs right before the next chemo. Twice my white count was too low for chemo (scary low) and I had to wait another week. SO I went back to work. I carried hand sanitize everywhere clipped to my jeans by a carabiner., but I still lived my life normally. I didn't hide out even when my labs were bad, but i did avoid sick people and my friends who were sick steered clear of me (yay!). Excited to see your henna when you get it! I loved mine!

    I never got sore from the half marathon muscle wise. Maybe because I soaked my legs in a very cold river for 10 minutes after - that really does make a difference whenever I've had a river to do that in after am long run. My joints are still the same as they've been for many months. I ran 5.5 miles yesterday, lifted weights today, will run 6 miles tomorrow morning before hitting the road to Oregon.

    Currently though...I 'm feeling a little off and have a rash again...kind of looks land feels ike the start of shingles again. *sigh* not sure if it is possible to have it twice in 6 weeks. hope not. Going on vacation anyway! :)

    have a great weekend everyone! - xo

  • octogirl
    octogirl Member Posts: 2,804
    edited June 2016

    Hmm...Interesting about Neulasta...I had Neuprogren, which isn't quite the same thing, per my understanding, but serves the same purpose. I am NOT yet 65 (was 61 during chemo, have had a birthday since). And no co-morbidities. I had no reactions to it, other than some bone pain, but a claritin pill at the same time as each dose (I got it in shots, that hubby gave me, one per day for five days after chemo) took care of that. I was happy to have it (the shots were no big deal, by the way,went into my belly fat. We quickly learned that if he warmed the needle a bit first it didn't hurt at all).

    I think of my MO as a bit of a minimalist, but perhaps not...

    Does she mean not eligible for insurance coverage for the neulasta? It is expensive. And while I can't speak to it, I can tell you that Neuprogren had a patience assistance program that covered all but $10 per round of the amount my insurance didn't cover. Basically anyone who lived in the US and was not on Medicare was eligible for the patient assistance...

    Anyway, fingers crossed you will do well as is Moonstone. Walking definitely helps! Hugs

    Octogirl

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Hi Octo, and thanks! Yes, my MO meant I was not eligible for insurance coverage. She did not inform me about any assistance programs. But I'll try this first round without any boosters and see what happens.

    Andra, sure hope you don't have more shingles. Boo hiss to these ailments! But it's great you are not muscle-sore from the run! Have a great trip!


  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust - I'm 51 and my insurance will cover 6 shots - so this is my last. I think some will, some won't. I work for a Canadian company and have found out that I have amazing insurance. But, my chemo started off with AC - which is really rough, so that may have been a big factor.

    I've also had minimal bone pain from Nuelasta. Just a little where I've have broken bones or knee surgery. Good luck. Hope you're still feeling amazing! :)

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Bubble Run done! It was a 5k through big clouds of bubbles. Fun times, although I think I still have bubbles in my ears. :p

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Great, CJ! I've never heard of a bubble run. Sounds really fun!

    I did a short hike today, about 5 miles. It had its share of hills which I went up very slowly. I got my first "concrete leg" experience :) But it felt good to do it. I'm tired and hopefully will sleep very well tonight.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    I have friends visiting so we've gone on some long walks. However, rather more burgers and beer than I ever have on my own.

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust - it was fun. :) Nice job on the hike! Hope you had a good sleep!

    Ksusan - burgers and beers with friends are good for the soul. :) Enjoy.


  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    ksusan, send over some of the burgers and beer. I could use them! (well, maybe not the beer).

    Despite eating like crazy yesterday (over 3200 calories), my weight dropped to a new lifetime low of 119.5 this morning. For me that is scary. I've been fat for most of my life and don't want to turn into a skinny old woman. I'll try again to cram in the calories today and I'll take it easy too. I'd like my weight to get back up to 123. I've been eating high protein and I've upped my fat intake. But I'm not going to guzzle olive oil!

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    I did my first gym workout since the start of chemo last Wednesday. I am down to 118.5 and looking too thin, but still a healthy BMI according to the charts.

    image

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    Cool! Build up gradually to decrease LE risk--more reps, lower weight.

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust! I think you look awesome. You are very defined, which could be the pose or just the way you are. But you have to be comfortable.

    I did a 2 mile run this morning. Well C25k - so run/walk. But it was good to get outside and the dogs loved it.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    I'll post a total at the end of the month, but I'm on target for 2016 in 2016 with over 1000 miles in steps logged.

  • octogirl
    octogirl Member Posts: 2,804
    edited June 2016

    Just checking in to support everyone and cheer you all on...I am still not able to walk much, or swim, thanks to the burn on the bottom of my foot that I mentioned a while back. It is healing, but very, very slowly....

    I might try bike riding this weekend: I think it is probably healed enough for that...

    Octogirl

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    ksusan, great going with your 1000 miles! I started building up very slowly 6 weeks after surgery which was in January. I was paranoid about LE and measured my arm after every workout. Now I am just about back to where I was, but I will never again push myself to the point of really straining with a weight. My joints are too old for that anyway! My goal is to maintain what I have.

    CJ, thanks. I do have a lot of hard-earned muscle, and hopefully it will mostly stay put through chemo! Being muscular is probably the only good genetics I have :) Your dogs are really loving your new program!

    Octo, I hope biking doesn't bother your foot. I'm ready for a car camp and easy hike sometime soon, so maybe we can get together when you can walk again.

  • 6feetover
    6feetover Member Posts: 320
    edited June 2016

    Moondust: HOLY CRAP, am I ever envious!!! *Notworthy* You look amazing!

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Wow, adarkadaptedi, thanks! You have motivated me to go and do my leg and butt exercises today when I probably would have skipped!

  • 6feetover
    6feetover Member Posts: 320
    edited June 2016

    Moondust: you're quite welcome! I've wanted for years to be able to get to your level of fitness, but was always bogged down and held back by severe asthma and worsening EDS (Ehlers-Danlos syndrome) symptoms. Now, thanks to last year's heavy-duty chemo and steroid "cocktails," I'm in "chemopause," gained 30 (!!!!!!!!!!) lbs. (pre-"big C," my weight never fluctuated more than 5 lbs. either way, and I was pretty much the same weight/size that I'd been in high school!), my formerly-speedy metabolism's completely shot, I've got terrible peripheral neuropathy and all-over nerve damage, and the EDS symptoms (full-body pain, fatigue, joint stiffness/swelling) have gotten so bad that I can hardly walk, bend, use my hands, etc. My docs insist that some combo of meds will help, someday. They damn well better! I'm gonna use you as my inspiration, if you don't mind!

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    3.5 mile run/walk and 30 minutes of Yoga. I feel good.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited June 2016

    Moondust, I cleaned litter boxes all through chemo and never bothered with mask or gloves. Used hand sanitizer right after, that's it. I also worked all through chemo and am exposed to small children at work. Lots of hand sanitizer there too! But never got sick. I was 49 at the time, my MO insisted on the Neulasta shot after each chemo, the insurance paid for it all. Good thing because it was $6K x6 doses! Guess it worked.



  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Thanks, Jennie. I think I have the only MO in the country who will not order Neulasta for me and figure out how to get it paid for. I have good insurance too. But after hearing the side effects, I'm willing to try doing without it.

    CJ, good going on the run/walk and yoga!

    I did a 7.6 mile hike. Driving home I got really sleepy, so I pulled over for a short nap. Other than that, I felt pretty good, just slow.

  • azrescue
    azrescue Member Posts: 116
    edited June 2016

    This is a little late. it was after treatment#5. I just finished chemo last week. it really knocked me on my butt. however I am planning on getting back on the bike this weekend. image

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    It's never too late for AWESOME!

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    Yesterday I walked/Zumba'd 15.06 miles.

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Wow, ksusan, that was a lot of walking/zumbaing! Great going!

    Azrescue, you look fabulous. Your arms are very toned! Hopefully it won't take you long to get back to top form.

    I did my gym workout yesterday and walked 17K steps. Until next chemo round (one week from today) my goal is 15K steps. Most of those will be in the dark when it's finally cool enough to walk.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

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