January 2016 Chemo!

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  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited June 2016

    Congrats...LifeALoft on finishing!!!!!

  • zinny
    zinny Member Posts: 281
    edited June 2016


    congrats lifealoft! so good to be over that hurdle!!

    Ok, I am now 7 weeks PFC, and hair is growing in all over. I love that my eyelashes are already making a little fringe!! I cannot understand the rate at which those wily chin hairs sprung back up. But, the funniest thing by far is my brows…at first, I though that I hadn't washed my face properly and it was leftover brow stuff…but it looked so gray. Also, didn't have my glasses on. Then I got close and realized that the reason it looked like 5 o'clock shadow was that it was!!! Whole brow at once, tiny dots, then short hairs, right brow about a week ahead of the left one. OMG.

    image

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited June 2016

    Congrats lifealoft!!

  • Maya15
    Maya15 Member Posts: 323
    edited June 2016

    congrats LifeAloft, well done!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited June 2016

    yeah lifealoft!

    My hot flashes were much worse during chemo than tamoxifen. I still get them, but not nearly as badly

  • LifeAloft
    LifeAloft Member Posts: 150
    edited June 2016

    Thank you ladies!! I'm DONE!!! My counts were a little low and I was worried for a few minutes that they were going to delay me, I would have been so bummed!

    Zinny, you look great! I can't wait to have eyebrows and eye lashes!!! That's bothering me more than my hair at this point.

  • MissBee123
    MissBee123 Member Posts: 186
    edited June 2016

    LIfeAloft hooray for you!!! So glad you are done!

    Zinny last time my eyebrows grew back I looked like Bert from Sesame St. Eyebrows are funny things when they come back.

    On a not fun note, I think I have a staph infection?! I thought maybe an ingrown hair, but then I realized--oh right--I don't HAVE any hair. And it's in the absolute worst place, right next to my lady bits! It's about the size of a marble under my skin and I've drained it at home twice. I was hoping it might go away by itself but it's been enough time now I'm off to the doctor tomorrow. I read up on staph infections and one of the causes, of course, is chemo! Does this sh*t ever end? GahhhhhhhhhH!!!!!

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited June 2016

    My current situation: I'm in the process of getting last chemo infusion right now..whoop whoop


  • LifeAloft
    LifeAloft Member Posts: 150
    edited June 2016

    Thank you MissBee!! My goodness, always something!! I hope you get some answers and get to feeling better! Hugs!

    Buttaflydiva, woohoo!!! Congratulations!!

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited June 2016

    Congrats Buttafly!

    I had taxol #7 yesterday, but they almost didn't give it to me. They took 40 millimeters of blood for cultures as well as some urine, to try to figure out what is causing my fevers. Also had a chest X-ray because of my cough. Aaaaannnd, my lupus rash is flaring up. I can't win.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited June 2016

    Congrats ButtaFlyDiva.....:))))))

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited June 2016

    Thanks guys. I will kinda miss my taxol Fridays-(catching up on Netflix and munching on some crackers and fruit juice all wrapped up in their heated blankets and pillows) but I'm not going to miss these Friday nights up all night from the steroids. would be great if I was still in my clubbing days, but nobody can hang till 4am anymore lol.  Heres a few pics from today. I rang the bell and then planted a flower in the garden of lifeimage

    image

    image

  • zinny
    zinny Member Posts: 281
    edited June 2016

    MissBee - ladybit abscesses - the worst. But I have a little story to make you smile. Had a similar thing happen a few years ago after a waxing…Hard lump came up - then got red around it and I started to feel flu-ey. Dragged myself to a walk in clinic, because of course it was a Sunday night.…Doctor walks in and it is none other than the one I was crushing on all through med school, giggling about in the library, stealing looks across the study carals…and I see a vague look of recognition in his eyes as I explain my ladybits situation, and then have to show him!!! And then his surprised, "Oh you have quite a little cellulitis going on down there!"

    I feel your pain.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited June 2016

    congrats buttaflydiva, so sorry missbee that is the worst of all.

    Sending gentle hugs to my fellow chemo gals and guys. Still recovering from my masectomy, rads are next.

  • Rockstarteach
    Rockstarteach Member Posts: 20
    edited June 2016

    Hello everyone. I have been catching up on the posts when I can. I finished chemo and recently had my double mastectomy. I am wondering if anyone can shed some light on expanders. I have days when I'm uncomfortable because they are soooo hard. But sometimes I have pain. Has anyone heard or experienced expanders? Will I not have pain after they are finished being filled? If I have to get radiology I can't imagine waiting 6 months after rads to get reconstruction

  • Paxton29
    Paxton29 Member Posts: 221
    edited June 2016

    Hi, Rockstarteach. Yes, I have tissue expanders that were placed at my BMX in December, 2015. They did not fill them at all in surgery. I am now fully filled (slightly overfilled) to 280 cc per side, which I think is roughly a B cup. The fills did cause me some pain--maybe more accurately discomfort. I could not find a comfortable position sleeping the night of the fills, and had a difficult time getting out of bed due to backaches. But that only lasted 24-36 hours each time and I think I only had 3 fills. You can ask them to do smaller fills if they hurt too much.

    I started radiation early May and since I will be having 36 treatments, am STILL only 2/3 done. My side effects definitely include tightness in my chest which I'm trying to alleviate through exercise and stretching. And girl, I hear you about not wanting to wait six more months. Mine are asymmetrical--one looks larger and sits lower, and of course they're immovable. I've expanded my wardrobe to include flowy and patterned tops so the asymmetry is less noticeable. I also have lots of Athleta sports bras with removeable pads--sadly I threw most of them away before my diagnosis but I have found it works to pad only the smaller side. They still don't sit level though. And, my skin is now red and tight in the radiated areas so a bra is uncomfortable anyway.

    So yes, they SUCK. But all I can do is grit my teeth and put one foot in front of the other. Apparently the asymmetry really, really doesn't matter when it comes to the final exchange. It's just annoying now.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited June 2016

    CREAM DURING RADIATION?...I expected that I would be given some cream to use, but I was told to just buy Aquaphor. Anyone have any other suggestions

  • jensgotthis
    jensgotthis Member Posts: 937
    edited June 2016

    my RO said Aquaphor and also gave me a cream he likes called Arc. Others have said Calendula cream can help with pain

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited June 2016

    Lots of good tips on creams on the spring 2016 rad thread. Newbies, just starting are on there too. Miaderm is mentioned. You get it off amazon. I go for mapping etc tuesday and will ask more.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited June 2016

    Valstim52...Hey, we're RAD-BFF's‼️ I go Monday. Hoping I can do four weeks.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited June 2016

    Cathytoo, for sure. No way I can do 4 weeks, it will be 33 but I'm as ready as possible. I love it RAD-BFF's

  • zinny
    zinny Member Posts: 281
    edited June 2016

    beware the calendula…i bought 4 big tubes on amazon, only to learn that my centre said avoid scented creams. That being said, if you want calendula cream, I will happily mail it to you - just PM me.

  • Paxton29
    Paxton29 Member Posts: 221
    edited June 2016

    Be forewarned that the Aquaphor is super greasy. It will stain your clothes so don't wear anything you would hate to throw out.

    My RO likes emu oil. It is expensive and it was hard to find locally but it is llghter and absorbs quickly. It really is from emus so it's not for vegetarians and vegans!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited June 2016

    Zinny and Paxton29 thanks for the heads up.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited June 2016

    I can't bring myself to read the Rads boards, so I would love it if our group would post about it here. I'm already having issues with my skin, from hives to lupus, so I can't imagine how rads are going to affect it. :-/

    I seem to have finally fought off whatever was causing my fevers. I didn't have one yesterday, and don't yet today either. *knocking wood*


  • Cathytoo
    Cathytoo Member Posts: 667
    edited June 2016

    Valstim52...I expected to do 7 weeks. However, I'm doing rads at a cancer hospital and they seem to have a different approach. If the area where the tumor was removed is the appropriate size (by their standards) I can do four weeks. Hoping, that will be the case. Will know for sure tomorrow. I thought since I am TN, it would be 7 weeks for sure. I'm hoping I don't get skin breakdown. I always burn in the sun.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited June 2016

    Cathytoo, I'm at a cancer hospital too, but as you can see from my signature I have the kitchen sink approach, so i'm geared for 7 weeks. MO told me today it's the best for my type and being tn to fight local recurrence, and nodes recurrence. But she did say the RO may reduce the time because they got all the cancer they thought would be left, and I had clear margins. So I'll know what the plan is tomorrow.

    I'm still sore and swollen from the surgery so I can't see starting till the end of the month.

    Lovesmyviz... I'll post here as well. Hope things get better for you.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited June 2016

    Valstim52...Well, today was interesting. One hour making a mold for me because I didn't do well with the standard equipment they had. It was very painful holding my arms up the way they wanted. Worse pain than from my lumpectomy‼️ The RO recommended that I do some PT for range of motion before radiation begins. Happy day!!! I will be doing four weeks, but it probably be a bit longer each visit because I get a boost each time. Chemo was a piece of cake for me. Don't know if rads will be the same. My simulation is in 9 days. Treatment begins on the 10th day.

  • jensgotthis
    jensgotthis Member Posts: 937
    edited June 2016

    I don't know if this will be helpful to hear or not....and we all have our own journey (I really do believe that)....but I did do 2 weeks of daily rads on my pelvis including the spot where we make most of our bone marrow. Two weeks wasn't bad at all. By the final day I wanted a nap in the afternoon but was otherwise fine. Once they get your treatment going, it's actually really fast. Frankly, the hassle of going to the medical center every day took more of a toll on me than the radiation. I realize the 3, 4 and 7 weeks of treatment is significantly longer but I'm hoping we all sail through this. And like you Cathy, chemo was pretty ok for me so I'm hoping this is even easier. I'll keep posting here too. I really love this group of ladies.

    I also just want to share some good news. My CA 27.29 test keeps showing improving numbers. Isn't this graph pretty? When my numbers go down then we think that my treatments are doing a good job killing cancer cells. And it can take 2 to 3 months after the onset of treatment to see a change in these numbers, so I'm hoping this trend is from the chemo and that I'll see another big drop in a couple of months since doing the rads and UMX.

    image

  • songbird72
    songbird72 Member Posts: 68
    edited June 2016

    Hello everyone! I haven't been on here in such a while! Life has been crazy lately. I finished chemo April 19th (hooray!) and started rads May 9th. I have two more weeks left so I'm almost there! The biggest pain has been the drive. I have to drive one and half hours one way to get to the nearest rads hospital. Ugh. My skin just started getting irritated last week because of the bolus, which they started the week before. I'm ready to be done with that daily drive! And to be able to wear my bra again.

    I am starting ovarian suppression tomorrow along with Aromasin and Fosamax because I already have osteopenia in my lower spine. I'm nervous about this next step but I do this when starting every step. It's that fear of the unknown!


    My hair is starting to grow back and like someone mentioned above, it's amazing how fast those pesky chin hairs popped back up! I have the Sinead O'Connor look going right now.

    Nice to touch base with everyone again.

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