Had BC last year in left breast. Stuff found in right breast.

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cuddyclothes
cuddyclothes Member Posts: 160
edited June 2016 in Waiting for Test Results

As mentioned above, I had papillary cancer in my left breast. I had a lumpectomy and radiation, and thought that was that. Last Friday I had an MRI followup. Turns out there is something in my right breast. Whenever I get those phone calls that say "call back at your earliest convenience" I want to throw up.

Wednesday I went in for a diagnostic mammogram. God-DAMN, it hurt! And they kept doing it over and over and over. The diagnostic mammo not only smashed my breast but also my skin and collarbone. Most mammos don't hurt much, but this, I wanted to scream. Then I'd have to wait in the room until the tech came back and said, "they have to do it again". Then the close-up mammos, which also were incredibly painful. The doctor came in and looked over the scans. I could see her face from where I was standing. The expressions were not good. She said I needed an MRI biopsy ASAP. I'm going in Monday morning.

I can't think about anything else. What if this is worse? What if I need chemo this time?

Comments

  • Ingerp
    Ingerp Member Posts: 2,624
    edited June 2016

    (((cuddy))) All I can say is you did what you had to before and will again. Don't assume the worst. Try to take your mind off it and wait for the diagnosis.

  • Nopoli
    Nopoli Member Posts: 21
    edited June 2016

    Hi Cuddyclothes. I'm so sorry you're going through this stressful period. As Ingerp said try to breathe and not jump ahead. I say TRY, because I totally relate to the angst of not knowing. I don't know if my experience is helpful, but here goes: Back in December my breast doctor (family history) thought I had at least stage 3 based on the diagnostic 3D mammogram and ultrasound (3+ cm mass with all the features that indicate malignancy). Had a core needle biopsy, but they could only find high grade (grade 3) DCIS, then I had an MRI and the MRI also showed a large mass with the malignant characteristics. Mass went from the nipple to the chest wall; it looked like there was cancer in the chest muscle. Well I then had a vacuum assisted core needle biopsy and again all they could find was more DCIS. After six weeks of this roller coaster ride, we went into surgery not knowing what exactly I had. I opted for a double mastectomy (again because of the family ). Well here's what they found a 6.2 cm sclerotic adenosis mass, with scattered DCIS (about 40-50% of it) and LCIS (some visual micro-invasion but could not prove it pathologically and isolated tumor cells in one of 3 sentinel nodes--probably due to the two biopsies over a six week period). So I went from "we're hoping it's only stage 3" to it's stage 0 (PET scan clear for mets). But unfortunately, they found a grade 2, 1 cm invasive lobular carcinoma in the right breast (later I had an axillary dissection, and all was clear). So I'm actually stage 1. Based on my Oncotype scores for both sides, they did not recommend radiation for left or chemo for the invasive on the right. Only Tamoxifen for next 5 years.

    I'm sharing all this to let you know that the stress I expended researching and fretting over the six week period made me lose 5 pounds (I'm only 115 at my heaviest). I found myself crying and screaming (not just figuratively, LOL!) because I too was so scared of chemo and radiation. None of it came to fruition and the diagnosis ended up way better than expected (even with the surprise ILC on the right.

    If my little story is not helpful, please toss it in the wind. I just wanted you to know I can so relate, but the outcome may turn out better than what they are seeing right now. If it is something invasive, I hope it's early stage. I'm hoping that you have something mostly benign (like my benign sclerotic lesion).

    Also, personally, I found this community page very helpful as well as in-person support groups and speaking with an oncology social worker.

    Hope you can pamper yourself or do something calming during this rough journey of testing and waiting. I am thinking of you and send you a virtual hug.

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