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  • fluffyfi
    fluffyfi Member Posts: 6
    edited June 2016

    hi i just wanted to say my mum had BC at 27 stages 2 and 3 tumors she had to have a double mastectomy and chemo. my mum i remember it because i asked what about your hair and she said she wore something called a cold cap i think she didnt have many chemo sessions because she had the mastectomies and all her lymph nodes removed. but she didnt loose her hair.. xx

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hi Ladies,

    I did my first chemo today. It was no probs. Cold cap was the worst bit of all. However that is just the initial shock of the cold and after 15 mins your head is used to it.

    I came home and was fine until around 11pm. Then I had to go lie on bathroom floor and make deals with the good Lord. If he could make me vomit, then I'd devote my life to missionary work or something pleasing to him...It worked. Not long after, I threw up beautifully and with oodles of class as was wearing my wee bedtime chemo hat. Felt fabulous after that. Have showered, brushed teeth and now in bed about to watch a nice thing on TV.

    It's not pleasant and to be honest I could have spent my Friday night in a far more fun way, but it it ONE down and only 5 teeny wee ones to go!!!!!!!!!! I know the drill now as have recorded every single side effect with times and what triggered it.

    In addition, I only did steroids today and am doing other anti-sickness tabs tomorrow.

    D

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  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited June 2016

    Dolly, the fact you still have your sense of humour through such tough circumstances is a wonderful thing.... I feel so badly for you in your description, but can picture myself doing the same thing. Glad you feel a bit better and are resting.... Hang in there!

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  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited June 2016

    Hi Dolly:

    I don't think I've ever read a description of nausea and vomiting as witty as that one, and I feel bad for smiling a little. Glad you are feeling better now. Enjoy your show and sleep well!

    BarredOwl

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hey Ladies,

    Feeling absolutely fine this morning. I am humming and hawing about all the sickness meds I have been given today to replace the steroids I refused to take because of my Type 1 diabetes.

    I am putting off having them just now. See no point in taking things that might give me constipation or the big D. Also poor liver needs no more, if at all possible. So I am going to see if I can manage today without them. If I can't then I will of course stick to regime. Is that bad? Is that going against chemo nurse?

    D

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  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited June 2016

    Hi Dolly:

    I have no idea. Hoping someone will come along who can comment, although most will have received the steroids (so their experience may not be relevant to a person who is not receiving steroids).

    Best to check in on Monday AM to ask a professional (for example, if certain ones are not optional in your case; of if certain ones work better if taken before a problem arises; or if some are equally effective even if taken in response to a problem).

    BarredOwl

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    I had steroids in the chemo infusion. But refused any others as a result of my diabetes. I took one stimitol this morning and nothing else. Fortunately for me I have been sick ONCE and that was last night at 11pm and had a lovely dinner of Tuna steaks and salad tonight. Seems chemo got me for just about 12 hours and no more. Yeehaaa. Hope this remains the pattern.

    Dolly

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited June 2016

    "Stay ahead of nausea. Take your meds before you feel sick." That was some of the best advice I got but understand you do have other health issues. I hope you continue to feel well and that chemo isn't too tough on you. Did your Onc or breast nurse advise you to closely monitor your temperature? We are so susceptible to infection during chemo treatment.

    I was always good the first week after infusion. It was always week 2 that I felt awful.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hi Smurf,

    I am now on Day 2 after chemo and sickness has stopped. Not been sick since yesterday. Also eaten a good wee bit, very small portions but often and drinking fluids now.

    I have a very good thermometer which I put in my ear. I am checking temp every hour along with blood glucose levels too. I have been told that if I go to 37.6, I should be calling them and possibly into hospital. I am being ridiculous about who comes to house and about washing and cleaning everything. My mum is staying with me and my dad is allowed in once a day after he has scrubbed hands and used medicated hand gels (at my door). This house of mine is like a surgical theater haha.

    I am getting anxious about WBC dropping soon and what that may bring. But at least I have done everything possible to stop it.

    Haha...a funny wee story that might get some of you laughing. I am sitting on sofa day 2 after chemo and had my hair loosely tied up in a hair scrunchie. It was slack in hair as I did not want to pull on my wee roots. I was talking to my mum about the whole hair loss thing and what I will do when it does start to come. I was reassuring her that I would cope and be a big girl and grown up. Well, just as I moved my head the hair scrunchie fell out of my hair and on to my shoulder. It was the same weight as a huge clump of hair might have been. I screamed out....both me and my mum sat and laughed hysterically for a good few minutes after that.

    Haha chemo has it's funny sides too...

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited June 2016

    Dolly I did have a chuckle at your hair story. LOL. You should have hair for a couple of weeks yet. My "fall" started on day 15.

    After chemo I limited my contact with people too. Though it didn't stop me from ending up in hospital.

    Did you have a Neulasta injection the day after chemo? I didn't after my first infusion but did for subsequent treatments.

    Thinking of you. Donna.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2016

    Hi Donna,

    No I have not been given any sort of injection. I did ask them about this but they said I just check temp and go to A&E if WBC drops too low. I am assuming then that there is really no way of not getting infections? I was hoping that eating well and getting lots of sleep and not letting anyone near me might have helped. Och well, I will just have to hope for the best and be a hermit for the next 4 months.

    Glad you liked the hair story. I think the scrunchie just made both me and my mum realize how ridiculous the whole hair thing really was. It's just hair and it's going to thin (I am cold capping) whether I want it to or not. So I am just going to have to get on with it.

    My main aim right now is to just get through the next 5 chemos. It seems such a long time away. I won't be finished all treatment until November. Good grief, this is a long long time.

    Are you doing well now? Are you doing OK after all your treatment?

    D

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