Exercise and well being during chemo and radiation

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  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016
  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    CJ, I love your new avatar! I have been sick all week with a fever. I haven't been able to do many steps. Hopefully it will resolve by next Wednesday when I'm supposed to have my port put in.

    I hope everyone will have a good weekend!

  • Italychick
    Italychick Member Posts: 2,343
    edited May 2016

    up at Big Bear lake for the weekend, just did nice stroll at the lake, hiking next three days. It is so nice up here

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    Get well, Moondust.

    Theresa, that sounds really relaxing.

  • CJSharma
    CJSharma Member Posts: 464
    edited May 2016

    Mooddust - hope you feel better soon! Thanks for the compliments on my avatar - this is my wig. :)

    Theresa - that sounds amazing! I love lakes and mountains.

  • CJSharma
    CJSharma Member Posts: 464
    edited May 2016

    I was busy today! I took the dogs for a 1.5 mile walk, then did Tapout XT Cross Core Combat (well 30 minutes of it - it's 45). Then my daughter and I went for a 3.5 mile hike. It's my first time since I started chemo that I'm exhausted because of physical activity, not chemo, and I'm loving it! Not bad for having an infusion on Thursday, eh? Taxol is so much easier.

  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    You've been busy today, CJ! It's great to actually feel tired from exercise. You give me hope for my upcoming TC chemo. Have you had any neuropathy yet?

    My port goes in on Wednesday. I'm going to beg them not to intubate me. My throat is already touchy from coughing most of the week, and getting intubated would make me cough for a week by itself, not to mention tasting like I ate a garden hose. I'm getting back most of my energy from being sick although still running a slight fever. Hopefully I'll be well by Wednesday. If not, I might have to wait another week to start chemo.

    Theresa, I know you are having a great time up at Big Bear! Wish I was hiking today, but not such a good idea with the cough and fever.

  • Italychick
    Italychick Member Posts: 2,343
    edited May 2016

    Moondust, I don't think I got intubated for port placement. They gave me some kind of twilight drug. Hang in there, hopefully you will only have some soreness for a few days and then press on. I didn't pay attention to any restrictions and rode my bike a few days after port placement, but slow and expecting an alien to leap out of my chest - nothing happened lol!

    CJSharma, great day for you!

    12 miles hiking in three days, about 2,000 feet of elevation gain, so beautiful. Would do more, but we have a 13 year old Italian Greyhound named Jack and I don't want to blow him out.

    Here he is about a year and a half ago hiking in Moab. Love my little guy! He had a booboo, hence the bandage.


    image

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    I wasn't intubated when I got my port.

    A couple of days walking slowly on beaches, looking variously for agates and birds.

  • octogirl
    octogirl Member Posts: 2,804
    edited May 2016

    Had hiking and swimming plans for the weekend...until I managed to step on a hot coal that somehow flew off the grill and got under my (bare) foot....second degree burn right on the bottom of my foot and it may be a good three weeks to a month before I can really walk normally... :-( and forget swimming for a least a few weeks, too much risk of infection)...

    so, yeah, I am not a happy camper. Hubby is taking all the blame (he was the one grilling) but that doesn't really make me feel all that much better about being waited on constantly and not being able to walk. I don't feel sick or even in pain anymore, but still stuck on the couch. Thank God for baseball, good books, and a bit of wine in the evening.....

    Moondust, I hope the fever goes away and the port placement and chemo go fine. I'm not ridiculously far away if you need anything once i can walk again, just PM me....was hoping to could suggest a hike in Kings Canyon where I was supposed to be camping next weekend, but that isn't looking very likely for me :-(


  • phoebe58
    phoebe58 Member Posts: 193
    edited May 2016

    omg Octo -- as if you haven't walked over enuf hot coals with all this FC! So sorry you will be kept out of water.

    Moondust - speedy recovery and hope port goes in smoothly for you. I've never tasted a garden hose....... :) great imagery!!

    italychick - love the dog pic -- he seems to know he is perfectly silhouetted by the red rocks! I have a cat with that facial mid line

    awesome CJ - great workout effort, and wig looks very natural :)

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    Octo, poor thing!

  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    Octo, we just can't catch a break, can we? HUGS to you and keep that burn well padded!

    Theresa, what a wonderful IG you have! They make such good hiking dogs because they don't have the breathing issues you get with the shorter nosed breeds. He's a beautiful boy!

    Yesterday one of our cats (a very spoiled one, my DH's favorite) slashed me in the face when I was trying to look at a spot on his chin. I got three holes - upper lip, lower lip and under my left nostril. I bled like a pig! I doctored it all up, used good ointment from the vet, and there is no sign of infection 24 hrs later. I guess life is giving me a refresher course on what not to do during chemo. DH gets to do all the handling of that foul beast from here on out.

  • Italychick
    Italychick Member Posts: 2,343
    edited May 2016

    Moondust, ouch! Glad to hear no sign of infection.

    Yes, our little boy Jack, 13 years old, hiked 16 miles in 4 days. He is such a trooper! Not to mention elevation gain at altitude

  • CJSharma
    CJSharma Member Posts: 464
    edited May 2016

    Moondust - hope you are feeling better for your port placement!! So sorry to hear about the kitty scratches! Little brat!! I also did not get intubinated for my port - just twightlight sleep.

    Theresa - Love your Jack (I have a Jack, too - he's a Mini Aussie) - Lovely photo. I would love to hike around there. :) (So would my Jack)

    Oh Octo! OUCH! I'm so sorry to hear about your foot!!

    Phoebe - thanks for the compliment! :)

    Trying to do a rotation of Tapout XT this week. Found out that even though I'm not traveling to Canada this week for training (company HQ is in Ottawa), I'm still attending remotely. So from 6AM - 2PM for Wednesday and Thursday, I'm in training. It's only 2 days, so I'll work around that.

  • Andraxo
    Andraxo Member Posts: 410
    edited June 2016

    Hi All! I haven't been on the boards in a while...been traveling a bit for work and play, and doing some races. Red Rock Relay in Moab a few weeks ago went really well! Yay! We had to cover for a runner who dropped out the day before so I ran 16 miles total that day but not more than 6 at a time. Tonight I signed up for a half marathon that is this weekend. "Thelma and Louise" half in Moab. I was holding out until last minute in case I ended up with post-radiation pneumonitis which would hit right about now if it was going to happen. I did that half marathon last year and at the time it was my best half ever. Have to try really hard to be kind to myself for this race and not compare to last year. My legs have had some setbacks which is discouraging (but likely due to that fluoroquinolone I took back in December/January which started all my muscles and joint problems). Having good weeks and bad weeks, not steady gains.

    Moondust - Are you just having TC chemo (4 or 6 rounds) and no other chemo? If yes, why do you need a port? I had 6 rounds of TC and no port. They did it all using the veins in my R arm. No problems with any of them during infusion or after. Might be worth asking about if it isn't too late. If you are getting the smaller weekly or monthly infusions after TC (herceptin??), then you do need a port.

    So happy to read through all the fun exercise everyone is doing and yay Little Blue for passing that test - brutal and awesome!11

    Andra xo

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    Nice to hear from you!

    I had TCx4 and got a port. I would have argued for one if it weren't the standard of practice here. I normally do well with injections but I had to have iron infusions before chemo and they pretty much used up my arm.

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    Andra, thanks for the thoughts, but I had the port installed yesterday. My RO and several of the oncology nurses told me I should get one to save my arm veins, especially since I hike at altitude so much. I'm glad yours held up through all the treatments you had. My veins are 16 years older than yours, and that may make a difference. So far my port is only a little bothersome. I think in a few more days it will settle in and be fine. The doctor who did it was super and did the placement where my pack won't bother it.

    Lots of luck with the half marathon this weekend! Keep us posted.

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust - glad the port insertion went well. Yeah, it's more of an annoyance at first than anything else. Happy to hear your pack will be fine.

    Andraxo - enjoy your half this weekend! Moab sounds wonderful!

    Its been hot here and I've had two days of 6AM - 2PM meetings so my long walks with the dogs have been shorter. Looking forward to a long hike this weekend. I have been doing DVDs but they aren't the same.

    Happy Friday, all!

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    I see some excessive heat warnings for the weekend. Everybody stay hydrated and keep your electrolytes balanced!

  • Katjadvm
    Katjadvm Member Posts: 137
    edited June 2016

    What is the daily exercise recommendation. Just finished AC and starting taxol so trying to get back into exercise mode. I need to set goals to keep me motivated.

  • Italychick
    Italychick Member Posts: 2,343
    edited June 2016

    we all have different goals. Last year I set a goal to hit 3,000 miles on my bike. This year I think Ksusan has a goal of 2016 miles for the year 2016, or something like that. I'm not sure what my goal is this year. Currently I am at 1,500 miles riding, hiking and walking, and hope to at least pass my 3,000 miles from last year. Others strive for a number of days with 10,000 steps. I'm sure some have swimming goals, we have one "Octo" lurking around who I think is a water loving chick

    I read something recently that said look, just make sure you sweat for 30 minutes at least 3-5 times a week. That sounds like a good goal to me!

    Oh, and our motto is "everything counts!" Dog walks, laps around the house doing housework, whatever can get fit in.

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    My normal goal is 15,000 steps but right now I've got it set back to 10,000. Once I start chemo next week I'll adjust it again most likely. But a daily goal is important to me.

  • aditya
    aditya Member Posts: 2
    edited June 2016

    An effective exercise program for fighting breast cancer has three components:

    An aerobic workout that pumps up your heart rate. Examples include brisk walking (outdoors or on a treadmill), jogging, swimming, or bicycling.

    Strength training to tone and build muscles. This includes lifting weights or working with a machine circuit or resistance bands. (Be sure to get instruction if you're new to this type of exercise; light weights are sufficient to maintain strength.)

    Stretching to keep muscles and joints limber.

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust - my goal is over 10,000, even with chemo. I don't always make it, but like you, I like to have that goal. I don't have a yearly goal, but I really should. According to my Fitbit, I've done 766 miles so far this year. I had a near miss on my bike, so I'm a bit scared to ride it on the streets, but I need to get back on it because I do miss the long distance riding. We have such excellent bike riding around here.

    I did a two mile dog walk, and now I'm going to get some barre done. Taxol is making my joints achy, so I'm trying to be really careful with my diet not to compound it. Barre will feel good. If I'm up for it, I may do some dancing, too. :)

  • Moondust
    Moondust Member Posts: 510
    edited June 2016

    CJ, I'll be starting TC next week so I'll keep the achy joints in mind! We are in the triple digits right now so unless I get up very early it is hard to get my steps when I'm home. I'll do most of them tonight. You are an inspiration to me!!

    Yesterday I did my final strenuous hike before I start chemo. According to my Fitbit, it was over 39,000 steps and over 500 "floors" (=5000 feet of elevation gain). It was a brutally steep trail. I was worried that my newly inserted port would be a problem but it was fine.

    Hiking is the only good exercise I get for my legs, because my bad knee won't tolerate biking or squats or most other exercises which are effective for legs. During chemo I won't be going to the gym. That leaves some leg lift exercises with ankle weights I'll be able to do at home. If anyone has other ideas, please let me know!

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    I'm hoping to get some mild exercise today. I've had exactly none in the last two days, in bed with a very bad cold. Now I have an ear infection so I'm at urgent care to get an antibiotic, but I hope to do some easy sustained stretches and housework later.

  • CJSharma
    CJSharma Member Posts: 464
    edited June 2016

    Moondust - I have a wonky right knee - had part of the meniscus scoped out and now I have trouble going down hill. It's keeping me from hiking as much as I want to - your hike sounds amazing! Do you have any issues? I need to find something that will help. Braces don't seem to. It's hot here, too - not quite 105 but close (98). And I don't have air conditioning. I have to walk the dogs before 9AM or my little white terrier over heats as he's so low to the ground. The Aussies could go forever, though.


  • azrescue
    azrescue Member Posts: 116
    edited June 2016

    @ksusan hope you get to feeling better.


    I just got home from a big bike ride with the family. Felt great to be out there. But phew I'm ready for a nap.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2016

    Antibiotic round 1 taken.

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