Core needle biopsy results yielded ILC

Dennyse
Dennyse Member Posts: 27
edited July 2016 in ILC (Invasive Lobular Carcinoma)

My gyn found the "thickening" and sent me for mammogram and ultrasound. Mammograms were negative but ultrasound positive. So biopsy followed. Results showed invasive lobular carcinoma. I have yet to meet with my "team" to go over pathology, staging, and treatment. What can I expect and what questions should I ask? I have a history of Atypical Lobular Hyperplasia in the opposite breast.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2016

    Hi Dennyse-

    Welcome to BCO! We're sorry you find yourself here, but we're glad you've joined us, and hope you find this community to be a source of support and information.

    We have some information on our main site that might give you an idea of what to expect in the coming weeks, once you meet with your medical team and start going over everything. You can find that here. And we're sure some of our wonderful community will be around shortly to offer their advice and insights, from other members who've been where you are!

    Good luck, and please keep us posted!

    The Mods

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  • Mixedfeelings
    Mixedfeelings Member Posts: 13
    edited June 2016

    you will have a long ride, depending on the treatment plan but be assured it is totally doable. The time goes by more quickly than you can probably imagine right now. Come back here---lots of supportive and incredibly smart women will help you through it.

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  • Dennyse
    Dennyse Member Posts: 27
    edited June 2016

    Thank you. I believe that this forum is the perfect place for me right now.

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  • Dennyse
    Dennyse Member Posts: 27
    edited June 2016

    Met with MD yesterday and am having MRI today. I feel some relief as I am in good surgical hands and they are expediting my FISH test for the HER2 which was equivocal (2+). I have had MRIs in the past so am not worried about the procedure. However, now I will discover the extent of the disease and all I can do is keep my fingers crossed, stay rational, and reach out to friends and family. My husband and son are relieved from the path report but I know that there is more to do.

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    • Dennyse
      Dennyse Member Posts: 27
      edited July 2016

      Thank you to all who welcomed me on the discussion board. I am now post lumpectomy and sentinel node biopsy. My news was very good - clean margins, negative nodes. However, in the breast tissue itself, found 3 spots of LCIS and one of ADH. I have a history of ALH in the opposite breast. I don't like that my breast have become little trash bins for every atypical cell including cancer. So I am ruminating over treatment options including prophylactic bilateral mx. Anyone with something similar. Currently, I am on antibiotics for cellulitis at the node biopsy incision. It's very sore.

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    • LRGinger
      LRGinger Member Posts: 30
      edited July 2016

      Glad to hear you have more info and good news on the clear margins and negative nodes. I did not have any LCIS, but one breast could not be preserved and inelected for a pophylactic mastectomy with the other. Tough decisions for sure. I hope your infection clears up soon!


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    • MFalabella
      MFalabella Member Posts: 176
      edited July 2016

      Dennyse, I am so sorry that you have to join our club, that said, there is much wisdom on this board. I was a wreck myself, so my husband asked all the questions. I am sure that one of the wonderful ladies here will have great advice for you. Good luck and God bless

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