Lumpectomy Lounge....let's talk!

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  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    Thinking of you Peggy!

    Katz.. I'm on Edmonds for a couple of days (spent the past 4 days on Oregon coast) and it's COLD here today!

    Take care all... I tried to leave BC at home but I was thinking of you all today and wanted to check in.

    Traci

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    Peggy, so glad everything went so well and you’ve got your kids with you for the weekend! And Traci. I remember when we lived in Seattle back in the ‘70s, taking the ferry from Edmonds to Kingston en route to the northern Olympic Peninsula or to the Port Townsend ferry to Victoria. Can it have been 40 years ago???

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Thank you everyone! Starting this day feeling very positive and lighter. Chuck has finally been put to rest.

    I'm really glad I have central air. HOWEVER!! Both DILs are having hot flashes and the went the a/c cranked up to its maximum. Which means I'm freezing! Brrrr. :)

    Traci, glad you got a way for a few days. That can help restore sanity.

    Moondust, I knew I was going to cry. It was very emotional. I was telling the kids that I really lucked out when I married Chuck because I got the best mother-in-law ever and the best in-law family. That doesn't seem to happen very often. By now, after 50 years, we aren't just in-laws anymore - we are family. Period. Lucky me!

    Have a family-filled Memorial Day and remember those who sacrificed for our freedom.

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    I'm sorry I don't remember who it was, but they wanted to know when to start Tamoxifen or their AI: before, during or after rads. My MO had me start Anastrozole (generic Arimidex) the day after my last radiation treatment. Like others here, it seems easier to pin down SEs if any. I take it in the morning.

    HUGS!

  • tbalding
    tbalding Member Posts: 449
    edited May 2016

    ejmann, yeah, it sounds the same except for heat. I was prepared for the numbness, but not the bruised raw feeling on my upper arm. I know the numbness may take a couple years to go away. Not sure about this bruised raw feeling. It doesn't really hurt, more sore & annoying. Once I move my arm around I don't notice it so much.

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Traci-that chilly drippy weather was getting to me, so I flew to CA to my sister's home on the coast (Cayucos) to get a little warmer (or at least drier). Seattle is supposed to warm up mid-week. Sorry your stay was chilly

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited May 2016

    thanking of you today Peggy!!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    Sandy & Sue, I am about to die to get out to the Pacific Northwest. My dear sister, my very best friend in the world, lives in Poulsbo. DH & I are sincerely hoping to move out there when i retire in a couple years. We'd like to live out there from about May through September, then come back to Georgia for the fall leaves and holiday season(and the pretty weather.)

  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    Sue, do you still have anyone you visit in Corcoran? I'm only 15 minutes from there. Or maybe next time you come to Cayucos I could drive over. I'd love to have a reason to spend a day at the coast!

    Trish and ejmann44, I hope you both start feeling better soon at your surgery site.

    The temps are heating up in my little corner. I'll need to start getting up earlier if I want to get any steps during the day.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    Peggy, I have enjoyed reading about the memorial service you had for Chuck. It really sounds lovely and meaningful. I'm so glad your children were able to get there ,albeit later than planned. You really lucked out with your in-laws. My husband's family is Greek and I am Anglo (Welsh-American, 2nd gen.) My SIL accepted me as the sister she never had. My MIL was distant and never really liked me. My FIL was nasty. Both were raging alcoholics and abusive. DH went away to college, first in his whole extended family, just to get away from them all--he even changed his first name the 2nd-3rd day after he moved into the dorm. Both the MIL and FIL are dead now and honestly? I couldn't care less. I never shed a tear for either of them.

    Trish, I had the same bruised, raw feeling under both my arms after BMX in Feb. It eventually turned to numbness under both arms and extending down the inside of each upper arm and a little way down my ribcage. I still have a lot of swelling under my arms, so it feels like there's a tennis ball under each arm. Putting on deodorant is interesting--since I can't feel anything there I have to watch in the mirror to make sure I'm putting it on in the right place, LOL. Anyway, at least the bruised, raw feeling has gone away now.


  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    We are having such a nice time up here in the North Georgia mountains. It's in the 80s, but pretty dry during the day. One the sun goes over the mountain, our site is completely shaded and cool. We haven't even had to turn on the A/C. I hate that we have to go home tomorrow, but work and dr appts call on Tuesday. Foo!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Poodles, I LOVE the mountains! We usually go up to Tennessee, North and South Carolina for vacation almost every year and spend some time with my mom's brother, my grandmother, and aunt. Sadly , we lost 2 out of the three and me and hubby have had to take off so much work for my 2 breast surgeries and upcoming hysterectomy, not to mention paying deductibles, co-pays, meds and such that it isn't an option this year. I will miss the beauty, peacefulness and tranquility! Enjoy what time you have left!

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Alice-I never go to Corcoran, but go to Fresno a few times a year. Since my sister and her husband bought theirplace in Cayucos, I prefer coming here. Much cooler, and I can easily fly into San Jose and drive down. I'll give you a heads up next time I come down!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Poodles, I am truly blessed with my relatives. Consider that we've known and been related for 50 years. We are all very different but it works for us. My MIL was a gem. She was so accepting and kind. Her 2nd marriage was very unhappy but brought Chuck his step-brother and step-sister whom we all adore. So it was good in that way. I love my brother and his 3rd wife and all 4 of his kids. My sons are great (well, of course!) and my DILs are wonderful. If I'd put in a request for perfect relatives and in-laws - they all are whom I'd get. I'm sorry that you weren't lucky enough to have good ones. Sounds like you got a great SIL!

    Just had a rain storm. Thrill. At least it waited until today and the memorial was dry. Everything this weekend has gone just as I'd hoped. Had the family together again here to celebrate #2 Son's birthday and yacked up a storm. Just so good to be together!

    HUGS!

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Poodles and LG-do you ever spend time in Blowing Rock, NC? My FIL was born and raised there. Such a charming mountain village

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Poodles-looks like NW summer will arrive later this week. Time to start planning your next trip:-) I agree...it's a great place to live

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Katz, we went through there one time and loved it! There aren't many areas I DONT like in North Carolina. We especially love the Lake Lure area!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    LG, I totally get it. I have used up all my vacation time and sick leave on this darn breast cancer stuff. At this point, the only vacations we're going to get is camping on the weekends or visiting DHs sister in FL (I can use her WiFi to boot up and work.) I hit my insurance max out-of-pocket Feb 5. Not to mention how much expense we had in 2015 ,when all this stuff started. And now we're about to go through it all again with DH. Thankfully, he has Medicare and Cigna, so his will be 100% paid for. Still, there are miscellaneous expenses--parking & meals at the hospital, mainly. I will have to stay with him while he's there. The last time he was hospitalized with pneumonia, I went home for the night because he was stable. OMG, they treated him so badly, it was just a nightmare and he couldn't think clearly enough to CALL ME. Nope, from then on I will plan to stay with him 200% of the time. Not putting up with that chit.

    Sue, I've been to Blowing Rock many years ago. I love the NC mountains. I'd move up there in a heartbeat. My father's family is all from the OBX. My brother still lives there in Kill Devil Hill. I don't get to see him often--it's a long drive from Atlanta. But I do love the Atlantic ocean. Maybe we'll have to plan a getaway to Hatteras, if I can ever catch a break from surgery.

    Speaking of which...I am having so much pain in my left knee. It's the one that needs a total knee replacement, has needed it for about 2 years now. I'm just keeping it propped up with NSAIDS and cortisone injections every 6-8 weeks. I was really kind of hoping that I could get the TKR sometime this fall, when I get more sick leave and vacation time. But I also need a total hyst due to two gene mutations. I told my MO that I can only have one more surgery this year and could it please be the TKR, because I am pretty miserable with it. Nope, she wants all the female bits out ASAP. At the moment, they are not diseased, so it can wait a few months, at least until DH is done recovering from his prostatectomy in July.

    As Roseanne Rosannadanna said, "It's always sumthin'."

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Poodles, goodness gracious! At least, for right now, I only need ONE more surgery, not two like you PLUS surgery for Dh. We have decent insurance, but I get 50 and 100 dollared to death with copays, especially when I have had SO many appointments and pay that every time I go talk with the oncologists for the 5 minutes that I'm there. Fighting with insurance not paying stuff and having to be the one to call every where and tell people how they messed up the billing, to Bill again with the right codes lol!!! Definitely stay with your hubby. My hubby stayed in hospital for 8 days for back surgery and I went home ONE time for a few hours and when I came back, he was almost crying and told me that after I left, he had BEEN calling for pain medicine and no one would bring him any. I called for the pain medicine, and they brought it in 5 minutes. Not all places are bad, or not all staff are bad (I'm a nurse), but my mom has went in rooms and fed elderly patients while staying with my dad because they had no family there, staff would place tray on table at bed side and no one would feed them. Staff would go back and pick up the tray that wasn't touched. MO will definitely put hysterectomy over knee replacement, that's what they do lol! HUGS!!!!

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Poodles-when we lived in NJ we bought a condo in North Myrtle Beach. Owned it for 19 years. Never rented it out.Loved it so much, but we sold it about 10 months before I retired (didn't know I was retiring then). Sure wish I had it now...would have been the perfect meeting place!!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    Sue, we need a "like" button.

  • Sloan15
    Sloan15 Member Posts: 896
    edited May 2016

    Hi there. I'm back from vacation, and it was GREAT!! I hardly thought about cancer at all. Most of you are sleeping as I post this on California time, but when you wake up, let me know if there's anything with regards to the group that i need to know ASAP. Everyone doing okay? I'll read the back pages eventually.

    I had no SE for 5 1/2 weeks, and then I had cording the day I got back. Sheesh! If anyone gets that pain in the inner arm, start stretching immediately!

    I picked 3 cool pictures to share: a huge chateau outside Paris, me standing in the invisible room hanging over the Alps (yikes!), and the last pic is my husband with the Roman toilets (apparently a pretty social place during it's time!)

    image

    image

    image

    Peggy - Are you in your new home?

    Moondust - You okay? Did you get another opinion on chemo? What did you decide? I'll text you tomorrow.

    I'll see the rest of you in the morning. No, afternon. I'm coloring my hair tomorrow for the first time in a year!! Goodbye grey!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    Sloan, looks like you had a fantastic time! Which chateau was that? The only one I remember having arches like that was Chenonçeau, straddling the river Cher (and a TGV ride from Paris to Tours--on that trip we also saw Cheverny and Chambord, as well as Leonardo’s home & studio). Near Paris, we visited Versailles, of course. Where in the Alps were you? That must have been scary, but exhilarating at the same time! And where in Rome were those toilets? (Handy to know "where to go” next time we visit).

    Definitely get proactive with that cording--stretching is a must. Don’t freak out if you get little bruises after the cord pops--it’s normal.You want to avoid it turning into LE if possible.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Sloan, welcome back! So glad your trip was FANTASTIC! Loved the photos. You're quite welcome to stand over "nothing" - not me! I haven't moved yet. Just finished up with the memorial for DH over the weekend. One son and DIL left yesterday, the other set today. I have the FHA appraisal this morning - keep all fingers and toes crossed that it goes without a hitch and the sale can progress. Now to pack what I can and leave the rest for the movers. And see my PCP, MO, pick up my imaging records, get tranquilizers for the cat and test them to make sure they work, etc etc etc!!

    Do pay attention to that cording! Stretching is the best thing. I don't know that I get cording but I can tell when I haven't stretched my arm regularly enough - it gets a bit tender. Stretching does the trick for me.

    BTW, your DH is very handsome!

    HUGS!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited May 2016

    Sloan- Welcome back! Looks like a terrific trip! Love the pictures! Wow- that "invisible room" though gorgeous- is crazy scary- but hey- now that you've kicked cancer- you can do anything, right? Remember to post a pic of your new 'do- what fun!

  • brithael
    brithael Member Posts: 224
    edited May 2016

    Sloan - Love the pic of Chenonceau château. I took a group of high school students to France and England back in the 90's, and we visited there as well as Chambord. In fact I used to have a water color print of Chenonceau, and now I'm wondering, what happened to that? Glad you forgot about cancer!

    I've been on anastrozole for three days - no SE's noted yet - hopefully that remains true.

    Still waiting for my hair to get at least Judi Dench length. I wear a hat out, but too hot for wigs!

  • Molly50
    Molly50 Member Posts: 3,773
    edited May 2016

    Welcome back, Sloan! I am not sure I will recognize you without your lovely silver hair. Glad you had a good time without thinking about cancer! My BS appointment today. I moved this one up from July because I want my surgery scheduled and I am having a heck of a time getting anyone to schedule it. Once I see her today she will understand that I only have July/August to do the mx. I can do the exchange surgery in the fall since it should not require that much time off even though it is bilateral.

  • 1step
    1step Member Posts: 110
    edited May 2016

    Sloan, what gorgeous pics! So glad to hear you had a good time.

    While we're on the topic of cording- I knew my cord wasn't 'gone' yet, but I was having a hard time getting it to stretch. Some days, I could have a way to feel the stretch, but most days I couldn't. Then a couple weeks ago, I ended up with a couple insect bites on my hand, and the LE flared; now suddenly the cording is back to being visible in the armpit, and I can feel it down to my elbow. Has anyone heard about LE making cording worse?

    I've been working hard the past month or so to try to ge therapy that can be covered by my insurance, but it's been a real battle, and still no luck. I see my BS tomorrow morning, and hopefully that will work. Apparently, a specialist needs to prescribe it.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    Sloan, I LOVE your pictures. What a great vacation from cancer! You deserve it.

    DH and I came back home from the mountains last night. We had such a nice, relaxing time. It was hot during the day, but come nightfall it was pretty cool, so we slept with all the windows open.Cool enough to wear my long sleeve, long leg PJs and put two blankets on the bed. The last time we were up there I had to clean the inside from top to bottom for several days, due to some mildew. We bought an ozone purifier and ran it a few times while we were there. This time it was much better. No mildew anywhere, only a little musty inside the camper. So we ran the ozone purifier again and that took care of the mustiness.

    As Sloan said, we took a vacation from cancer this weekend and just focused on having a lovely, sweet time at our favorite campground. Rode the hayride. Sat on the hill, listening to the bluegrass band down below. I even saw a brilliant rainbow over the mountain after the rain. Really, it was just THE. BEST. weekend.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    My pre-LE cording was not visible (I am not slim), but once LE kicked in, it’s visible in my armpit. I lie on my non-LE side and slowly make a full arc--front to back--with my LE arm and hold the stretch for 5 seconds. I do 10 reps. Sometimes if you stretch the breast (they gave me a rubber pad) away from the armpit, it intensifies the arm stretch.

    At the spa where I stayed in San Antonio, I bought an all-natural insect repellent that uses citronella and patchouli as well as certain herbal oils. Worked so far. (I keep Off! with picaridin--not DEET--around too).

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