Spring 2016 Rads
Comments
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I noticed last night while putting Aquaphor on my breast that I felt something. It's on the other side from my lumpectomy scar, almost directly below where my lymph nodes were removed. I had my RO check today after rads. She said it could be a fibroadenoma or perhaps a tendon? It's long and feels almost cord-like. She told me not to worry so I'm not, and that it could be caused by the rads? Just wondering if anyone else had something similar before?
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Could be cording, I actually had something like this a few weeks ago, a hard ropey feeling area right between my lump ectomy and sentinel node, it felt kind of bruising as well. I massaged it and it actually went away on its own, I asked my oncologist about it a few days later and she told me it was probably cording.
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Deaconlady - My BS warned me about cording at my post surgery follow up. I didn't ever get it but what you described sounds a lot like what she was talking about. She said it goes away.
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Had last whole breast TX today and my breast is angry and peeling bad under the breast and under the arm. What is everyone using for peeling skin? Good note only 8 more boosts to go and three days off with the holiday.
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Thanks, ladies. I don't think I've heard of cording, but that's exactly what it feels like.
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Sheri64, I had terrible peeling and pain in the same areas as you. RO prescribed regenecare gel. I used aloa vera and auquaphor mostly. I used domboro soaks once to twice a day, that was very soothing . The best thing however was a product my doctor gave me called Coolmagic hydrogel sheets. They are expensive but he gave me 2 sheets. I ordered a box of 10 messaging 4x4 for about $65. It's hard to keep on under the arm so i used a tube top bra to hold it in place. I padded under my breast and arm with tube socks folded up. Anothet trick I did was wear a swim floatie on my arm to keep it away from my body and prevent skin on skin.
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Sheri 64- I use Fruit of the Earth Vitamin E cream
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I went this week for my verification appointment. I was laying there in the prone position and the techs were calling out numbers, drawing on me, and then tattooing my body. I was alone, without anyone and I just wanted to cry. However, I could only let one tear fall because I couldn't move to wipe it. It was cold in the room and I started to feel really cold. Finally it was over and I could leave. I was relieved. After I left, I broke down. It was almost like a slap in the face to remind me that I have Cancer. I had recovered from surgery and was doing great then, all of a sudden, this.
I went the next two days for treatment and it didn't take near as long. I asked the tech if it was going to get easier and her response was, yes. And it was easier each day. I have the same techs and same machine, everyday.
Three treatments down and twenty-seven to go!
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Aw, Melancholy, sorry your introduction to rads was so emotional. I'm sure you'll find it gets easier each time you go! With every treatment I went to I just thought "one more to zap those cancer cells that may be lurking"!!! I'd come home and put a big red checkmark through the appointment on the listing sheet and feel confident that something else was being done - it's nice to watch all those red marks pile up. I just finished my last whole breast treatment on Friday and felt briefly sad as I watched the thing swing over my head for the last time - I'm on to the boosts next week and then I'm all done! Hang in there! Sometimes it's hard to get back into the swing of things after the weekend off, but by Tuesday you're back into the routine of going again
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Melancholy, I understand how you feel. I was SO excited my first day- to feel like I was doing something to kill the cancer, but cried on my second day because it was my birthday and I was thinking " I turn 42 today and I'm having to get radiation because I had cancer" The rad tech that had only met me twice gave me a hug and 2 gifts and made me feel so cared for that I was ok after that because I looked forward everyday to talking and laughing with those awesome people. I find ordeals easier to go through if you go through it with awesome people! You will do great with your rads! HUGS!!!!! And cry all you want, it's been 2 weeks post rads for me and I still have crying spells at times, for no reason at all. It's ok to get down, as long as we don't STAY down!!!!
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I just finished my first week of Rads, it was a four day week because Monday was a holiday here in Canada. Been OK. There are the same people in my unit every day, and they are kind and friendly. The way I've timed it traffic isn't bad to get there or home, and the hospital is on a lovely campus where I can go for a walk if I get there early.
I think I'm starting to notice that side of my chest becoming just the tiniest bit pink, and occasionally I get itch I think I'm starting to notice that side of my chest becoming just the tiniest bit pink, and occasionally I get itchy.
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MelancholyL, I just finished my first full week of rads and it has been a very emotional journey. Didn't really have a meltdown until day 6. The techs were running behind and not as friendly. It was raining and the traffic was horrible. I was tired from getting up early every morning and being reminded everyday I had to go fight cancer. So I felt miserable all day yesterday. I am tons better today with a good night sleep and knowing I have a three day break from the routine. Everyone in the waiting room tells me it flies by and I agree with checking off everyday we finish. But I also am reading a book by Brene Brown and she has a chapter on self-compassion which I am trying to do. Think of how you would respond to your child if she were undergoing this treatment. In other words, be compassionate to yourself during this time. Don't beat yourself up if you have a hard day dealing with this. For me its the long drive and disruption to my daily routine that gets me down. I have never been a go to the doctor person and every single day I have at least one visit to the doctor. It stinks. I hate it. But I accept it and try to look for the blessings and nuggets of joy each day. Enjoy your long weekend and cheers to finishing your first visits!
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I am now 15 of 25 down. Woohoo! My skin is just a little pink. A tech said it looks good and keep doing what I'm doing. I'm a bit fatigued, but I think it's mostly just the daily 3-hr. round-trip travel, although I kind of enjoy that alone driving time. I have some chest tightness, so I'm doing daily stretches to keep it loose, but that may only be an SE for mastectomy without recon. Two friends have gifted me massage therapy, but RO said to wait until a month after treatment. I'm HER2+ and still take Herceptin, so I have echos every three months, and so far, my heart function has been good. Rads tx ends June 15, so I'll be curious at my next echo June 24 if radiation has affected me any. Looking forward to the break on Monday for Memorial Day holiday!
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I'm still waiting for my post-op to find out about my radiation therapy. I'm extremely lucky living across from a big medical building that has that service available. About how long does each session last? I home school my kids year round and want an idea how much to plan for them to do on their own while I'm gong (they do 5th grade work).
I'm also wondering...I have several skin tags on my left side where I will receive radiation. Should I see about having them removed before I start? There are a few right under my breast that and a couple in the underarm region. I meant to take care of them in June before I received the diagnosis. Now I'm not sure if I should get them removed or leave them and handle it later.
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I have a few skin tags in the axilla area, but I've left them alone and figure I'll address them after finishing tx. I'd ask your RO if radiation might irritate the area if you remove them now.
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If there's one thing that I've learned about cancer treatment it is that it's a big, giant, roller coaster filled, up and down journey. For sure. It's funny, I'm waiting to jump on the Tamoxifen (T) train next Wednesday and I have the same trepidations and and questions as I have had before starting any of the other bc txs that I've been through. I'm trying to let myself mellow out a bit. But it's hard. The "not knowing" is the worst. At least for me.
#CancerTreatmentSucks #ButCancerSucksWorse! hahhahaaaaaa #RadiateThis
Happy Saturday!
ejman- My treatments lasted about 5 minutes each. You are so very lucky to live close by!
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Glad all is well!!
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I've been on tamoxifen for over a month. So far, no side effects.
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I got to have a session today. One of the techs said on Thursday that they had an emergency patient they had to treat today and asked if I'd like to come in too. Apparently the nurse put in my notes that I'm trying to push the timeline--this will have me ending 10 days (vs. 9) before the wedding. I figured why not grab an extra day to recover. This was #9/20. I think next Wednesday I'll have my sim for the boosts.
Re: skin tags and such, I have tons of freckles and moles and skin tags but didn't think about it (and nobody mentioned it wrt rads). I'm sure it's not a big deal.
ejmann--I think I'm actually in the room for about 10-ish minutes. They are very careful positioning everything correctly, plus I get images taken every day before the zapping. Once that starts it's less than a minute (~20 seconds + ~12 seconds + ~5 seconds--I count ;-) ). I believe most people are on a schedule similar to mine--once a week I get x-rays and see the RO. Those are slightly longer appointments. It really works very efficiently and I think I've been lucky in that the office just hasn't been very crowded since I've been in tx. The day I had my sim there was a sign up at the front desk saying they were running behind that day (for zapping) and to please be patient. I'm sure this happens often but I always show up 10-15 minutes before my appt time and have always gone in early. (It might help that I usually go midday-ish--they told me early on I should be relatively easy to schedule since most people want early morning or late afternoon.)
Happy Memorial Day weekend to all the 'Muricans out there. We've having a couple of people over tonight but very low-key burgers and dogs type thing. I'm off to bake a cake. :-D
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I hope everyone is having a "radiant" weekend and enjoying their respite from treatment!
Ingerp, I'm glad you were able to squeak in a treatment today being a Saturday. You have good motivation to motor through and get finished up before the wedding!
ejmann, I will echo what some others have said - you're in and out of the treatment room in about ten minutes - I think positioning takes longer than the actual radiation some days.
Happy Memorial Day long weekend to my American friends
Cheers!
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Anyone else have breast pain with radition. I just finished 28 whole breast TX and today my whole breast hurts. I still have a large Semora that's been drained twice but comes back.
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Sheri, I am 2 weeks post rads and have gotten pain on and off. The pain was worse today, probably from wearing bra all day and being in car all day with seat belt that likes to slide over my breast. The intense itching had subsided but came back last night with a vengeance. I've just learned to deal with it and it eventually gets better. Hugs to you!
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Mags, you crack me up as always! LOL!!!! Everyone have a RADIANT weekend!!!! ###CANCER WONT KEEP ME DOWN!###
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Hi Melancholy. It will get much easier. I will PM you, we may have the same people treating us. I'm halfway through and ready to be done!
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Hello all. I am starting June 6th after 4 TC chemo treatments and one month off. Worried. I still don't know how many treatments. My radiologist said 3 weeks or 7! Depends on how well the heart and lungs can be shielded.
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Hi Jonsey, welcome! Keep us posted on what your treatment plan will be - you'll get lots of great tips here. Reading through the Winter Rads 2016 board might be helpful too. Depending on where people gets their rads and what their particular situation is dictates their length of treatment and what kinds of side effects they have. I have had three weeks of whole breast treatment - finished up on Friday - and begin a week of boosts today and then I'm done! For me, it's been an extremely easy process and I haven't had any side effects except for some very light pink skin. I didn't have chemo beforehand, and I'm sure that experience factors in as far as fatigue, etc., goes as you may be a little worn out from that (?) - someone who has gone that route can obviously speak better to that than I. Ask any question you like; there will be someone on here who can answer it for you!
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Does this sound familiar? I was thinking all weekend about how I really have not had much in the way of SEs--skin is justa little tan, energy level seems good--but there was like a five-hour period in the middle of the day today when I really could not get out of bed. Did not feel sick--just had to be off my feet and really did not sleep but wanted to close my eyes. Was fine yesterday (after a pretty big Saturday night with friends over), and was fine this morning and fine now (although I will head to bed soon). I don't think I've ever experienced "fatigue" before. This isn't going to happen every day, is it?
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Ingerp, I hope that this is not your new "temporary normal". I've had a few days like that, too. And I'm still fatigued. Mostly my muscles. My legs feel so heavy sometimes. My RO says this will get better in about a month or so. Fun times...
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Welcome jonesy!!!! Ingerp, I had pretty severe fatigue, some days I barely made it through work and would come home and pass out in the bed for 2 hours. It has finally gotten better 2 1/2 weeks post rads- now I'm having trouble GETTING to sleep lol!!!
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Hi Radiant ones!
Had a great weekend helping DD with painting and landscaping. Did great and felt like my old self until Today!
Ingerp and Iammags -I too had the legs of lead today! Yikes it came on all of a sudden! Hopefully tomorrow will be better. Not looking forward to going back to rads tomorrow but I will be over halfway!
Grazy- are you starting your boosts? Wondering how that is would like to fast forward the last 2 whole breast weeks!
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