2 lumps now MX...thinking of backing out of planned surgery

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TrmTab
TrmTab Member Posts: 832

I just joined this group a couple of days ago and my head is spinning.

I had two lumpectomies, Dec and January...not clear margins on second go around but my surgeon wouldn't do a third lumpectomy.

I have been on Arimedex since late January and am currently scheduled for mastectomy next Friday!

I haven't had a recent mammogram (not since before first lumpectomy) and am now wondering if I should given my being on the Arimedex...

Have folks had a mammogram in this kind of case before continuing with surgery?

Have folks switched surgeons after 2 lumpectomies to try a third?

Once I have a mastectomy I can't get it back, so confused.... 


The pathology results from second lumpectomy that still has positive/close margins:

A) BREAST, LEFT, 6:00, SUPERIOR MARGIN, RE-EXCISION:
- RESIDUAL DUCTAL CARCINOMA IN SITU.
- NUCLEAR GRADE: 2.
- NECROSIS: ABSENT.
- ARCHITECTURAL PATTERN: CRIBRIFORM.
- SIZE: PRESENT IN 2 OF 6 EXAMINED BLOCKS, LARGEST CONTIGUOUS AREA 4 MM.
- MARGIN: FOCALLY POSITIVE FOR DCIS.
- CALCIFICATIONS: PRESENT IN ASSOCIATION WITH DCIS.
- ADDITIONAL FINDINGS:
- HEALING BIOPSY SITE CHANGES.
- NO EVIDENCE OF INVASIVE CARCINOMA.

D) BREAST, LEFT, 3:00, INFERIOR MARGIN, RE-EXCISION:
- RESIDUAL DUCTAL CARCINOMA IN SITU.
- NUCLEAR GRADE: 2.
- NECROSIS: ABSENT.
- ARCHITECTURAL
PATTERN: CRIBRIFORM AND SOLID.
- SIZE: PRESENT IN 2 OF 6 EXAMINED BLOCKS, LARGEST CONTIGUOUS AREA 5 MM.
- CALCIFICATIONS: PRESENT IN ASSOCIATION WITH DCIS.
- MARGIN: LESS THAN 0.1 MM.
- ADDITIONAL FINDINGS:
- HEALING BIOPSY SITE CHANGES.
- NO EVIDENCE OF INVASIVE CARCINOMA.

Comments

  • april485
    april485 Member Posts: 3,257
    edited May 2016

    There is good news and bad news in your report above. GREAT news is they did not find any invasive cancer and they found no necrosis. Bad news is that you have not one, but two margins that still came back positive for cancerous cells. I would not leave that in my breast. I know it is a very difficult decision and the only person who can make it is you. I would try to get a second opinion if it makes you feel better before you have your surgery. 5mm is not a huge amount but it is substantial enough to warrant taking it out and not just relying on radiation of the area to get it. I am sorry you are faced with this. I had two lumpectomies but was lucky that my margins were clean. If you have very large breasts, you can ask another BS if they would do a third lumpectomy but if your breasts are not large, most would likely recommend MX. Hugs and let us know how you make out.

  • Annette47
    Annette47 Member Posts: 957
    edited May 2016

    I agree with April that the DCIS needs to come out, but perhaps you can find a surgeon who would be willing to try a third re-excision to see if it is possible to save your breast? A second opinion is definitely in order in your situation, if only to give you the peace of mind of knowing you really didn’t have any other options.

  • rianne2580
    rianne2580 Member Posts: 191
    edited May 2016

    I can only speak from my experience. There is so much new information regarding DCIS. I was diagnosed with DCIS and a small tubular cancer in right breast in 1994. Had a lumpectomy. The margins were not clear. The surgeons at the time were pressuring me to have a bi lateral MX and reconstruction because they were convinced the LCIS (lobular carcinoma insitu was also found) would show up in left breast. I refused surgery, had mammograms and follow up by a new surgeon. New research shows LCIS is no longer an issue with BC. No longer a threat. I also did not have surgery, chemo or radiation for 17 years.

    In March 2011, a very small (1mm) invasive cancer was found with small DCIS in another area of the right breast. I did agree to a unilateral mast. no reconstruction. Before they knew the cancer was so tiny, my surgeon felt there must be much more there because of my experience in 1994. Guess what, 1mm, that is all! There is no way to tell how much cancer without surgery. I was kind of upset but grateful I did not have to have chemo or radiation, not that I would have. I am a skeptic. It is May 2016 and no recurrence.

    Every experience is different, but my suggestion to you is to get as many opinions as you possibly can. Research everywhere! The controversy is huge about DCIS. Contact specialists in other areas of the country. I had my pathology analyzed at Loyola Univ Med Center in Maywood, IL and Johns Hopkins as well as my local surgeon in Kalamazoo, MI. It is your body, it is your life. Ask questions and demand knowledge of the studies that back it up. My the way, my DCIS was grade 3.

    My heart goes out to you and hope you find the answers you seek.

  • LAstar
    LAstar Member Posts: 1,574
    edited May 2016

    I had an MRI before my BMX that showed that the DCIS was more widespread than the mammogram indicated. However, it also showed what turned out to be a false positive area in the other breast, leading to my decision to have bilateral MX. These are tough decisions.

    Thanks for sharing your experience, Rianne2580. Interesting to hear a success story with grade 3 DCIS.

  • TrmTab
    TrmTab Member Posts: 832
    edited June 2016

    Update

    I have decided to go ahead with the MX surgery, but we are only going to mark the sentinal node, not take it out at time of surgery.

    As I have had two lumpectomies without any invasive cell pathology...we can also go back and get the marked nodes if need be, but avoid the LE risk if it isn't necessary...hope this is a good middle ground.

    All good thoughts and prayers are welcome, tomorrow morning coming my way.

    I'll update again on the other side...



  • Annette47
    Annette47 Member Posts: 957
    edited June 2016

    Sending good thoughts your way! It sounds like you have a good plan in place. I’m glad they are letting you mark the sentinel nodes without removing them - hopefully that will become standard practice in the future.

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