Never let them remove Lymph nodes

Ogicam
Ogicam Member Posts: 7
edited May 2016 in Waiting for Test Results

Research has shown that removing lymph nodes during lumpectomy serves of no benefit and actually creates several disadvantages to breast cancer patients. Not only are you removing the last line of defense, but the pain and swelling of future lymphodema simply makes removal of auxiliary lymph nodes a poor decision based on the facts.

Whenever you have surgery, doctors will tell you that something called angiogenesis takes place and the body creates inflammation in the surgery area and well as a flood of new blood vessel activity to heal the wound. This inflammation is a normal process of the body. The bad news is, this angiogenesis creates what is known as "seeding". Seeding is the escape of microscopic cancer cells into the blood stream. Removing the auxilliary lymph nodes creates more inflammation and massive blood flow to the area allowing cancer cells to escape into the blood stream and travel to other parts of the body long before you have an opportunity to have systemic chemo treatment to stop this seeding.

By the time a patient has chemo after removal of tumor and lymph nodes (usually two weeks) this is more than enough time for the cancer cells that escaped to settle in other parts of the body. Most of the top surgeons now agree that removal of lymph nodes offers no advantage to the patient and long term causes more problems with metastasis and swelling of the arm.

The best solution is to leave the lymph nodes alone and allow the systemic IV therapy to do its job on the lymph nodes and kill the cancer before it has seeded other parts of the body as a result of the surgery trauma and increased blood flow.

This is exactly what happened to me in 2013. I was scheduled to have a simple lumpectomy of a 2 cm tumor in my left breast. However, during surgery and without my prior knowledge, the surgeon removed 13 lymph nodes of which 9 were positive. What became of his poor decision was three addition years of pain and mysery. The cancer got out and seeded in my sternum, lungs, pelvis, ribs and skull. The cancer came back less than a year later with two new leisons growing on both sides of my lempectomy scar. I then had TOMO radiation on both as chemotherapy no longer worked. The cancer became immune to the chemo. I was estrogen positive and was unaware that chemo has little effect on ER positive, or hormonal driven cancers. If anything, it allows the cancer to build resistance.

The Tomo radiation took care of the tumors, but caused many other physical and mental issues in the year that followed. In a nutshell, removing those lymph nodes was the beginning of a nightmare. And it was totally unnecessary. I hope this post at least empowers others to be informed of the latest research before allowing a doctor to do something that has little benefit to your cance treatment.

Comments

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited May 2016

    Too late. Had 20 lymph nodes removed, and I've been fine ever since. Of course, I had chemo first, and scans showed the nodes were clear. It is what it is. Sorry, this happened to you, my friend.

  • Artista928
    Artista928 Member Posts: 2,753
    edited May 2016

    Seeing if cancer is in the lymph nodes is part of staging. Staging provides additional info on if chemo is even necessary and if so, what kind. So I personally don't think it's a good idea to can it all together. What I'd tell the surgeon is don't take so many out. I've seen folks who have 1 node positive after a bunch are taken out? I'm so happy my surg stopped at 4, so it's 1 out of 4 for me.

  • Janetanned
    Janetanned Member Posts: 532
    edited May 2016

    I had 30 removed with 4 being found to have cancer cells inside. That was 4 1/2 years ago. I'm fine, no LE, no pain, no problems, and no cancer. I'm sorry you had difficulty. However, that is not everyone's story.

  • pumela115
    pumela115 Member Posts: 231
    edited May 2016

    I too had 17 nodes removed and 6 had cancer. 6 years later and I have had no problems. Under my arm is not normal though, but I can live with that. I'm sorry this happened to you, but it doesn't happen to everyone. I hope everyone will discuss this with their doctor before making any decisions.

  • Tmh0921
    Tmh0921 Member Posts: 714
    edited May 2016

    I had 14 nodes (axillary and sentinel) removed 16 years ago with no issue (no lymphedema or metastasis). The only side effect has been some loss of sensation in the skin at my armpit and the back of my arm/shoulder area where some nerves were severed.

    Until recently I wasn't aware that they still removed large numbers of nodes since sentinel node mapping and biopsy became the norm. When I had my surgery in 1999 my surgeon did both sentinel node and axillary node biopsies because sentinel node biopsy was just starting to be used.

    I'm sorry you had this experience.

    Tracy

  • cookiegal
    cookiegal Member Posts: 3,296
    edited May 2016

    I don't know about the seeding part, (I think this is sort of discredited), but I will say lymphadema has in some ways ruined my life. I used to want to be a travel writer, now I don't want to get on a plane. I dread hot weather outdoor events. I am so glad I went to a music festival in Louisiana after my biopsy because I don't plan to ever go again. My leg now has issues too. It is so hot to have garments on two limbs. Last night I woke up for an hour because I was so uncomfortable.

    I didn't do chemo or have my nodes radiated, but boy do I wish I could have the 7 negative nodes back more than anything.

    The positive one they can keep.

    I am so glad for those of you who did not have these issues.

    I don't agree with everything the OP said, but if you have an option, keep your nodes.


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