Lumpectomy Lounge....let's talk!

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  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Sandy - So sorry about the mole. More worry is not what you need! Hoping you get the all clear and can go back to preparing for your trip to Italy

  • Brutersmom
    Brutersmom Member Posts: 563
    edited May 2016

    614 I am so sorry. Wonder if that teacher went to the same school as many of my teachers. Life can be so cruel but it makes us strong people over time.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    It's been a wonderful morning. The kids and I have been going through photos - many that they've never seen before - of their dad. Reminiscing with lots of smiles and laughter. Nothing sad today. With luck we'll even get the displays done today.

    Octogirl, photos certainly do make the home!

    HUGS!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    peggy, it sounds like y'all are having a wonderful time.

    OMG, Sandy! I sure hope your mole is nothing. With the holiday it may take a little longer than a week to get the path report.Hopefully not, though.

    614, I'm just sick for your son losing his beautiful, irreplaceable painting.- Can he go to his advisor about this stupid teacher ?

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    DH and I are headed to north Georgia to spend the long weekend in the mountains. I will prolly be off the grid, mostly. Lord knows, we need a getaway.

  • 614
    614 Member Posts: 851
    edited May 2016

    Hello everyone: Thank you so much for all of your kind words and support for my son and our woes. I REALLY appreciate it more than you know. The Road Rangers and Highway Patrol did not find my son's painting. :(:(:(

    Dear Sandy: I am praying that your mole is a dysplastic nevi and not melanoma. Good luck. It is so worrisome and scary to have a mole appear so suddenly especially given the fact that it is irregular and mult-colored. I would be terrified. I am glad that you go to your dermatologist frequently and that you have full body scans. (I have to go for body scans every 6 months too because I had a basal cell carcinoma, 3 dysplastic neviis, and 2 actinic keratoses.) I am in your pocket during the week of nerve-wracking waiting and I am hoping for benign results.

    I have a question for you that is totally off topic. Your husband is a doctor. Why does he smoke cigarettes??

    Dear Peggy: I am glad that your entire family is together. 19 years - wow. I am glad that you are moving closer to your son. Enjoy the time with them and at the memorial ceremony.

    I am at work but I wanted to check in before I leave work for the holiday weekend. Have a great Memorial Day weekend everyone.

    Sorry that I did not respond to all of you individually, as I try do always do.

  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    Oh Sherri, I am so upset that your son's painting is lost! It is very beautiful and he is obviously talented. Does the friend have any idea where it happened, within a couple of miles? I would be tempted to mount a search party to comb that are of the road on both sides. I don't think you can rely on the Road Rangers and Highway Patrol to do the best job possible. Is there somewhere, such as a local Pennysaver or Craigslist where you could post an image of the painting and advertise a reward, such as $100?

    I think I know the answer about Sandy's DH smoking cigarettes - nicotiene is the absolute hardest habit to break! Some manage to break it, but most don't.

    Sandy, I'm upset to hear your dermatology finding. I'm keeping my fingers crossed it is nothing and waiting to hear the results!

    Peggy, it must feel very good to finally have your kids there. I hope the rest of your weekend goes as well! HUGS back to you!!! I'll be there in spirit along with Octo :)

    Heathet, I'm glad your procedure went so well. My main concern is having another hose shoved down my throat. Did you have that? I've got a touchy throat right now. Even when I'm 100% healthy I usually get a sore throat from that, for a week!

    I am still sick and still have a fever.The good news/bad news is that my two friends I hiked with on Saturday AND the one other friend I hiked with on Sunday both came down with the illness. What's good about it is that I can probably rule out Valley Fever as the cause, which was suspected by my GP. Valley Fever is not contagious. It is caused by a fungal organism and I live in an area where it is endemic. I have lived here for 28 years and never got it, but my dog Cooper got it a few years ago and took months to get well.

  • tbalding
    tbalding Member Posts: 449
    edited May 2016

    614, I'm so upset for you! The painting was beautiful!

    Sandy, I'm so sorry you have this additional worry. And why does a person always get news like this right before the weekend & especially a long weekend which makes the waiting so much longer. Praying for peace for you & good results.

    Heathnet, glad you had no issues with the insertion

    Moondust, I hope you and all your family get better soon. Also, I don't like the hose either, made my throat sore for a week too.

    Peggy, glad all is going well for the memorial, surrounded by your family sharing memories & looking at photos. Will be thinking of you tomorrow.

    Poodles enjoy your getaway

    Sue, thank you for post, it made me smile. You'd think they would have come up with a way :) Most days I'm a positive person and am able to push worry of recurrence back. But I can tell it's there because every time a rtest is mentioned my insides scream nooooo, lol!

    Went to my first MO appointment today. My surgery was in Indianapolis , which is 1-1/2 hours away. I was referred there by my family doctor. Same bs that did my doctor's sister bx. The bs was wonderful am glad I went there even though had to travel. My bs told me that I could see an MO & RO closer to home and referred me to a cancer center in Terre Haute which is about 30 minutes from home or work. I say this because when I met with the MO, she seemed put out at first about my records. I told my DH that it didn't seem personal towards me, she was concerned and caring towards me. But she kept making comments as she read through the records that the bs office had faxed. She also didn't have my mammos because they had always been done at a different hospital than hers. I told my DH that she is probably used to most of her patients having all aspects of treatment at her hospital /center and having all records at her fingertips. (He didnt like her at first. She had to excuse herself to answer a page & he thought her manner was better when she came back.) So made it through all the background & medical reports with her & she talked to me in detail about the treatment options. She told me since I had a small spot of IDC if I wanted the onco test she would have it run. But she pointed out that the IDC was very small & a non aggressive type plus the nodes were clear that it was my choice if I wanted to have it. That's when the voice in my head screamed noooo, not more tests. I told her no, I didn't want it. So, I am joining you all that are or will be taking tomoxifen. She said it would be for 10 years. I have the prescription. She said it is up to me when I want to start, she said many don't want to start it and radiation at same time. I thought I would wait until after I meet with RO next Thursday. Overall I think I'm satisfied with the MO, I go back to see her in a month. What have you all done? Waited until after rads to start tomoxifen?

    Sorry for long posts, but after reading about others experiences thought I'd share mine. I agree with Peggy, this group is way better than going to a support group! Have a great weekend everyone! I'm visiting with family and quilting (my therapy).

    Hugs to all, Trish

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    balding, I finished rads 2 weeks ago and would have started this week if not for upcoming hysterectomy. I will start when go back to MO at end of next month. He told me that it's ok as long as we start within a year of diagnosis

    614, loved the picture of the painting! The next one will be even better!!

    Sandy, I will keep you in my prayers for good test result, like you need ANOTHER test to wait around on!

    I can't keep up today with so many posts, my brain is fried! Lol! HUGS to all I may have missed!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited May 2016

    614- Your son has such talent.  I am truly sorry about the loss of his painting...horrible! Just cannot imagine that he can be "graded" on his appearance...is there no rubric for the project?  You and he have been ill and I just cannot imagine how you both kust be feeling at this point.  Know I am thinking of yall and sending positive energy your way!

    Sandy- wow- what a shock for you.  Please keep us posted on how things go and how you are doing!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    614, why does my cardiologist husband smoke? Why is the cardiologist’s lawyer wife overweight and has yet to update her will? The shoemaker’s kids go barefoot. He smokes 3-4 cigs per night, never during the day and never indoors. (I’d rather he vaped--it’s better for his lungs and he could do it indoors). Back when he was in grad school in the ‘70s he smoked a pipe--collected them, in fact. When he switched to the MD-PhD program and began his 3rd-yr. hospital rotations, he found himself on call overnight every few days. He couldn’t smoke a pipe indoors (yes, they smoked in hospitals back then, albeit not around oxygen) nor could he exactly bum a bowlful of Borkum Riff off the nurses. Pipes were high-maintenance anyway (when he was a resident and I worked in the Loop, I’d often take them into Iwan Ries, a tobacconist with a DIY-pipe-polishing room--there was a sort of zen to it). In general, smoking was more socially acceptable back then, with most restaurants’ “no-smoking” sections being small islands or even toward the back (where one would still get smoke drifting over, or had to hold one’s breath before getting to the table...still coming home reeking of smoke. But indoor pipe and cigar smoking--except at private cigar clubs or at tobacconist shops--was a faux pas even back then. He quit once, using nicotine gum, but he didn’t like what it did to his moods and alcohol consumption....so he eased back in with pipes and cigars again, only outdoors. Cigs were cheaper and easier to get, soooo...... Bummer about your son’s painting--he is so talented! His drama teacher is an idiot. I get the feeling he will truly blossom in college.

    Trish, I too decided to get rads behind me before starting AI treatment. My MO said it was okay to wait till after the cruise--till New Year’s, in fact, so side effects wouldn’t get in the way and ruin my holidays. I might have started sooner had the Femara I ordered from CanadaDrugs not taken so long to arrive--I gave in and had my MO’s scrip filled locally with generic letrozole. It was the last drug I bought before Medicare kicked in. Maybe, in retrospect, that’s why my cost was so much lower than refills--my UHC drug coverage paid for it but my Humana Part D won’t pay at all --not even for the generic--unless I first “fail” generic anastrozole for 90 days. $27/mo. is doable--it’s less than some of the drugs I must take (Benicar, Dexilant) which have no generic versions yet.

  • Katzpjays
    Katzpjays Member Posts: 237
    edited May 2016

    Trish - MY MO is waiting for me to start Arimadex until after rads. She likes to do that in order to be able to determine cause in the event of any SEs. She said sometimes it's hard to tell if the rads or the drugs are the culprit. She plans to start AIs 2 weeks after I'm done with rads.

    614 - your son has obvious talent. So sorry for the missing painting. Hopefully he can pick up and carry on ..he has a gift.

    Sandy - still thinking of you. So sorry this happened right before a long weekend!

    Alice - hope you feel better soon. Thinking of you as you get ready for chemo. HUGS

  • Sunnyone22
    Sunnyone22 Member Posts: 191
    edited May 2016

    I started AI (Femara) after 2 weeks of rads. Hadn't had any SE's from rads at that point and MO said it'd be fine to start AI then. So far, so good. (Finished with rads now, and have been on AI for 2 months).

  • Heathet
    Heathet Member Posts: 257
    edited May 2016

    Moondust - my throat was a little sore after the procedure but nothing major.

  • 1step
    1step Member Posts: 110
    edited May 2016

    Moondust- let them know the difficulties you had last time, especially if you're getting it done within the same network of hospitals. They might be able to use a smaller ET tube. Good luc

  • 1step
    1step Member Posts: 110
    edited May 2016

    Peggy- hugs to you today. I hope your memorial brings you and your family some closure and fond memories.

  • ORknitter
    ORknitter Member Posts: 119
    edited May 2016

    Peggy, Just thinking of you and hoping your family and friends are bringing you many smiles.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Peggy, hope today is awesome and yal take lots of pictures and videos!!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited May 2016

    Peggy- thinking of you and your family.

  • Molly50
    Molly50 Member Posts: 3,773
    edited May 2016

    You are in my heart today, Peggy

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    Monica, ask for a “pediatric airway” to keep from bruising your vocal cords. And Peggy, may today’s reminiscences conquer yesterday’s sorrows.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    I've been on letrazole/Femara since March with no SEs.

    Sansy, I sympathize with your DH. My brother has need a 2-3 pack a day smoker since his teens. He's also an alcoholic. Although he is 54 (5yrs younger than me) he looks like he is well into his 60s. He knows what he's doing to his body, but he likes to smoke and drink, @ so there you have it. He doesn't go to the doctor because, as he has said, " I don't want to know." *sigh*

    I've never smoked, but I am a nurse (39 years) and considerably overweight. I know all about my risk for heart disease, hypertension, diabetes, and stroke. Its just so hard to stick with a diet and my knees are so bad its hard to do much exercise. I've lost a lot of upper body strength since my BMX, too. it's demoralizing to know that I need to lose 50-lbs. Makes me want a slice of chocolate cake and some Cheetos.

  • Heathet
    Heathet Member Posts: 257
    edited May 2016

    Peggy / thinking of you

  • ejmann44
    ejmann44 Member Posts: 89
    edited May 2016

    Did anyone have pain in their underam? The incision for the node is on my chest, just to the left of my breast. The discomfort I feel is on my arm, just a little lower than my underarm area. It is pretty uncomfortable at night and it feels hot but does cool off and stay cool if I put ice on it. The a few hours later it is very warm again. This is not the side with the incision.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Thank you everyone. The celebration of life went off beautifully! There were about 50 of us with some stragglers coming later. I got through the eulogy okay but I had a poem at the end and that did me in. But still good. Both sons spoke and did very well. Had lots of displays and everyone loved those. First thing this morning all Chuck's family, the kids and I took his ashes (which were really heavy - I was surprised at that) to the state park where he liked to fish. I said a few words and covertly deposited the ashes into the water and one brother stirred them around so they'd disburse. No park ranger made an untimely appearance so we didn't get arrested. Then tonight after the celebration of life the whole family (22 of us) went out to dinner. Chuck's step brother got extremely ill at breakfast following the ash ceremony. I wasn't with him. He went by ambulance to the hospital and quickly ruled out a heart attack. Eventually they diagnosed pancreatitis and he was admitted to the hospital. He lives in Phoenix so this is not terribly convenient. But know he's where he needs to be.

    So now Chuck has been properly celebrated and memorialized and given the send off he deserved. It's nice to have it done. I can concentrate on my move to Spokane. AFTER we celebrate #2 son's birthday tomorrow. But life is good.

    The nicest thing was at the dinner all the family got small gifts for me for now or while I'm travelling to help me on my way. I got a t-shirt from my favorite restaurant and one from Spokane, soap, gas card, one brother-in-law makes maple syrup and he gave me 2 pints. Also a poncho (good because it always seems to rain at the Spokane Indians baseball games!). And a stamp with my new address on it. That was so thoughtful. I cried, of course.

    Time to go to bed. I'm exhausted.

    Appreciate all your support.

    HUGS!

  • octogirl
    octogirl Member Posts: 2,804
    edited May 2016

    Peggy, so glad it went well and will be excitedly waiting for your posts as you begin the next phase of your life. Sending HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    What a perfect day, Peggy. So happy for you!

  • Moondust
    Moondust Member Posts: 510
    edited May 2016

    Peggy, I'm very happy the Celebration went so well! And you knew you had to shed a few tears, right? Everything except the sick step-brother sounded so perfect. I like the gifts you got.

  • tbalding
    tbalding Member Posts: 449
    edited May 2016

    Peggy, so happy for you!

    ejmann, I do not have hardly any soreness or pain at the node sight. But, the back of my arm above my elbow feels bruised to touch and the outer edges of my arm pit, especially by my shoulder is sore/bruised feelng. It does not feel hot. The middle section of the back of my arm is numb as is the center of my arm pit. I find myself holding my arm out so the underarm doesn't rub.

  • ejmann44
    ejmann44 Member Posts: 89
    edited May 2016

    Trish it sounds the same. Huh

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